Hi I have fibro and I am a part time hairdresser.I also have spinal stonosis in my 6 neck vertabre. Most mornings it's a roll out of bed.Back cramping and tight,feet feel like walking on bones,10lbs. sitting on my shoulder,Calves acheing,numbiness in multiple of areas.These are decent days,the ones that Get me are the ones I wake up with a fever or a cold rainy day.UGH
I am on disability for a several medical reasons. I do work 9 hrs. a week for 1/4 of the pay I was receiving before becoming disabled. There is no way that I could ever attempt to hold a full-time job again. I can no longer tolerate bright lights, stress/anxiety and I get sensory overload quickly when too many things are going on at one time. What I am able to do now doesn't require any more thought than giving change (which is shown on the cash register) and sometimes I mess that up, lol.
I have CFS, not Fibro, and have recently been laid off from work where I was teleworking. I'm trying to find another job in the Database Development field, but even though it's a job that lends itself well to teleworking, employers and agencies are clearly reluctant to even consider the possibility.
My concern is what happens when I get to the end of my Employment Insurance...disability is a pittance, and I may have difficulty convincing anybody that I require disability since I've been actively searching for work.