Aa
I have Fibro or MS
I was told by my GP after a huge amount of tests, MRI's, etc, that I have either fibro or MS. Feel free to look at my timeline to see my symptoms. I have a couple of questions
1-Does fibromyalgia come and go in flares? And when it leaves can it go away completely sometimes and other have residual symptoms?
2-Does fibromyalgia become dormant when you are pregnant (no symptoms)? Does it get worse after pregnancy?
3-Does it affect your vision? balance?
4-How likely are you to present with most of the symptoms of fibro or do many only present with a few?
Tahiri
1-Does fibromyalgia come and go in flares? And when it leaves can it go away completely sometimes and other have residual symptoms?
2-Does fibromyalgia become dormant when you are pregnant (no symptoms)? Does it get worse after pregnancy?
3-Does it affect your vision? balance?
4-How likely are you to present with most of the symptoms of fibro or do many only present with a few?
Tahiri
Have no fear, you are not alone. You have classic neurological symtoms of Fibromyalgia. Our illness is primarily neurological. It had been mistakenly publicised as an inflammatory muscle illness. There really is very little inflammation.
There is an amazing book that will comfort every FM sufferer. The Fibromyalgia Advocate written by Devin J Starlanyl, M.D. She has FM/CFS and has written this complete and comprehensive book for us to understand our illness.
There are sections for doctors, pharmacists, family members and the whole book is for us. Today I am taking the book with me to my Dr. I am suffering greatly with a combination of symtoms that have regrouped that we need to address. She is open to helping me and tweeking my meds accordingly.
You need a Dr. that will listen. Do yourself a bit of justice and release the Dr. you now go to. Contact your local hospital for support groups for Fibromyalgia and find Dr.s through those people. The hospital may have their own group. Pain management groups sometimes specialize in FM. Look up FM and see what you find. Beware of the witch doctors. There are those that wish to make a living off of our suffering. Do not go to anyone that is not recommended.
I see you are from AR. Arkansas or Arizona?
There is an amazing book that will comfort every FM sufferer. The Fibromyalgia Advocate written by Devin J Starlanyl, M.D. She has FM/CFS and has written this complete and comprehensive book for us to understand our illness.
There are sections for doctors, pharmacists, family members and the whole book is for us. Today I am taking the book with me to my Dr. I am suffering greatly with a combination of symtoms that have regrouped that we need to address. She is open to helping me and tweeking my meds accordingly.
You need a Dr. that will listen. Do yourself a bit of justice and release the Dr. you now go to. Contact your local hospital for support groups for Fibromyalgia and find Dr.s through those people. The hospital may have their own group. Pain management groups sometimes specialize in FM. Look up FM and see what you find. Beware of the witch doctors. There are those that wish to make a living off of our suffering. Do not go to anyone that is not recommended.
I see you are from AR. Arkansas or Arizona?
i thought i was the only one driven crazy with the rubbing thing!!!!! I feel so much better now. I have to blink constently to try to focus. I had no idea it was fibro related! I was beginning to think my doctor was right. Everything I have complained about he was so terribly abusivly rude and said it was all in my head. Do any of you have numbness? My left hand has been numb for 4 months. The center of my right foot and an area above my right ankle have been numb awhile also. Today and the other day for awhile my left cheek and a small area of my throat went numb for a short time. I also started having a locust sound in my head about 4 months ago. I'll tell you, on top of the pain and severe tired feeling, sometimes it's more than I can take. Any help at all would be appreciated.
I presented with a flu like illness which didn't go away. It was EBV, Mono which it is commonly called. Epstein Barr Virus lasted in my system for years. So did Chronic Fatigue Syndrome. This went away when I presented with the Igg Igm antibodies when my Dr. did the repeated, every 3 mos. blood test for that illness.
I had a remission which lasted for two years, then I had surgery. I now have a relapse for three.
My symptoms circulated from head neck arms hips legs. Now they are mostly in my neck and head.
Stress puts me under. Too much sugar puts me under. Overdoing it physically puts me under.
So Holidays at my Mom's, eating a nepolian, or hiking my favorite mt. trail are things I no longer indulge in.
My vision changes greatly with the state of my neck and head. When I am in a myofacial flare-up, my eyes are blurry. Yes, my eyes don't follow each other when I have a bad headache.
Our Sensory input is compromise with FM. We have a neuromuscular illness which effects the nerves. When I am in a hightened neurological state, florescent lights, high pitch sounds, my husbands sneeze (the suddeness of it) loud hitting sounds near me etc. freak me out. I short curcuit. I hate it, I feel like a freak.
I cannot stand continual rubbing on the same spot when I'm highly sensitized. ?? Don't ask me, I have to guess its nerve endings. It makes me want to scream.
I don't, I remain composed but discontinue the intrusive whatever !!
Chiropractors can help with the vision by relieving the pressure on the nerves that go to the eye area,,,,,sometimes. Think before you start treatment. Twice I was bed ridden because an area flared up from a trigger point being, aggrevated/
Have you heard of Fibro Fog? Your not losing your mind.
I had a remission which lasted for two years, then I had surgery. I now have a relapse for three.
My symptoms circulated from head neck arms hips legs. Now they are mostly in my neck and head.
Stress puts me under. Too much sugar puts me under. Overdoing it physically puts me under.
So Holidays at my Mom's, eating a nepolian, or hiking my favorite mt. trail are things I no longer indulge in.
My vision changes greatly with the state of my neck and head. When I am in a myofacial flare-up, my eyes are blurry. Yes, my eyes don't follow each other when I have a bad headache.
Our Sensory input is compromise with FM. We have a neuromuscular illness which effects the nerves. When I am in a hightened neurological state, florescent lights, high pitch sounds, my husbands sneeze (the suddeness of it) loud hitting sounds near me etc. freak me out. I short curcuit. I hate it, I feel like a freak.
I cannot stand continual rubbing on the same spot when I'm highly sensitized. ?? Don't ask me, I have to guess its nerve endings. It makes me want to scream.
I don't, I remain composed but discontinue the intrusive whatever !!
Chiropractors can help with the vision by relieving the pressure on the nerves that go to the eye area,,,,,sometimes. Think before you start treatment. Twice I was bed ridden because an area flared up from a trigger point being, aggrevated/
Have you heard of Fibro Fog? Your not losing your mind.
I have fibromyalgia and based on my own experience I can tell you this much.
A. Fibromyalgia does have periods of flares and remissions. Each flare may be different, perhaps with a different part of the body being affected or with a different level of pain. Some flares are short term while others may last a long time. There seems to always be a residual pain and soreness and an overall achiness even during times of remission that are often influenced by changes in weather or temperature.
B. I do not know how fibromyalgia affects you during pregnancy.
C. Vision changes are pretty much the norm for me with my fibro. On each of the last 2 eye exams my prescription has changed. Most noted was the inability to focus when reading and bluriness. Dizziness and balance problems occur from time to time. If I turn my head too fast it's like it takes a couple of seconds for everything to come back into focus. Bright lights leave me with an inability to see well for a short while. It's almost like a dark halo effect.
D. Progression has been continual but gradual. It started in my left hip and leg and now has progressed to include the myofascial symptoms as well as other areas. Even now the intensity of pain varies from day to day as does the location (s) of pain.
E. I am overweight and much of the weight gain is directly related to lessened physical ability because of the pain. While much of the pain is muscular and fibro related, the arthritis in my spine and kness have also contributed to the problem. And yes my weight has hurt me a lot. I am currently in the process of getting ready for bariatric surgery so as to get the weight off my joints and lessen the strain on my body. If at all possible stay active and eat healthy. Even if it's only walking leisurely for 15 to 20 minutes a day- move. I will update the site and let everyone know in a years time if things go alright with the surgery how much impact this has upon the muscular aspects of fibromyalgia.
F. There are many theories as to the actual cause of fibromyalgia. There has been a lot of talk about the neurotransmitters in the brain malfunctioning in such a way so as to amplify pain. Given that theory a person has to wonder if an injury or surgery can actually trigger that first painful flare. But then again anything that could affect the neurotransmitters in the brain such as low serotonin levels might trigger it. 3 years later and all my blood work is normal, so I can't really say that fibro accompanies any other form of illness or disease.
Good luck and I wish you well.
A. Fibromyalgia does have periods of flares and remissions. Each flare may be different, perhaps with a different part of the body being affected or with a different level of pain. Some flares are short term while others may last a long time. There seems to always be a residual pain and soreness and an overall achiness even during times of remission that are often influenced by changes in weather or temperature.
B. I do not know how fibromyalgia affects you during pregnancy.
C. Vision changes are pretty much the norm for me with my fibro. On each of the last 2 eye exams my prescription has changed. Most noted was the inability to focus when reading and bluriness. Dizziness and balance problems occur from time to time. If I turn my head too fast it's like it takes a couple of seconds for everything to come back into focus. Bright lights leave me with an inability to see well for a short while. It's almost like a dark halo effect.
D. Progression has been continual but gradual. It started in my left hip and leg and now has progressed to include the myofascial symptoms as well as other areas. Even now the intensity of pain varies from day to day as does the location (s) of pain.
E. I am overweight and much of the weight gain is directly related to lessened physical ability because of the pain. While much of the pain is muscular and fibro related, the arthritis in my spine and kness have also contributed to the problem. And yes my weight has hurt me a lot. I am currently in the process of getting ready for bariatric surgery so as to get the weight off my joints and lessen the strain on my body. If at all possible stay active and eat healthy. Even if it's only walking leisurely for 15 to 20 minutes a day- move. I will update the site and let everyone know in a years time if things go alright with the surgery how much impact this has upon the muscular aspects of fibromyalgia.
F. There are many theories as to the actual cause of fibromyalgia. There has been a lot of talk about the neurotransmitters in the brain malfunctioning in such a way so as to amplify pain. Given that theory a person has to wonder if an injury or surgery can actually trigger that first painful flare. But then again anything that could affect the neurotransmitters in the brain such as low serotonin levels might trigger it. 3 years later and all my blood work is normal, so I can't really say that fibro accompanies any other form of illness or disease.
Good luck and I wish you well.
I have fibromyalgia and CFS. Based on my experiences and what I have learned from research:
1. Fibromyalgia can come in flares. Some days I feel ok, other days I feel like I've been ran over by a mack truck.
2. I don't know about pregnancy and fibro but I imagine it can come in flares during pregnancy just like not being pregnant.
3. I have blurry vision and eye pain. Bright lights are horrible for me. I also have balance problems.
4. My symptoms started out small and progressively got worse.
5. Fibro can be worse if you are out of shape. If you are overweight, it leads to sleep problems, excessive weight on your muslces and bones, and other issues.
6. I have CFS with fibro so I can't answer this question for every person, but for me they were diagnosed together.
Hope this helps.
1. Fibromyalgia can come in flares. Some days I feel ok, other days I feel like I've been ran over by a mack truck.
2. I don't know about pregnancy and fibro but I imagine it can come in flares during pregnancy just like not being pregnant.
3. I have blurry vision and eye pain. Bright lights are horrible for me. I also have balance problems.
4. My symptoms started out small and progressively got worse.
5. Fibro can be worse if you are out of shape. If you are overweight, it leads to sleep problems, excessive weight on your muslces and bones, and other issues.
6. I have CFS with fibro so I can't answer this question for every person, but for me they were diagnosed together.
Hope this helps.
Yes symptoms can get worse. I started out in Oct. 07 with a mild flare & as the months past it got worse & worse, to the point where I could hardly walk. The doc put me off of work & the flare has gotten milder. So yes it can progressively get worse. The doc figures mine got worse because:
1) I had to travel 1 1/2 hours to work & then another 1 1/2 hours home after a long 9 hours of working.
2) I had to sit all day & type or add loads of numbers with the calculator which made the pain in my back get chronic & also in my hands that I could hardly even hold a pen.
Neither one of those places hurt when my flare first started in Oct. 07 but my flare is still bad enough that I have to take morphine for the pain.
1) I had to travel 1 1/2 hours to work & then another 1 1/2 hours home after a long 9 hours of working.
2) I had to sit all day & type or add loads of numbers with the calculator which made the pain in my back get chronic & also in my hands that I could hardly even hold a pen.
Neither one of those places hurt when my flare first started in Oct. 07 but my flare is still bad enough that I have to take morphine for the pain.
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