CFS/FM?

[Mom2four85]

I'm on the quest to find out what's wrong with me, so I've been asking some dr's on MH and another site for any suggestions and most point to CFS/FM and MS.

I did this question checklist and want to know how reliable it may be in dx CFS/FM and should I take it to my dr?

CHRONIC FATIGUE SYNDROME/FIBROMYALGIA SYMPTOM CHECKLIST  http://www.anapsid.org/cnd/files/bernechecklist.pdf

I've heard of CFS but never really FM and am shocked to find I have ALOT of the symptoms.  This all started in Nov 1997 when I was almost 30, when I developed Group Beta Streptococcus which turned into blood sepsis.  I developed hypothyroidism in 1998, and was treated for a year but then my lvls were fine (or so I thought).  

I had an ablation done in August 2009 that my heart stopped 3 times during the procedure and I was dx malignant heart arrhythmia's/VT and have developed pretty severe symptoms since surgery.  Over the past 3 months, symptoms have gotten severely worse and I'm having more widespread deep aches & pain and sometimes I can barely sit, stand, walk or lay without severe pains along with a constant headache and nausea.

I'm not on any meds right now and just got new insurance; going to see a new pcp Jan 21st so any suggestions or help for that appt is much appreciated =)

[Mom2four85]

monsterjam2 thanks for the info, I'm sure once my dr does blood work I'll have some answers

acker; you described it right; it's hell no doubt...sounds like you know what I'm talking about, if so sorry you've had to go through this.

I've seen 4 cardiologists & 2 Ep's about my heart problems, but I'm switching with new insurance to a large hospital about an hour drive from me so maybe they can figure out what's going on.

I was dx and treated for hypothyroid in 1998 by my GYN but I thought he meant my "female" hormones were off and not my thyroid! lol [brain fog] I took synthroid for a year but moved so I quit seeing that dr and my new dr did bloodwork and never mentioned any problems.  I got all of my records as far back as I could and found my t4's had been high all this time.

I knew sleeping 2-3 hours a night or not sleeping at all and taking care of my Autistic son plus my 3 other children, trying to be "super mom", doing all the yard work, working for my husband's business and then doing a side business of my own would one day be bad for my health but I thought I would be 60 something not 42.  It's crazy what we do to our bodies and expect them to just handle it.  

I exercised 4-6 times a week and sometimes twice daily, so I think that helped prolong some of my symptoms and then when my heart became really damaged my health went down hill fast because I couldn't do anything exertional.

soon I hope to have answers or come back crying because of frustration with finding a good doctor

[acker]

sorry you're in hell.
i didnt see the checklist there, but another good checklist and site is
just please rest as much as possible and don't overdo things. i wonder if you are happy w your doctor(s); do you also need to consult heart specialist..?
there's a lot of overlap between thyroidism and fatigue symptoms - the thyroid can be tested and treated though - it's common for active healthy people to get fatigue/ fibro - because we have beat ourselves to crap in this way.
just take care and get help if you need to [cleaner, grocery delivery, childcare]. these are invisible illnesses and so are difficult to gauge and manage and get anyone to take them seriously...

[monsterjam2]

CFS & Fibro can often have similar symptoms as other diseases such as rheumatoid arthritis, lupus, ms, lyme disease and even hypothyroidism.  Your PCP will most likely run some blood work that will help to figure out what is going on. Your PCP may refer you to a rheumatologist or neurologist to help with the diagnosis.  Good luck!