pars planitis

[oh well]

Hi, my name is Sallie, I was just wondering if anyone here has pars planitis. It is i very rare eye disease.

[jim1952900]

I was diagnosed with this around 1973. My vision became increasingly worse over the years. I was 20 at the time and had a really hard time with family and freinds. Everyone said go out and get some glasses. They shuned and ostricised me as a slacker not wanting to work..It wasent untill 1979 that they sent me to a center for the visually impaired that they accepted this after i had documentation. After many grueling years in rehab,mind probing,agility tests etc. i was told by freinds and family to give it up stay home and accept the inevetible i was going blind. They went from get a job to give it up. I remember siting at my sisters house with my wife and being told that my wife was going to work i was to stay home and not to call anyone not even for a ride to the store. Since we wernt on a busline this didn't work. At least not for me.How i got out of this and the end results to come next.  Thanks Jim!!!

[nanci502]

Oh and forgot to mention, I did have mono in college and had Epstein Barre virus twice as an adult.  Once about 15 years ago and also within the last year.

[nanci502]

I've had pars planitis for 20 years now, in both eyes.  This happened to me soon after I had my tonsils out as an adult.  I was wide awake when they took them out.  I've been to John Hopkins and National Institute of Health for treatment of my eyes.  I've had the injections and used pred forte drops, along with numerous others.  I've had cataract surgery on both eyes and 6 years later, the inflammation is soaring!!  My eye dr told me they could use a capsule and inject in my eye, which would be sorta time release...problem is, I work 50 to 60 hours a week, with super blurry vision.  I know I shouldn't even drive (I brake for shadows), but being a single mom, you live with it and do what you have to do.  Now with my insurance copays so high, haven't even been able to afford treatment and my vision is deteriorating!!  Frustrating!!

[weschultz4]

Do you know anything about this surgery now?  I dont even know what surgery my eye specialist is talking about because she said I would have to have a "quiet" eye for 3 months first then she could go remove everything?? I have met with Dr Foster once and I have read up on his information but still not understanding of exactly what the surgery even is!!!! I at least have comfort in the fact that now that I have an artificial lens I cant go blind in this eye!!  A few months ago the "floaters" had become horrible blobs so I went back to see her and and she said the gel on the back of the eye had actually fully detached so I didnt know if that is what she would remove or if that is anything that can help me in the future or just remove the constant blob that floats around.....I am educated enough to know whats going on with me after all these years but still not educated enough to feel comfortable with it all

[John C Hagan III, MD, FACS, FAAO]

Yes PP can be a long road to travel. Take comfort frrom the fact that if you had not had all the treatment the eye would likely be completely blind.

Use the search feature and archives to read about PP here and also the section on www.emedicine.com is good

JCH MD

[weschultz4]

I dont know if anyone is even still following this post but I am a 31 year old who was diagnosed with Pars Planitis 4 years ago in 2006 and I have been through hell and high water with it.....I went through 6 steroid injections in my right eye...several months of oral prednisone and wound up with a cataract caused from the injections so I had to have surgery for that and had to go back  on oral prednisone for about 6 months to prevent the PP from inlfamming from the surgery...I went 2 years symptom free and now my symptoms are back....I refuse any more shots in my eye so I am on Naproxen 500mg 2x;s a day and pred forte drops and go back to see the retina specialist every 6 weeks...she talked about a surgery we can do if my eye stays "quiet" for 3 months....I am a nervous wreck about it but the other option is to try the chemotherapy pills and I was diagnosed with Chronic Epstein Barr as the cause of my PP 4 years ago and with that brings a low immune system to going on chemo for something not necessary is really not worth it for me if we dont have to.......Its been a long road and its still not over but I keep fighting....and praying it doesnt ever go to my other eye.....

[John C Hagan III, MD, FACS, FAAO]

You can use the search feature and pull up previous discussions. Plus the pars planitis section on emedicine is excellent.

JCH MD

[KathyRN218]

My husband was just diagnosed with Pars Planitis along with Fuchs heterochromic Uveitis.  He was just referred to a retinal specialist for furthur eval and treatment discussion.

Just wondering if anyone else has had an experience with this disease.

[John C Hagan III, MD, FACS, FAAO]

Hello dlove   One or both eyes? How is his vision? Has he had any treatment yet? If so, what?

JCH III MD

[dlove]

my son who is 6yrs old has pars planitis.

[John C Hagan III, MD, FACS, FAAO]

Anyone out there willing to discuss pars planitis with Sallie. I know we've had at least one or two postings in the last 6 months on the problem.

JCH III MD