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Fibromyalgia + Rectum spasms & nerve pulsations
I'm 21 years old and have been diagnosed by Fibromyalgia 3 years ago. I took a mild anti-depressant treatment (Tryptizol) for one year and it improved my sleeping efficiency (but not the muscle spasms/ pain), later i took Lyrica for one month, but i got nerve pulsations and tremors all over my body as a side-effect so i quit.
My problem with Fibromyalgia is partially solved as i'm now having relaxation physiotherapy sessions on my trigger points (i think they're somehow effective, but on the long run). However, there's this problem that is affecting my whole life, that is- i get frequent rectum spasms and non-sensational pulsations that originate from the rectum and cause me tremors all over my limbs and back. I'm not sure if this has to do with Fibromyalgia or if it's a side-effect of medications and anti-depressant treatment.
I really need your help as it seems no doctor is aware of how this problem is affecting my life.. i have difficulty defecating, not constipation but because of this weird spasm at the rectum muscles. In addition, i've read about PGAD (Persistant Genital Arousal Disorder) and i think it is similar to these nerve pulsations that i get and it is often a consequence of anti-depressant treatment. I'm really worried lest it would affect my marriage life, therefore i'm postponing all my wedding plans with no definite reason because i don't know how my future life would be like.
I appreciate your help, thanks.
My problem with Fibromyalgia is partially solved as i'm now having relaxation physiotherapy sessions on my trigger points (i think they're somehow effective, but on the long run). However, there's this problem that is affecting my whole life, that is- i get frequent rectum spasms and non-sensational pulsations that originate from the rectum and cause me tremors all over my limbs and back. I'm not sure if this has to do with Fibromyalgia or if it's a side-effect of medications and anti-depressant treatment.
I really need your help as it seems no doctor is aware of how this problem is affecting my life.. i have difficulty defecating, not constipation but because of this weird spasm at the rectum muscles. In addition, i've read about PGAD (Persistant Genital Arousal Disorder) and i think it is similar to these nerve pulsations that i get and it is often a consequence of anti-depressant treatment. I'm really worried lest it would affect my marriage life, therefore i'm postponing all my wedding plans with no definite reason because i don't know how my future life would be like.
I appreciate your help, thanks.
I have the same problem with anal spasm that I was just diagnosed with - and a rectocele it is very painful because when I get constipated it pushes on all my abdominal adhesions from 5 surgeries that I have chronic pain from. but I also have this weird sensations at the clitoris, vagina, labia and the region around the vagina that you are calling Restless Genital Syndrome. I wonder if it is caused from the pressure of the rectocele as well ? They have also recommended the botox - did you have this done? Has anyone had this done - has it helped?
45 yr female I just started these symptoms my gyno is baffled using my tens unit helps some? he rx lortisone now i have blisters on my butt? no clue if its an allergy or if thats why i have this sensation.. any clue?
Restless Genital Syndrome is a medical disorder that has been reported only in women.These women report weird sensations at the clitoris, vagina, labia and the region around the vagina,
(such as on the pubic bone and the groins) and sometimes the anal region. These sensations have previously been called Persistent Sexual Arousal Syndrome
(PSAS) and Persistent Genital Arousal Disorder (PGAD).
The weird sensations consist of tingling, itching-like and wave-like sensations, small shocks or cramps in or around the clitoris and vagina.
Women usually experience a close to orgasm sensation as if they are on the verge on getting an orgasm. These feelings do not cease like in a
genuine orgasm but lead to an imperative urge to masturbate or to have intercourse in an attempt to get rid of these feelings. Miraculously,
while having these sensations, women do not long for or fantasize about sex.
Unfortunately, masturbation or intercourse do not lead to a diminishment of the genital sensations, but, usually, aggravate the sensations.
The sensations are usually present the whole day, aggravate with sitting down and are often accompanied by restless legs (restless legs syndrome; RLS)
and a frequent urge to void (overactive bladder syndrome; OAB).
Restless genital syndrome makes a woman often completely desperate. Most affected women do not talk about their complaints out of embarrassment.
Avoidance to talk with anybody else about the complaints usually leads to social isolation meaning the losing of friends, who usually do not understand
what is the matter.
Latest News and Articles on ReGS/PSAS/ PGAD by Prof. Marcel D. Waldinger
In 2009, Prof. Dr. Waldinger and his colleagues have published five important articles on Restless Genital Syndrome.
Prof. Waldinger has been the first to identify the real cause of ReGS and therefore also the real cause of PSAS or PGAD.
It is a small fiber sensory neuropathy (SFSN) of the dorsal nerve of the clitoris (DNC), a small nerve in the vicinity of the clitoris and vagina.
Prof. Waldinger has also been the first to show the efficacy of TENS treatment for ReGS, PSAS or PGAD.
IMPORTANT!! Some internet sites, particularly in the USA, state that PGAD is a newly described disorder that is not yet fully understood
or defined and is difficult to treat. This is unfortunate as it gives the impression that PGAD still is a rather mysterious disorder. But it is not.
These websites are not up-dated with recent research. The studies of Prof.
Waldinger have shown that ReGS, including PSAS or PGAD, is a well-described
neurological disorder that can be treated with TENS and or medication (daily clonazepam, or oxazepam, or on-demand tramadol; local injection with
bupivacaine 0.5% or bupivacaine 0.5% + 40 mg methylprednisolon).
Articles
1.Waldinger MD, van Gils AP, Ottervanger HP, Vandenbroucke WVA, Tavy DLJ. Persistent genital arousal disorder in 18 Dutch women:
Part 1. MRI, EEG and transvaginal ultrasonography investigations. J Sex Medicine 2009; 6: 474-81
2.Waldinger MD, Schweitzer DH. Persistent genital arousal disorder in 18 Dutch women: Part II. A syndrome clustered with restless legs and overactive bladder. J Sex Medicine 2009; 6: 482-97
3.Waldinger MD, Venema PL, van Gils APG, Schweitzer DH. New insights into Restless Genital Syndrome: static mechanical hyperesthesia and neuropathy of the Nervus Dorsalis Clitoridis. J Sex Medicine 2009; 6: 2778-87
4.Waldinger MD, de Lint GJ, Venema PL, van Gils APG, Schweitzer DH. Successful Transcutaneous Electrical Nerve Stimulation in two women with Restless Genital Syndrome: The role of A?- and C-nerve fibers. J Sex Medicine 2009; 6: e-pub
5.Waldinger MD, Venema PL, van Gils APG, Schutter EMJ, Schweitzer DH. Restless Genital Syndrome before and after clitoridectomy for spontaneous orgasms: A case report. J Sex Med 2009; 6: e-pub
Restless Genital Syndrome is a medical disorder that has been reported only in women.These women report weird sensations at the clitoris, vagina, labia and the region around the vagina,
(such as on the pubic bone and the groins) and sometimes the anal region. These sensations have previously been called Persistent Sexual Arousal Syndrome
(PSAS) and Persistent Genital Arousal Disorder (PGAD).
The weird sensations consist of tingling, itching-like and wave-like sensations, small shocks or cramps in or around the clitoris and vagina.
Women usually experience a close to orgasm sensation as if they are on the verge on getting an orgasm. These feelings do not cease like in a
genuine orgasm but lead to an imperative urge to masturbate or to have intercourse in an attempt to get rid of these feelings. Miraculously,
while having these sensations, women do not long for or fantasize about sex.
Unfortunately, masturbation or intercourse do not lead to a diminishment of the genital sensations, but, usually, aggravate the sensations.
The sensations are usually present the whole day, aggravate with sitting down and are often accompanied by restless legs (restless legs syndrome; RLS)
and a frequent urge to void (overactive bladder syndrome; OAB).
Restless genital syndrome makes a woman often completely desperate. Most affected women do not talk about their complaints out of embarrassment.
Avoidance to talk with anybody else about the complaints usually leads to social isolation meaning the losing of friends, who usually do not understand
what is the matter.
Latest News and Articles on ReGS/PSAS/ PGAD by Prof. Marcel D. Waldinger
In 2009, Prof. Dr. Waldinger and his colleagues have published five important articles on Restless Genital Syndrome.
Prof. Waldinger has been the first to identify the real cause of ReGS and therefore also the real cause of PSAS or PGAD.
It is a small fiber sensory neuropathy (SFSN) of the dorsal nerve of the clitoris (DNC), a small nerve in the vicinity of the clitoris and vagina.
Prof. Waldinger has also been the first to show the efficacy of TENS treatment for ReGS, PSAS or PGAD.
IMPORTANT!! Some internet sites, particularly in the USA, state that PGAD is a newly described disorder that is not yet fully understood
or defined and is difficult to treat. This is unfortunate as it gives the impression that PGAD still is a rather mysterious disorder. But it is not.
These websites are not up-dated with recent research. The studies of Prof.
Waldinger have shown that ReGS, including PSAS or PGAD, is a well-described
neurological disorder that can be treated with TENS and or medication (daily clonazepam, or oxazepam, or on-demand tramadol; local injection with
bupivacaine 0.5% or bupivacaine 0.5% + 40 mg methylprednisolon).
Articles
1.Waldinger MD, van Gils AP, Ottervanger HP, Vandenbroucke WVA, Tavy DLJ. Persistent genital arousal disorder in 18 Dutch women:
Part 1. MRI, EEG and transvaginal ultrasonography investigations. J Sex Medicine 2009; 6: 474-81
2.Waldinger MD, Schweitzer DH. Persistent genital arousal disorder in 18 Dutch women: Part II. A syndrome clustered with restless legs and overactive bladder. J Sex Medicine 2009; 6: 482-97
3.Waldinger MD, Venema PL, van Gils APG, Schweitzer DH. New insights into Restless Genital Syndrome: static mechanical hyperesthesia and neuropathy of the Nervus Dorsalis Clitoridis. J Sex Medicine 2009; 6: 2778-87
4.Waldinger MD, de Lint GJ, Venema PL, van Gils APG, Schweitzer DH. Successful Transcutaneous Electrical Nerve Stimulation in two women with Restless Genital Syndrome: The role of A?- and C-nerve fibers. J Sex Medicine 2009; 6: e-pub
5.Waldinger MD, Venema PL, van Gils APG, Schutter EMJ, Schweitzer DH. Restless Genital Syndrome before and after clitoridectomy for spontaneous orgasms: A case report. J Sex Med 2009; 6: e-pub
Hello everone.. thanks alot for sharing with me your personal experiences. I figured out what i has.. it is called 'obstructed defecation' where the anal muscles don't relax during defecation. I have had a BOTOX injection in my anal muscles (outer sphincter + puborectalis) for relxation accompanied by biofeedback sessions. Defecation process improved slightly throughout the past month (which gives me some hope that i'm on my way for being cured), however i still get the rectal spasms frequently esp. during sleep and when i wake up. I'll ask the doctor about this medicine Phtartist told me about (Hyoscyamine Sulfate) if it's suitable i'll take it right away to get rid of those bad spasms. If anyone knows any medecines that worked for rectal spasms without any side-effects, can you please tell me? and did it totally cure it?
1 Comments
hello, I hope you're doing great now. I just wanted to ask if it's better if I go off "tryptizol" since ive been experience lots of side effects even being on a very low dose for fibro.
I get this too and i get spasms inside my vagina too when i am aroused during sex making it hard to have intercourse i have wondered what this was for a while i guees its another thing to put down to fibro,have you talked it over with your dr?
Yeah - I used to get that along with my fissures. Now I've seemed to 'outgrow' the rectum pain (thank goodness) but the fissures still come and go. Ah well. I'll take what I can get ;).
Um. Not to be too graphic either, but women have a bit of a home advantage here...one thing that helped me (and according to my dr when I finally opened up and told him about it a lot of women use) is to use pressure in the vagina (with fingers or thumb) when having a bowel movement to assist. This seemed to help me because I too had problems with regular bowel movements in that they'd ball all up in the end and then it was really difficult. But now I can take care of it with ease using that technique rather than straining for ages and getting my rectal muscles all angry.
Um. Not to be too graphic either, but women have a bit of a home advantage here...one thing that helped me (and according to my dr when I finally opened up and told him about it a lot of women use) is to use pressure in the vagina (with fingers or thumb) when having a bowel movement to assist. This seemed to help me because I too had problems with regular bowel movements in that they'd ball all up in the end and then it was really difficult. But now I can take care of it with ease using that technique rather than straining for ages and getting my rectal muscles all angry.
I get this pain from time to time. I also get a similar kind of painful throbbing in the vulva. It took me a long time to find out what that was called: vulvadynia. And, when I was researching it online it took a long time to find that it, too, is associated with FM. Nearly all the sites talk about painful intercourse, as if that's the only reason a woman feels pain down there! For some of us that issue isn't even a part of the picture. I get this pain unexpectedly, and it doesn't seem to be associated with PMS or anything to do with my cycle at all. It just happens. I think the one thing that guarantees that it will happen to me is STRESS.
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