I need some help and supprt

[HutrnAZ]

For the last couple of years, 2+, I have been dealing with severe pain in just about every joint you can think of.  I have been tested for everything as well, and they all come back negative.  Gout, Ruem, Diabeties, and a whole host of others.  It is getting worse every day.  Today, I woke up and my right wrist and fingers were stiff and sore.  Until 3 PM (AZ Time) I was doing well.  It is now 7:30 PM and I can't move.  It is in both wrist, very painful to be doing what I am doing; typing, 7 of my 10 fingers, both shoulders, both knees, right worse then left, and my right ankle and toes.  Every doctor I go to thinks I am nuts.  I recently moved to AZ from CO in hopes the weather would help, NOT!!!  At times the pain is so SEVERE I want to end it.  I am being treated as a Fibro patient, taking Prozac, it has helped with the depression, but not the swelling or pain.  The latest testing shows I have some Viral infection, something to do with the strain that gives you Mono, but the doctors can't agree on wether this is the cause of my symptoms.  My wife is done hearing about it, she don't understand how much pain I am in and STUPID the doctors make you feel when you see them.

Can anyone HELP ME?????  Anyone have the same problem????

Thanks for listening.

HurtnAZ

[carrie692]

I understand how you feel.I hurt all the time.There has been times where I was not abble to drive my kids to school cause my  wrist were so stiff and swollen ,That I could not turn the sterring wheel.Fibromyalgia is a pain that only you can truly understand.Even the doctors dont truly understand fibromyalgia yet.My family doctor looked at me and told me he was sending me to see a Rheumatologist because he had know idea what was wrong with me.My family doctor before hand had thought I had lymphoma.I had swollen lumps or you could say lymps in areas of concern.My biopsy came back okay.But it left my doctor in confushion.I hope the best for you and hope you finde the right doctor.

[Sally555]

Try ultrasound.  You can get a unit off the net for $200.  It has an 85% success rate.  Maybe your wife will perform the treatments.  You can also try ESWT, but it's ruinously expensive.  If you're on NSAIDs, stop taking them.  They weaken tendon-to-bone healing according to the American Journal of Sports Medicine.  Fish oil and MSM are much safer and more effective.  Good luck!

[Shanannagins]

Try not to let it get to you.  I have a lot of the same symptoms...and I'm in AZ too!  What I thought and kept discribing to my doc as "joint pain" is actually not in my joint but surrounding my joints.  It's in the soft tissue.  My muscles everywhere get stiff and sore to the touch and sometimes it just hurts to put on clothes.  I feel your pain as most people on this site probably do.  You are not alone!  Have you seen a rheumatoligist or neurologist?  Most people say that's where you will get diagnosed and treated.  With fibro a blood test can only eliminate other disease...it can't diagnose fibro.  There is a trigger point test that can be done after they have eliminated the other possibilities to determine if you have fibro.  JUust google trigger point test for fibro and you'll find the info then bring it to your NEW doc as it seems your old doc is an idiot!!!  LOL.
Also people with fibro all seem to be different as to what helps their pain.  I take opiates some take lyrica or cymbalta. Some do a treatment that kills the mycoplasmas in their system.  The major thing you can do is research for yourself then bring it to your doc.  They don't know everything and you may find something that helps them treat and diagnose you.
Also as far as your wife, google "a letter to normies"  this is a letter someone wrote to help explain their condition to their family.  I think someone may have posted it in this forum also.  When you don't look as bad as you feel it's hard for someone to understand that you're sick.  Maybe she just needs to get that you may look ok but you feel awful and what you were able to do one day, you may not be able to do the next.  She married you for better or worse and she needs to keep up her end of the bargin...right?
Anyways, best of luck, stay strong, and I hope you find an answer soon!

[melo1224]

I'm so sorry to hear that you're going through all of this. All I can say is that you're not alone. Soo many of us have horror stories when it comes to our doctors. It just takes time to find the right practice who understands your needs and is willing to help. I have Fibro and I have many different types of pain. It ranges from dull aches that "wax and wane" to sharp pains to shoot through out my body. I hurt in all the areas that you mentioned and I know it's not any fun. Dealing with our loved ones is also a tricky area, it's hard for them to understand. I have a great husband but he can be cold at times, and when I get upset he is usually completely unaware.

Please continue to search for answers. I'm assuming you've seen a Rheumatologist? Have you asked them directly if they think you're pain could be Fibro?

I'm sure you'll hear from others on this forum who will have great advice.Continue to come back and post so we can support you in this journey. Try to be assured that you're not alone and we understand your frustration.