How Many of you Have Checked Out Our Health Pages ?

[PlateletGal]

Have you checked out the Health Pages for the fibro / CFS forum ?

[VaBreeze]

Oh ok...thank you so very much for letting me know.  Now and then I come across some good information that I would love to share and don't want to step on anyones tootsies, lol.  

Take care and thanks again.

[PlateletGal]

Copyright laws apply to every website. Excerpts from articles, etc. are usually fine and I believe fall under the "fair use" law. Of course I don't work for MedHelp and am just a volunteer here, but MedHelp manager's are always reviewing health pages and/or other information and will delete anything (I will as well) that could be in violation of copyright laws.

http://www.copyright.gov/fls/fl102.html

Best,

PlateletGal

[VaBreeze]

Regarding making our own pages, i'm not sure about copyrights.  Some places say you can't reproduce their information, but i'm not sure if it would apply to posting it here as long as you included their copyright info.  Do you know anything that could help here?  

Thanks so much.

[PlateletGal]

P.S. ~ And I agree with you. The drug companies are making a fortune off of chronically ill patients. The treatment plans recommended by the top fibromyalgia experts don't even include drugs such as Lyrica, etc. There are some medications, of course, that can help manage symptoms... but supplements and other therapies are very, very important with this syndrome (or disease).

[PlateletGal]

The information was posted by myself. All members, of course, can edit and/or even create their own health pages. The treatments that I posted are recommended by the experts and I included treatment plans by physicians who have CFS and/or fibromyalgia.

Unfortunately, as you are already probably aware, there aren't really any western medicine treatments for CFS. There are antiviral drugs, such as valacyclovir and ampligen. I don't believe ampligen has been approved yet by the FDA and it is still considered a research medication. Both of these drugs help with the viral aspect of CFS, but they are also immunosuppressants and don't deal with the other aspects of CFS.

[ArmyPrincess819]

No but I will

[RobinHood70]

I found much of the CFS stuff contradictory, and most of the treatments recommended were naturopathic, often with many MANY supplements being recommended, which immediately makes me suspicious about who's releasing these recommendations...the supplement makers and their paid-off doctors, perhaps?

That said, some of the pages were also very educational and helpful, though it leaves me wondering why doctors just don't know about the various studies and treatments some of the pages reported on.  One would think that if the studies were that reliable and credible that doctors would have heralded their discovery.  So why aren't they?  Why aren't we trying valacyclovir on all CFS patients, for example?

[selmaS]

...and I have shared this info with other fibro family members.