Aa
Autoimmune
Could I still have Myasthenia Gravis even though the blood test was deemed a false positive? I have all the symptoms but the neurologist said it is Conversion Disorder
I feel so sorry for you, how everything developed so far.
But, I suspect you may find some answers, now that you posted
likely critical information.
Please go to a post in the Autoimmune Community from March 14
titled :" HLA-B27 positive male and shingles shot" and read the entire thread with all my replies.
I will also post at the A/I community
Hang in there and stay strong.
My thoughts are with you.
Niko
But, I suspect you may find some answers, now that you posted
likely critical information.
Please go to a post in the Autoimmune Community from March 14
titled :" HLA-B27 positive male and shingles shot" and read the entire thread with all my replies.
I will also post at the A/I community
Hang in there and stay strong.
My thoughts are with you.
Niko
Hi thanks for the reply. My sory went like this:-
Had the chicken pox Herpes Zostra virus that went undiagnosed and was treated for allergy even though I said I was sure it was chicken pox. I didn't take the antihistimine prescribed. A few days later I was waiting for bus when I lost power in right arm and felt nausea. Returned to my husbands work to get lift home but got worse. Lost power in right leg and got a facial droop. Rushed to hospital where they treated me for allergic reaction to Citrizine ( even though I hadn't had any !!). Had week in hospital and power in right side body returned although any type of exercise made it return. Started getting twitching in muscles. One doctor said it was epilepsy and said the crash team had been called to me when I collapsed in hospital foyer !!! That WASNT ME !! Had test for epilepsy - was negative -ofcourse!! They said they did test whilst i was having seizure ( another lie coz I was drinking tea in bed !!!) was discharged from hospital and told to go see psychologist. Incredible. I was perscribed Precylodine for the twitches- this made me worse.
Went back to GP coz I was worse with pains in my eyes and heavy muscles. He wouldn't do anything except pish psychology appt forward. So angry. Rang 111service when i could no longer move off sofa. They rang ambulance. Had more blood tests and MRI and CT scans. One MRI showed leision but was toled I moved in scanner !! Had spinal tap - all negative even though they agreed that this had started with possible Herpes Zostra. No inflamtion was found. Was given Acyclovir antiviral by IV for a week and ended up with yellow vomit and yellow diahorrea.
Discharged from hospital with diagnosis of Conversion Disorder. I was called back to hospital the next day to see opthamologist. Discovered unusual eye movements and double vision. I had complained abt this before but was ignored. Opthamologist did blood test for Acetycholine antibodies and said it wld be six weeks before I get results. I also get pain in my left eye. Saw neuro opthamologist who said it was Conversion aswell !!! She didn't even look in my eyes !!!! Went physiotherapy where they discovered I also have foot drop. Saw ENT doctor who said I should massage my face !!! I waited two hours for him to say that !!!! I asked him to refer me back to neurologist ( he wanted me to go back to GP ) he said blood test was positive. Opthamologist said it was normal. Neurologist said blood test false positive.
So here I am waiting six months later to see neurologist. Condition is now effecting both legs and vision is still bad.
Had the chicken pox Herpes Zostra virus that went undiagnosed and was treated for allergy even though I said I was sure it was chicken pox. I didn't take the antihistimine prescribed. A few days later I was waiting for bus when I lost power in right arm and felt nausea. Returned to my husbands work to get lift home but got worse. Lost power in right leg and got a facial droop. Rushed to hospital where they treated me for allergic reaction to Citrizine ( even though I hadn't had any !!). Had week in hospital and power in right side body returned although any type of exercise made it return. Started getting twitching in muscles. One doctor said it was epilepsy and said the crash team had been called to me when I collapsed in hospital foyer !!! That WASNT ME !! Had test for epilepsy - was negative -ofcourse!! They said they did test whilst i was having seizure ( another lie coz I was drinking tea in bed !!!) was discharged from hospital and told to go see psychologist. Incredible. I was perscribed Precylodine for the twitches- this made me worse.
Went back to GP coz I was worse with pains in my eyes and heavy muscles. He wouldn't do anything except pish psychology appt forward. So angry. Rang 111service when i could no longer move off sofa. They rang ambulance. Had more blood tests and MRI and CT scans. One MRI showed leision but was toled I moved in scanner !! Had spinal tap - all negative even though they agreed that this had started with possible Herpes Zostra. No inflamtion was found. Was given Acyclovir antiviral by IV for a week and ended up with yellow vomit and yellow diahorrea.
Discharged from hospital with diagnosis of Conversion Disorder. I was called back to hospital the next day to see opthamologist. Discovered unusual eye movements and double vision. I had complained abt this before but was ignored. Opthamologist did blood test for Acetycholine antibodies and said it wld be six weeks before I get results. I also get pain in my left eye. Saw neuro opthamologist who said it was Conversion aswell !!! She didn't even look in my eyes !!!! Went physiotherapy where they discovered I also have foot drop. Saw ENT doctor who said I should massage my face !!! I waited two hours for him to say that !!!! I asked him to refer me back to neurologist ( he wanted me to go back to GP ) he said blood test was positive. Opthamologist said it was normal. Neurologist said blood test false positive.
So here I am waiting six months later to see neurologist. Condition is now effecting both legs and vision is still bad.
Hi Peggymousa
Hmm, interesting case where your neurologist dismisses a neurological disorder (MG) and suggests you have a psychiatric disorder (Conversion Disorder, formerly known as hysteria).
I never liked this medical label, as the diagnosis of Conversion Disorder is very questionable.
Following are the acceptable diagnostic criteria:
a. Exclusion of neurological disease.
Really??? How about patients who have neurological disease AND Conversion disorder?
b. Exclusion of feigning (exaggeration and/or faking)
How does any doctor establish such a fact? MRIs, lie detector test? lol!
c. Psychological causative factors.
Come on, let's be serious. One soldier returns from the war in Afghanistan
without any psychological scars/trauma, after witnessing horrific events there, and yet a young girl deprived from having chocolate chip cookies, unless she would eat all her supper , suffers later in life from depression,
insecurity, eating disorders etc.
This is so difficult to verify and diagnose. And who says Neurologists are
also Psychologists or Psychiatrists.
As far as the MG blood testing is concerned, false positives are up to
10% in the (AChR) antibody (Ab) test and up to 50% in ocular MG, if this is the blood test you are referring to, so don't be surprised.
However, the neurologist should not rely only on just this, as MG is not an easy condition to diagnose.
My opinion is that your neurologist, most likely, does not know what exactly you suffer from.
Can you give more details, as with the limited information in your post,
I cannot offer you any further comments.
Best wishes
Niko
Hmm, interesting case where your neurologist dismisses a neurological disorder (MG) and suggests you have a psychiatric disorder (Conversion Disorder, formerly known as hysteria).
I never liked this medical label, as the diagnosis of Conversion Disorder is very questionable.
Following are the acceptable diagnostic criteria:
a. Exclusion of neurological disease.
Really??? How about patients who have neurological disease AND Conversion disorder?
b. Exclusion of feigning (exaggeration and/or faking)
How does any doctor establish such a fact? MRIs, lie detector test? lol!
c. Psychological causative factors.
Come on, let's be serious. One soldier returns from the war in Afghanistan
without any psychological scars/trauma, after witnessing horrific events there, and yet a young girl deprived from having chocolate chip cookies, unless she would eat all her supper , suffers later in life from depression,
insecurity, eating disorders etc.
This is so difficult to verify and diagnose. And who says Neurologists are
also Psychologists or Psychiatrists.
As far as the MG blood testing is concerned, false positives are up to
10% in the (AChR) antibody (Ab) test and up to 50% in ocular MG, if this is the blood test you are referring to, so don't be surprised.
However, the neurologist should not rely only on just this, as MG is not an easy condition to diagnose.
My opinion is that your neurologist, most likely, does not know what exactly you suffer from.
Can you give more details, as with the limited information in your post,
I cannot offer you any further comments.
Best wishes
Niko
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