1. Be sure you are under the care of an ophthalmologist and an endocrinologist.
2. Ask for a second opinion from a oculoplastic surgeon.
3. Radiation is not done so much as in the past due to better medical RX of Graves, the use of steroids and orbital decompression.
Thank you for your response. I am seeing an endocrinologist and my ophthalmologist specializes in ophthalmic plastic and lacrimal surgery. He is apparently the best in my area and has 25 years experience with Graves' Ophthalmopathy. I have had horrible side effects with steriods including excrutiating leg pain, being in a 'fog' and ofcourse the not so nice physical changes. It sounds like orbital decompression won't happen until my eyes stabilize as my optic nerve is currently not at risk... although I have 20/60 and 20/40 vision (which constantly changes), high eye pressure and double vision (up, down and to the sides). I also have Worst Myopic lens implants.
Would radiation treatment be beneficial?
Probably yes. Sounds like you have a good team. Go with their recommendations.