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Any Correlation?
Good afternoon,
I have not been diagnosed with fibromyalgia but it has been suggested that I may have it (by a rheumatologist). I was wondering if any one with fibro has suffered from numbness in their chin. Within the past two years I have had 2 mris of my brain, one ct scan of it, an mri (with and without contrast) of my cervical spine, just about every blood test imaginable for everything from lupus to lyme's disease, and a bone marrow biopsy. All tests came back normal. My current symptoms seem to suggest fibro with the exception of this numbness in my chin. Is this a symptom of fibro?
I have not been diagnosed with fibromyalgia but it has been suggested that I may have it (by a rheumatologist). I was wondering if any one with fibro has suffered from numbness in their chin. Within the past two years I have had 2 mris of my brain, one ct scan of it, an mri (with and without contrast) of my cervical spine, just about every blood test imaginable for everything from lupus to lyme's disease, and a bone marrow biopsy. All tests came back normal. My current symptoms seem to suggest fibro with the exception of this numbness in my chin. Is this a symptom of fibro?
I just posted earlier what type of doctor you should be seeking out.
LLMDs in Canada are extremely rare!
The information that I possess is extremely sensitive and privileged.
Any of these doctors can get flagged by the College of Physicians
and lose their Medical Licences.
People have NO idea what is going on!
There is only one such doctor in Toronto and only one of 3 or 4 in the entire country! I cannot disclose his name as it would be unprofessional and dangerous-potentially career ending for him.
Ticked please private message me and I will give you my secure e-mail address for such communication. He happens to be a very caring and brilliant LLMD.
I will be able to give you more specific info then, as OHIP will probably dispute the Lab's findings-should they be positive.
Here in Canada there are no Labs that are capable to do proper Lyme and Mycoplasma testing, but it can be done though IGENEX in the States
As for you twilliams, you will be able to find an LLMD in Columbia MD easier than us in Canada. Just do a search for LLMD or go to the ILADS
website. You must approach this with caution, as the politics surrounding these issues, resemble Dark Ages politics- suppression, oppression and corruption. Many LLMDs are operating in an "Underground"-like manner and the patients refer to them as Dr.X, for anonymity.
Once you locate an LLMD (hopefully with Pathogenic Mycoplasma experience, as they are commonly together as co-infections)
insist on IGENEX for the testing. Too many false negatives with the majority of most other labs. Check the Institute of Molecular Medicine
website for other recommended reference Labs.
And should the thought cross your mind that I hold some extreme views,
let me assure you that I'm just this balanced everyday guy, that has been on both sides of the fence with a lot of inside information and just sees things the way they really are.
Please do your own research, to verify the above info.
My advice does not constitute professional consultation.
Let me know if you need more details in anything.
You may pm me anytime or post again.
Blessings
Niko
LLMDs in Canada are extremely rare!
The information that I possess is extremely sensitive and privileged.
Any of these doctors can get flagged by the College of Physicians
and lose their Medical Licences.
People have NO idea what is going on!
There is only one such doctor in Toronto and only one of 3 or 4 in the entire country! I cannot disclose his name as it would be unprofessional and dangerous-potentially career ending for him.
Ticked please private message me and I will give you my secure e-mail address for such communication. He happens to be a very caring and brilliant LLMD.
I will be able to give you more specific info then, as OHIP will probably dispute the Lab's findings-should they be positive.
Here in Canada there are no Labs that are capable to do proper Lyme and Mycoplasma testing, but it can be done though IGENEX in the States
As for you twilliams, you will be able to find an LLMD in Columbia MD easier than us in Canada. Just do a search for LLMD or go to the ILADS
website. You must approach this with caution, as the politics surrounding these issues, resemble Dark Ages politics- suppression, oppression and corruption. Many LLMDs are operating in an "Underground"-like manner and the patients refer to them as Dr.X, for anonymity.
Once you locate an LLMD (hopefully with Pathogenic Mycoplasma experience, as they are commonly together as co-infections)
insist on IGENEX for the testing. Too many false negatives with the majority of most other labs. Check the Institute of Molecular Medicine
website for other recommended reference Labs.
And should the thought cross your mind that I hold some extreme views,
let me assure you that I'm just this balanced everyday guy, that has been on both sides of the fence with a lot of inside information and just sees things the way they really are.
Please do your own research, to verify the above info.
My advice does not constitute professional consultation.
Let me know if you need more details in anything.
You may pm me anytime or post again.
Blessings
Niko
That is what my life has been like. A bloody merry go-round. I am so exhausted for trying to find out what the underlying cause is that has been tormenting me for 17yrs. I feel like my life has been robbed from me since I was a teenager and people really dont understand. I have worked at my job for almost 8yrs and no one knows what I suffer through everyday.
I am going to a pain clinic on Nov 29 but I really feel once again that I am going to be disappointed. What could possible cause this? B-12 Deficiency? Could that cause all this damage that has been done to me? I have never been tested nor have I been tested for food allergies.
Is it something more deeper than that? I have peeled the layers I am coming closer and closer into figuring out what the heck has happened to me and I am not giving up nor have I after all of these years. I would never want anyone to suffer this way.
As Niko has asked, what type of doctors should be looking for?
I am going to a pain clinic on Nov 29 but I really feel once again that I am going to be disappointed. What could possible cause this? B-12 Deficiency? Could that cause all this damage that has been done to me? I have never been tested nor have I been tested for food allergies.
Is it something more deeper than that? I have peeled the layers I am coming closer and closer into figuring out what the heck has happened to me and I am not giving up nor have I after all of these years. I would never want anyone to suffer this way.
As Niko has asked, what type of doctors should be looking for?
ticked,
Thanks again for responding. I did google peripheral neuropathy and found that my symptoms are consistent with what I found. I do have others issues though, namely, muscle spasms/cramps (everywhere), muscle weakness (off and on) and aches (just about everywhere). That is why I suspect fibro.
Niko,
Thank you for the insight. I read your comment in the other post. Question, where did you get your information? Also, what type of doctor would I need to see to be tested for these undetectable viruses? I feel helpless because I've seen just about every kind of doctor that I know to see (neuro, rheumy, cardiologist, hemotologist and oncologist). Who's left
Thanks again for responding. I did google peripheral neuropathy and found that my symptoms are consistent with what I found. I do have others issues though, namely, muscle spasms/cramps (everywhere), muscle weakness (off and on) and aches (just about everywhere). That is why I suspect fibro.
Niko,
Thank you for the insight. I read your comment in the other post. Question, where did you get your information? Also, what type of doctor would I need to see to be tested for these undetectable viruses? I feel helpless because I've seen just about every kind of doctor that I know to see (neuro, rheumy, cardiologist, hemotologist and oncologist). Who's left
Fibromyalgia is NOT a specific disease, but a systemic syndrome rather of co-existing symptoms with no "medically" known etiologies. The nature of this syndrome is that at any time the symptomology may change, to include ANY symptoms at all!
The truth is that it is a systemic condition, initiated by an underlying undetectable infectious condition, affecting any system, starting with the most vulnerable one and moving on to others.
Numbness, peripheral neuropathy, they are just more symptoms.
The more negative test results, the more it conforms with the the criteria, as the possibilities are limited to a handful of infectious pathogens that can evade all the MRIs CT scans, blood tests and biopsies!
And we cannot blame ALL the negative findings to the incompetence of the
Labs ( even if they are notoriously unreliable, as cost cutting has seriously cut into their quality of testing)
Do not let your health deteriorate any further, wasting your time and your life with this medical merry-go-round vicious never-ending circle.
I have posted details recently explaining why and how such a dysfunctional system has dominated the scene in regards to auto-immune and neuro-degenerative conditions. It is an eye opener for people who aren't familiar
with this information and would like to know what they really are up against!
The post was on Oct 25th, replying to the question "Fibromyalgia...is this the end?" Please take time to read this and other related posts, as in most cases, once you get to the bottom of this condition, having peeled all the layers, the remaining core is treatable successfully, provided the immune system is re-balanced and strong.
So please research-research-research. Seek the truth.
Myself and other members here, have gained valuable knowledge through our own experiences.
Feel free to ask any questions at any time.
You all deserve better health and better lives. And it is absolutely do-able!
Blessings
Niko
The truth is that it is a systemic condition, initiated by an underlying undetectable infectious condition, affecting any system, starting with the most vulnerable one and moving on to others.
Numbness, peripheral neuropathy, they are just more symptoms.
The more negative test results, the more it conforms with the the criteria, as the possibilities are limited to a handful of infectious pathogens that can evade all the MRIs CT scans, blood tests and biopsies!
And we cannot blame ALL the negative findings to the incompetence of the
Labs ( even if they are notoriously unreliable, as cost cutting has seriously cut into their quality of testing)
Do not let your health deteriorate any further, wasting your time and your life with this medical merry-go-round vicious never-ending circle.
I have posted details recently explaining why and how such a dysfunctional system has dominated the scene in regards to auto-immune and neuro-degenerative conditions. It is an eye opener for people who aren't familiar
with this information and would like to know what they really are up against!
The post was on Oct 25th, replying to the question "Fibromyalgia...is this the end?" Please take time to read this and other related posts, as in most cases, once you get to the bottom of this condition, having peeled all the layers, the remaining core is treatable successfully, provided the immune system is re-balanced and strong.
So please research-research-research. Seek the truth.
Myself and other members here, have gained valuable knowledge through our own experiences.
Feel free to ask any questions at any time.
You all deserve better health and better lives. And it is absolutely do-able!
Blessings
Niko
I have numbness all over. I am thinking its peripheral neuropathy. Google that and see if the symptoms are similar to what you are feeling.
Thanks for responding. I do have numbness and tingling in other parts of my body (hands, lips, legs, feet, back of head, nose, back and fingers). I've just never come across anything that includes numbness in the chin. Have you had any numbness in any of these areas?
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