I think I have Fibro, but docs do not agree.

[SassyLassie]

Hello~I am new here and I have a question.
I swear I have fibro, but, I can not get any doctor to agree. I am at my wits end. I hurt constantly, and when I looked up symptoms of fibro, I hurt in 9 of the 11 points. I have been diagnosed with costochondritits, herniated disc's, thoracic outlet syndrome and of course stress and anxiety. However, what leads me to believe I am in the beginning stages of fibro is my pain is all of  a sudden getting worse at an alarming rate and treatments that helped before are not doing a thing for me now. I have tried acupuncture, chiro treatments, massage, natural supplements, you name it, nothing gives me relief, oh maybe for an hour or so, but then, it is right back. Sitting in a hot bath tub helps the most as does a heating pad.

Anyway, have any of you felt positive you have this, but the docs just won't listen or agree. I am in tears and it takes alot for me to cry with pain, my doc says I have a bizarre high pain tolerance.

God bless you for any answers you may have.

[VaBreeze]

Hummmmmm???  I don't know what happened there, lol.  I'll try sending you one and see what happens.

Thank you for your kind words...we do enjoy everyone here and it is a friendly place to be.

Yes, continue to move forward even though it's tough sometimes.  There will be someone who will help you and you can always come here for a shoulder....anytime :-)

[SassyLassie]

Thanks for the little note you sent. I tried to send one back, but it said you were not accepting notes now. Anyway, this is sure a friendly group. I am a member of several on MH, and none have welcomed me, this is truly a lovely group.

I am hurting big time right now, but, this is how my pain goes, it is mainly lots of upper back spasms and rib pain, and when it gets going, WOW.

I am not giving up though, I am forging ahead, I am sure there is some doctor out there who will listen and care.

[VaBreeze]

I had my first bout with FMS when I was a teenager.  Back then they called it fibrocitis and I had no idea what it was, just that my skin hurt.  I also had the costochondritis.  I wasn't officially dx'd until a few years ago.  Up until that point I never heard the word Fibromyalgia.

What you are saying about your docs. is something I think we have all heard at one time or another.  The pain is very real and it is in our heads in the sense that it involved the central nervous system.  We do understand how discouraging it can be to feel that you aren't listened to or to be brushed aside.

I hope you can find someone soon who will be able to help you feel better.  Take care and stay safe.

[SassyLassie]

Well, I just went to the list, I have found two that I will look in to. One is in Yakima, I used to live there, it is 65 miles East from me, not bad, I guess. The other is in Kent, outside of Seattle. This is about 70 West of me. His name is Dr Jonathan Wright and also Dr Lamson. I am very familiar with both and the clinic as well.

Now, maybe I can get some relief I am so tired of hurting, like right now, I am hurting big time, I would love to scream. This is getting so old.

Thanks again for the link.

[SassyLassie]

Unfortunately, they are not doing a dog-gone thing, this is the reason I am so ticked off. I mean, I do not know how many hundreds of dollars I have spent for tests and such, and what they are basically, non-verbally telling me, is, it is in my head, now, this one doc ignores me, so, I am not longer a patients of hers. It gets very discouraging.

I have discovered a new doctor close to home, he is a osteopath, I am to see him in May, MAYBE he can help.

Thanks for th link, I will check it out.

[PlateletGal]

If your physicians do not agree with a fibromyalgia diagnosis, then what are they doing for you ?

One consideration is googing, "Co Cure's Good Doctor List". You should find a physician in your area who regularly diagnoses and treats fibromyaliga.

Good luck !!!