I am a longtime fibro person. My doc in Seattle area kept telling me cold was really affecting me. i moved to south, and it does help tremendously. I could hear the panic in your words, and I've been there, over the edge. Life is not easy, no matter where you are with fibro, but it is so unbearable when you add cold. My husband had hot skin, and liked really cold air conditioning. Now I'm on my own. Life is hard, but I'm not cold, and it is better for fibro.
Last message to kimmie, addressed to wrong person
Hi, I know how you feel, I was diagnosed when I was 16 and I am now 54. I had severe pain across my chest and my shoulders and arms at 16 and a specialist told me that some drs believe that fibrositis (as it was called then) is real and others dont, and luckily he was a believer. But I cant remember what he did for me. I have had pain in different areas all these years and in the last 2 years it has spread allover but my legs are unbearable. I am lucky that my current Dr gives me oxycontin and endone (morphine). I take 40mg oxy morning and night and top it up with the endone, but i still get so much pain and i get very little sleep and migrains and bad tinnitis in my ears. I also take dothep, a low dose antidepresant that helps with the oxy. I dont know why drs dont believe his condition exists. Why would so many complete strangers have the same symptoms??? I am scared my dr will retire and i wont get my meds from anyone else. Then I will probably just shoot myself. Take care everyone.
OMG K immie and all of you. How sad we all feel the same way and have all had thoughts of suicide from this disease. They call it a syndrome but it has taken over our lives. I am 45 and live in he St. Louis area. No docs want to take new fibro patients and the rhuematologists don't even return phone calls when they hear you have fibro. My best bet for pain management has been my nuerologist but they are in trouble with the feds for giving to much pain meds. Something has got to be done. I hope Kimmie that by hearing others talk about their issues with fibro that you feel you are not alone. Do you see a chiro? I have a very good one and this helps alot but still have to take loads of pain meds, anti-inflams and take gabapentin for the fibro. I have alot of short term memory loss from the gabapentin but it's much better than the swelling I got from Lyrica. Good luck and tanks to everyone for sharing their feelings.
I have "self-diagnosed" w/ fibro. I also fear and loathe FKIA dr.s and their tx of humans. And I have no insurance. I have been self-medicating w/ OTC like tylenol etc. I also use trigger point massage, accupunture and accupressure to reduce pain symptoms. Meditating and self-hypnosis at night so I can sleep w/o overuse of my OTC drugs. but I'm afraid it is getting worse.
I am so sorry I have had problems too funny thing just getting anti inflammatorys that are right for me, they took me off an told me to take more vics lol now I signed a pain plan they wanna take low dose of those away, I heard sevella is good for fibromaybe try that? But you know your body: ( an how can a Dr know if we are not doing excise inside; ) bad I guess but they seem stuck an true a gentle workout is good so u don't get stiff, yet I don't blame u I hate being cold don't give up get a new Dr I am trying acupunctnture right now ,I miss me too I think all of us in crohnic pain do don't ever give up, just think we have changed but we will be stronger more compassionait more beautiful: ) it's just a big hurdle to jump