CFS symptoms????

[dumbo76]

31yr old male
Over six months my symptoms as follows:
sharp cervical and spine pain
burning sensation in back muscles
sore joints
sinus infection
enlarged neck nodes
sore throat
itchy skin
sleep depravation (wake up feeling unrested)
thrush
headaches
alcohol enhances symptoms
Tests run:
lyme neg., mono neg.. ebv levels elevated, ana neg., hiv neg 2x 3mths6mths, thyroid normal,sed rate normal, slightly elevated calcium, c-protein normal, rheumatoid normal.GP checked four spots and said likely Fibro+. lympho 21%(1428)nuetro69%(4692).  ear nose and throat Doc felt I was either CFS or Chronic mono sufferer...
i tend to get a rush of energy or euphoria after excercise.
all symptoms seem to be worse at night and morning.
feel better also after meals.
anybody with these experiences or advice would be greatly appreciated!!

[PlateletGal]

This is the treatment that I'm doing >> link below << I thought I would give you this link because the treatment protocol I'm on is used to seeing patients who have elevated calcium levels and/or vitamin D levels (due to vitamin D dysregulation).

This is a research protocol, but any physician can prescribe it because the medications are not research medications. This is just one possible treatment for CFS. I had two physicians (Endo & Naturopath) recommend it for me at this stage. This treatment is out to cure CFS by killing the bacteria & successive infection that is causing the immune dysfunction. You may want to check out their success stories... they are amazing and also Amy Proal's website:  http://www.bacteriality.com



http://www.marshallprotocol.com/forum2/2588.html

[dumbo76]

thx guys, im gonna start focusing more on this new information u all have provided.  wed. i go in for some sort of bone scan on my spine to detect possible tumors or signs of infection. beyond that with my GP i think im gonna have to look for a specialist....

[whatayear]

I dont know if you take these but if not go to rockwellbutrition.com and get thier heacy duty probiotics!!!! this will help with the thrush and help your immune system. I had thrush and chronic bacteria vaginitis and was on antibiotics for over 37 days striaght and I med a woman who told me about probiotics and rockwell I know take them everyday. they also have a really good nutritionist who can go over some stuff with you regarding your symptoms I dont know about your other symptoms but def get some probiotics!

[PlateletGal]

I sometimes question these physicians who don't know much about CFIDS and wonder if they are the nutcases ? These physicians obviously aren't doing their job. The research is out there if they would sit down and take a few minutes to read it. For pete's sake... the CDC even came out and say, "hey guys... this is real". Fortunately, the CDC now is offering online self-study courses to healthcare professionals. But this really should have been done a long time ago. Dr. David Bell had tried to get the CDC to respond after people in his town in Lydonville, New York had a virus and some of those people never recovered. However, the CDC refused to investigate because all of Dr. Bell's patients had normal labs.

If you have CFS or fibro... you have to keep on top of the research and be pro-active. Thank goodness that the physicians who DO know about CFIDS often post their treatment protocols online and know how disabling this illness can be. Fortunately, there is new research being reported every week in different countries. I usually get most of my information from immunesupport.com and co-cure.org


dumbo ---- did you check out my site ?

[dumbo76]

u know its either-"its all in your head" or "the labs are negative" or "wait twelve months"
hopefully i can make up some ground with the help of you guys.  my latest GP was runnin out the door cause i was his last apt of the day.

[PlateletGal]

You bet ! If you can, let us know how it goes and how they are treating you. Unfortunately there are many physicians who still don't know how to treat CFS.

[dumbo76]

thanx for the links i'll def. check them out!!

[PlateletGal]

It sounds like you could have CFS, with some fibro symptoms as well. Unfortunately, many of these conditions overlap with other conditions.

Alcohol intolerance and gluten intolerance is also very common in CFS patients.

You may want to check out my website. It is a resource guide for those of us with CFS and/or fibromyalgia:

http://groups.msn.com/Neuro-ImmuneSupport/messages.msnw