Welcome & Introduce yourself to the Fibromyalgia/CFS Forum!

[dustybrown]

Hello and welcome to the Fibromyalgia/CFS forum on MedHelp. This forum is a place for people to come and share experiences with FMS and CFS. Some of you may have a diagnosis from your doctor, some of you may be seeking an answer for undiagnosed symptoms and some of you may be a relative or friend of one who is suffering. This is a great place to learn more and to gain support from others who suffer as well.

In addition to the community here, MedHelp also offers tools to help you and your doctor in your road to wellness. Fibromyalgia and CFS can be so intricate and can have so many different symptoms. Due to this, it is very helpful that MedHelp offers health trackers for us to utilize. We can track our progress and especially our flare ups. Below are just a few trackers that I find useful.

• CFS/FMS Tracker - http://www.medhelp.org/land/health-trackers
• Pain Tracker - http://www.medhelp.org/land/pain-tracker
• Mood Tracker - http://www.medhelp.org/land/mood-tracker
• Weight Tracker - http://www.medhelp.org/land/track-weight-loss

MedHelp also offers a plethora of “encyclopedia style” information available through the Health Topics tab at the top of the page. If you follow the links below you can learn more about Fibromyalgia and CFS, both topics of which are available on MedHelp.

http://www.medhelp.org/medical-information/show/124/Fibromyalgia

http://www.medhelp.org/medical-information/show/636?section_id=27670#sec_27670

I urge you to introduce yourself below and tell us a little about what brought you to the Fibromyalgia/CFS Forum. Again, welcome to MedHelp and the Fibromyalgia/CFS forum!

Sincerely,

Your Community Leader,
Dustybrown

[Howdycuz]

I have EXTREME Skin Sensitivity ALL OVER- (Nearly always at Night-)

It's like having a fever all the time.  My skin tingles, burns, itches and I can feel the minutest particle in bed! (I hardly get any sleep now which aggravates my Hypothyroidism and Fibromyalgia.)

It's driving me crazy!!

Have any of  you found any more info and / or relief?

I Sympathize with fellow sufferers and would appreciate ANY help you can offer!  (I'm near Houston, TX if you know a really good Doctor-)

[Cookiegregg]

I'm just now reading your post. I would love to have a copy of the letter you have.
I hope you still read this as I do not know how to reach you.

Hope you're doing well.

Liz

[Tiredsleepymama]

Just here looking for possible answers at this point.  No dx as of yet.

[Zoie1025]

I'm 32 yr old female and I was diagnosed with FM 5 years ago and my life has never been the same. I don't feel like this is my body anymore that used to love to work out and be active now I feel like I live in a painful prison. I'm in pain everyday all day my flare ups have me on the floor or the couch not moving. I get swelling in my hands and feet, sharp shooting pains like a knife, dull achy pains, sometimes I can't walk or hold a pencil even if my dogs sits on my lap it hurts. I spend a lot of time alone and in pain I can't work. I used to be a hairstylist but I couldn't hold up a blow dryer anymore or stand on my feet that long. Just a hug can be unbearable at times. My arms, legs, feet, back, neck, shoulders, fingers fingertips and toes all have pain. The dull achy hurts but the sharp shooting voodoo pains make me yell out in pain. I mainly get those pains in my hands my palms and it shoots up to my ring fingers and I get them in my ankles too. I have gerd, epilepsy, I'm extremely sensitive to everything (smells, lights,sound,medications) started having jaw problems as well and lately my right ankle has been giving me a real problem it's so weak and hard to put pressure on it or walk on it I can't even be barefoot. Just doing some cleaning and food shopping feels like I was at boot camp for 3 days. This disease is a very lonely one know one understands and look at you like your full of it. I wouldn't wish this on anyone.

[Prairiechild]

Hello everyone
I feel very helpless reading those that have been affected w/ fibromyalgia .
I have been diagnosed in Dec 2012.I have taken it upon myself to be my own advocate of my health.in my youth I had a lot of colds, neck spasms, balance issues and memory/ learning problems
After having albalation for my endo, I starting feeling fatigue and had libido problems.The last 3 years I began running out of energy and was having painful heavy legs.
This January I caught a cold and was stressed over Xmas.I went to work and knew it wasn't good.I couldn't feel my legs and was in a brain fog.i couldn't get off the couch for 3 months and don't remember much of Jan-mar.I have memory Loss ,can't spell well,can't problem solve,don't rember to much spoken to me.I also have TMJ,raynauds syndrome,lazy colon and had multiple bladder infections,painful neck spasms, headaches depression and numbness in finger/ legs.Weakness in my limbs,back pain ,lesion on my back,cyst on my liver , tremors .I have been given steroids taramadol ,pain killers baclofen ,flexeril , Valium etc. I do 15 mins of yoga 2x a week, take MSM,vit b , vit d, omega 3, calcuim w/ magnesium as well as a fibro spray fr Nutters.
I don't want to take gabetin or any else that I feel isn't appropriate for me.I haven't worked since January my pain has improved greatly. I do a lot of research and find what's right for me.I have had physio, laser, massage and recently Botox in front of my ear for pain from TMJ.
At night I take marijuana for pain / sleep etc. I walk when I have the energy.

[Messyblonde]

Hi everyone
I think I have cfs/fibro. I was originally diagnosed with low corsitol levels (very low) and put on steroids. I'm also low in growth hormone (which I isn't literally growth) it's an energy type of hormone. I'm intolerant to bright lights, heat, constantly tired, can sleep on and off for up to 16 hours a day. Sleep is disturbed. Am in pain with neck, back, knees, elbows, hands, have balance issues, ibs, migraines. The lower back pain is terrible. It's hard to bend and shower my hair on my own, so it's easier to do in the bath. I have numbness in my left hand, and even having a bath can be exhausting. I could go on and on but I won't. I'm being referred to a rheumatologist, to see what they think, am already under an endocrinist. I have a son aged 14 who has Asperger's syndrome and doesn't understand why I'm so ill and need to sleep so much. I take Tramodol for pain, but still find co- proxomol better. My sister is lucky to still get these on script. I take sleepers and anti-depressants, but haven't heard of a lot of the meds mentioned on here....I'm being screened for Lupus at the mo, but if that comes back ok, then it will seem to be cfs/fibro........I feel for you all and am in the Uk. I'd like to get to know some ppl that understand