Thank you for your answer.
We are working on getting an appt with the Children's Hospital of Los Angeles. I will update after the appt.
Dr. Hagan,
I wanted to update you on my son.
He had an appt with a wonderful Pediatric Neuro-Ophthalmologist, Dr. Mark Borchert, at Children's Hospital of Los Angeles yesterday. Dr. Borchert is known among the community of being great with Special Needs kids and he was!
My son indeed has Optic Atrophy, with no Neurological causes. His Optic Nerve was described as Pale and Thin. We were told that it would take years for this to get this way and that most likely the Optometrist that saw my son for glasses (a referral from the School District) did not dilate his eyes.
I checked on this today and he was correct, the Optometrist did not dilate his eyes.
Dr. Borchert said that it was most likely caused by a trauma at birth, which there weren't any, he was full term, normal vaginal delivery with a 10 on the apgar scale or from some other head trauma years ago.
I informed him that my son used to bang his head when he was an infant and even though we tried to prevent him from doing so by wrapping his crib with padding and plumbing insulation, that he still managed to bang his head and floors, walls, people.. etc
He felt this was very likely the cause.
We go back in 6 months for a recheck to make sure this isn't progressive. We were told that only @ 1% of this type of Optic Atrophy was progressive, so good odds, but we are keeping our fingers crossed.
Thanks again for your help!
Desert Mama77
I forgot to mention that this is affecting both on my son's eyes.
Which from what I hear, is pretty rare.
Thanks again!
Hi Doctor
My son was born premature at 24 week and was 585 gms he had brain bleed of level 4 ...his brain clot dissolved on it's own in 2 months and he had vision in his eyes but later he developed rop and had retina detachment ...post retina surgery his left eye retina is attached but right eye is attached unto 70% but he doesn't stare at things ...we went to see a neurological opthomologist but they are not treating or giving any medicine but have asked to just wait
Please advise what we should do
JCH MD