the mobility issues (and pain!) make a huge impact! i now make myself comfy with an assortment of wheeled implements just to maintain sanity and get errands done. yes it is a fine line between maintaining muscle condition and range of movement - and getting into so much pain you can't move anyway. my legs are general wasted away.
i keep my arms fit by using a skate scooter. i also have a little electric scooter. i depend on them now. thankfully i can drive, although not too far at all on most days.
i have some foam grips that i put on the shopping trolley handle, so i lean on the handle and use it as a wheely walking frame.
i also found breathing deeply helps.
sorry you're so young with it - so disappointing - take care!
Hey ktjoonbug and ticked.
The cause of most fibro type of pain is a combination of nerve and muscle
impairment and damage.
What comes first is like the chicken/egg question.
Staying active as much as possible, without punishing your body
keeps everything more fluid. Stretching, Yoga, walking , swimming etc
Look into malic acid supplementation as it is vital to correct any muscle toxicity from the effects of tartaric acid. This relates to fatigue greatly!
You should look it up. Tartaric acid needs yeast metabolites and indirectly sugar and carbs to grow, so an anti-fungal type of diet usually does wonders for FMS sufferers.
Proper breathing will also help, as improper breathing reduces oxygen levels in body cells and promotes chronic diseases. There are many studies that link chronic diseases to improper breathing!
Check this out at the normal breathing website.
There are a lot of things that can be done. Your body needs all the support
it needs, like ktjoonbug says about relapse and remission regarding impulses, it has to do to a great dergee with nerve regeneration and the variable supportive/destructive terrain and conditions. Controlling those conditions and improving the terrain makes a huge difference.
Medical science cannot address all this. YOU are the ultimate person
to make a significant difference in your health.
Being active, proactive and knowledgeable will give you the edge.
ticked, I was wondering how did your trip go in November? Did you have any success? I thought about you the other day, when a fellow member mentioned he found an LLMD in Pa-(he's from OH) who accepts new patients.
Take care.
Blessings to all.
Niko
This is what I have and I have had FMS for 15yrs and I really think my issues have to do with nerve impingement