I have had fibromyalgia for 12 years. In addition, I have many of its symptoms such as IBS, restless leg syndrome, depression, chronic pain, leg spasms, limb twitching and involuntary moment, flu like symptoms daily, osteoporosis, scoliosis, degenerative disc disease involving 6 bulging disc, bone spurs down my spine, and stenosis. It is very difficult but I guess it could always be worse. I had to stop working a year and a half ago. I also had to file disability (which I was rewarded at the level of expecting no possibility for change). I have gained 45 pounds and I am sure it is lack of movement, sluggish metabolism, and my medications. I am currently taking Effexor XR 150 mg day, Celexa 40 mg day, Seroquil 25 mg a day, Savella (new fibro med, just started week ago) and Lortab 10 mg as needed. Fibromyalgia has been a long journey for me. The only thing that keeps me going is knowing someone else always has things worse than me. I enjoy helping others and if sharing my story will help someone, then I am doing what God would want me to do. Thanks for reading and listening, don't mean to get on my soapbox.
Hi Anna,i can relate, i live in oz, i was diagnosed with Fibromyalgia about 20 yrs ago but it was quiet mild then as time as gone on it has worsened, i also suffer with GORD, IBS,Osteoarthritis,Osteoporosis in my neck n left shoulder and lower back,chronic pain and chronic fatigue, i am alergic to Rye,yeast,wheat, and Codiene ,so gluten free diet too.
I had a emergency appendix opp at 19,i had a cysts of my ovaries and womb sewn up and tubes flushed as the crappy doc who did the appendix opp stuffed up that operation 3 mths later, a few yrs down the track had gall bladder out,then after fighting with chronic pain and endometriosis had a partial hysto, then 6 mths later had 2nd part of hystorectomy due to tube and ovary detaching and getting catch in bowel,so have had my fair share of opps, had my left carpel tunnel done 2 yrs and now i need my right done, after sufering badly off and on for last 3yrs last 12mths the worst sum meds worked and others don't, my doc decided to send me to pain clinic. i know take a high dose 2x3xd of 1,000 mg fish oil, cymbolta 1xd,at night as its a half antidepressant and half nerve block helps,take a multivitamin of vit d,e magnesium and calcium,i take 1xd of naprosen for arthritis pain,1xd of somac for the gord and now on morphine 5mg slow release 7day patches which help greatly, also hypothyroidism i take T4 natural meds and recently from my homeopath a liquid drops of phosphrous and my pain limits have gone down,i still have the fatigue and have to nap in the arvo but its not as bad as it was, the humid heat knocks me around and makes me even more tired, but all in all i feel i am about 70% better on this new diet of meds and i at well ,lots friut n veg ,so hang in there and maybe you could try something different in meds , i tried Lyrica it made me ill. So chin up .Oh i have two children now adults . i am now 55. ( excuse my spelling )
Thanx for listening to my story. :) Sandi
Kiwi person here, lived 8yrs in OZ and now 40 in US. Diagnosed Fibro 12yrs ago, OMG! cringe at all your surgeries and suspect they have contributed to your Fibro. Also have gurd and take Nexium for that. Cymbalta works for me too.. 40mg per day taken in the morning. Remember OZ and the humidity and have found the dry climate in AZ a huge improvement. Interesting that you are into natural meds as well and I am also much better than I was 12yrs ago.
Have just joined this forum and want to pass on anything that has helped me. I'm 67 now..where did that go? You may be interested in checking out some of my posts for similarity. I'm always looking for new information. Think with trial and error over the years, some type of remission is possible. Best of luck to you. Cheers.