Fibromyalgia update

[Chreey]

well went back to the neuro today. And apparently even though i had spasms on my right side during baer test it was normal. I told dr i couldn't any more injections and that they werent helping. And that the savella wasn't helping either and he wants me to give it another 3wks and come back. i asked him for some more samples since it was going to cost me little over 100 dollars for the month so he gave me a months worths of samples. Im going to call and make a apt with a rheumatologist since i got my ssi denial and we will see where that goes. I guess it couldn't hurt anything.

[Family2011]

It seems as if you are active. He has days like that too. Let us know what he finds out. You are in my thoughts.

[Chreey]

That is the confusing part to me is the inactivity. Cause i clean everyday and i have 4kids. The two youngest is going to be 4 and is constantly into stuff and the baby is going to be two. So im constantly up and down and doing stuff. It does seem to be worse in the morning eases up a bit between 1-4 and then back in the evening. And as of late its mainly my legs and back. Some days i just can't move at all and to get up i have to have my husband put his fist in my back to put pressure so i can get up. Idk i go friday to get the xray and seen doc.

[Family2011]

I googled spondyloarthropathies and several websites came up. My brother and grandfather has Ankyolosing Spondolitis and inactivity makes it worse along with caffeine, nicotine, and INACTIVITY. Ankyolosing Spondolitis can be debilitating, but he is able to work fulltime. He takes shots once every two weeks and it has helped him a lot. There are several exercises that will help with this condition. It can be very painful. At one point he was unable to turn his neck or back at all, but now he is able. Some days are worse than others. It is genetic, and it usually passed along the male genes, but women can get it. He has been able to manage it very well, but his diet and exercise along with medication has been very helpful for him. It will be a life long battle, but as long as you follow the doctors advice, some normalcy will come back to your life. Good luck to you. If need more information please let me know.

[Chreey]

Hey all well im feeling much better as far as being sick goes doc just said i had a chronic sinus infection. And i found out what that word is that the doc is tested me for its called spondyloarthropathies anyone ever heard of it?

[Family2011]

You should go in for an x-ray if you suspect pneumonia. I have had a terrible cough that has been around since October. I think it is finally starting to go away. Antibiotics has given some relief. Decongestants is a waste of money. I heard on a t.v. program that they do not work, yet they make a ton of money every year. I was just wondering, because I was at a pain level of a 5 or so when getting my kids off the bus and when I came back in I was at about an 8. Australia would be a wonderful place to be. :)

[Chreey]

The cold is aweful it makes my bones hurt even worse. And i think i may now have phnemonia i do know that my ear is clogged and it really hurts and the netty pot isn't helping and neither is decongestants. i just hate infections apart from the pain from them i always seem to get back spasms with infections its really weird and painful.