Aa
Lyrica
Wondered if anyone has tried this....
Lyrica , the New Fibromyalgia Medication Approved by the FDA
Lyrica , the New Fibromyalgia Medication Approved by the FDA
Hi i was diagnose with fibromyalgia and lupus about 2 years ago I've been using lyrica for a little over two year I'm on 600mg a day I also take meds for anxiety depression swelling I'm to the point where it does not help with pain any more but scared to go higher cause I can't function when it was helping I go back to my doctor soon I see what's going to happen when I go
I have been taking lyrica, 100 mg. 1 am 1pm. am thinking of taking 1-200mg at bedtime. any thoughts? jack
I can only hope that there are numerous class action lawsuits against this drug/drug company for this vile and utterly horrible drug. I took it from November 2011 to the first week of January 2012 for a shoulder injury...barely two months...jump ahead til October 4th 2012 and I am only NOW starting to feel normal again. I gained over 30 pounds in two months, my legs and feet swelled horribly (and I have never had a problem with swelling EVER and I am 39 years old), I itched so insanely in random spots at random times that I thought I was going to lose my mind. But this is the kicker...even months after coming off of it, I am still suffering from the swelling in my legs and feet, insane, sporadic itching episodes...this crap gets in your system and it STAYS in your system. No doctor will tell you that, and the drug company would NEVER admit to it, but I am telling you that only being on it for two months has kept that mess in my system for over 9 months after the fact. I was happy, healthy, NO health issues, NO swelling issues, NO weight issues, and now I'm dealing with high blood pressure (that I have NEVER had before), and doing my best to get my life back after this wretched drug. I would beg anyone who was even remotely thinking about taking it to NOT EVER allow this drug to be in your home and certainly not in your body.
Side note: The doctor did not tell me to taper ON to it so I ended up in the hospital, after taking 150mg orally the first time, suffereing from an anaphalactic reaction so severe that my throat closed up, my tongue swelled up, I couldn't breathe, and thank God I only live about three minutes from the nearest hospital or I honestly think I would have died. The doctors were not concerned when told about this (the ortho who prescribed it) and said to cut back to 75mg and then increase to 150mg. The doctors will not acknowledge that there are effects from this drug MONTHS after you come off of it, not days or weeks, MONTHS...I am living this nightmare so please believe me. I have heard of some folks taking it and doing ok, but more often than not these forums are filling up with posts and comments about the horrible experiences people are having with this atrocious drug. I pray that it will be yanked off the market and no one else will ever have to suffer the side effects and bodily changes that take place from taking this drug. Because trust me, you might gain 30+ pounds in two months but you WON'T lose it in 2 months...it's like my body has shut down and will not respond to any efforts of exercise or diet to lose weight (and I use to work in the weight loss industry in upper management, I know a thing or two about that topic). Just do yourself a favor and DO NOT EVER go on this drug.
Side note: The doctor did not tell me to taper ON to it so I ended up in the hospital, after taking 150mg orally the first time, suffereing from an anaphalactic reaction so severe that my throat closed up, my tongue swelled up, I couldn't breathe, and thank God I only live about three minutes from the nearest hospital or I honestly think I would have died. The doctors were not concerned when told about this (the ortho who prescribed it) and said to cut back to 75mg and then increase to 150mg. The doctors will not acknowledge that there are effects from this drug MONTHS after you come off of it, not days or weeks, MONTHS...I am living this nightmare so please believe me. I have heard of some folks taking it and doing ok, but more often than not these forums are filling up with posts and comments about the horrible experiences people are having with this atrocious drug. I pray that it will be yanked off the market and no one else will ever have to suffer the side effects and bodily changes that take place from taking this drug. Because trust me, you might gain 30+ pounds in two months but you WON'T lose it in 2 months...it's like my body has shut down and will not respond to any efforts of exercise or diet to lose weight (and I use to work in the weight loss industry in upper management, I know a thing or two about that topic). Just do yourself a favor and DO NOT EVER go on this drug.
How long have you been on the Lyrica? It took more than a month to get rid of the sx of it. It sure is a godsend as far as pain relief. I lost 30 lbs being in so much pain this year. I am hoping I dont' gain it back! My appetite does seem much better now. I suppose cutting out fat in your diet could help with weight. I still can't eat breakfast and drink Ensure. I seem to have breakthrough pain and take fiornal codiene for migraines and pain. They seem to help. The dr. just gave me Wellbutrin to help with sleepiness and pain. I haven't tried it yet. My husband and I are just getting over 2 different flu's in the past three weeks. He gets and got bronchitis. He is miserable. Seems if you are aching all over it could either be a flare or the flu. Good luck with the weight. I am just happy to be out of pain!
I am new to this site, find it very refreshing. I just read the comments on lyrica and its side effects of sleepiness. I am on 300mg per day and other meds. I too felt sort of drunk in the a.m. walking funny, BUT I felt soo much better painwise. And I also felt sleepy at nite for the first time in 10 years. I have come to appreciate the difference between feeling exhausted and sleep-deprived and feeling sleepy. I have even been able to drink regular coffee again, another thing I have not done in 10 years, to fight the sleepiness. I make sure not to consume any caffiene after 6:30 p.m. It seems to be working. My only concern is the sleepiness. I typically have a few good days and then a day where I want to sleep all afternoon and have more pain. I do not know if it is bronchitis, which I am prone to in the winter, or a flare. ALSO, I want to lose the weight I have gained since I have been on various meds the past 10 years. Any suggestions?
Yes, restoritive sleep is important and many of us with fibro don't get enough! I started Lyrica a few months ago and was sleepy as hell. I started with 50mg a week for 3 weeks and am up to 150 now. The awful pain is gone, if I forget to take them it comes back. I felt like a zombie for several weeks on Lyrica and wanted to stop, but didn't cuz' I couldn't handle the pain. I walked funny, had brain fog, tired all the time, but low and behold after a couple months I am feeling human again. My dr. wants me to up the dose, but since it is working why do so? He says I will sleepy again with each time I up the dose....no thanks! I am feeling little pain and can function again. Dr. says the sides will eventually go away, so I would go for it!
I am a 31 year old person with fibro - norway
I used to have to take sleeping pills to be able to sleep, every day for several years. I was exhausted but I wasn't tired ("sleep tired"), ever, and the general and specific pain/s just got increasingly bad after I went to bed. So when i did sleep, with pills (tried several different brands), or (in earlier years) after smoking pot in order to sleep, i had horrible nightmares 9 out of 10 nights. it was hell. And i never woke up feeling rested and awake.
After taking Lyrica (450mg a day) I actually feel tired at night, which is wonderful, and I fall asleep (without other pills) fast enough (10-15min) for the aching pain not to have time to increase too much. And, hurray, the nightmares are virtually gone! I may have mild ones 2 out of 10 nights. And after about 9 hours I wake up more rested than i can remember since before I got sick 8 years ago. It's beautiful.
I feel like the aching "muscle weakness" and pain itself hasn't gotten any better, but the fact that I have so much better and more restorative sleep gives me much more energy to handle the constant pain. The result is that I do more, and handle more. And I'm happy to see and feel that change. It makes me think that the sleep I had before hardly included any restorative sleep at all. No wonder my specific "pain signals" went in neuro-loops of many days, and always overlapped each other. Now the bouts are shorter, even after efforts (like cleaning) that involve really frustrating levels of pain, but that I insist on doing anyways because otherwise I would go mad.
life is now so much more bearable :)
So much for sleepiness as a negative sideeffect for me... sleep is important, people! :)
I used to have to take sleeping pills to be able to sleep, every day for several years. I was exhausted but I wasn't tired ("sleep tired"), ever, and the general and specific pain/s just got increasingly bad after I went to bed. So when i did sleep, with pills (tried several different brands), or (in earlier years) after smoking pot in order to sleep, i had horrible nightmares 9 out of 10 nights. it was hell. And i never woke up feeling rested and awake.
After taking Lyrica (450mg a day) I actually feel tired at night, which is wonderful, and I fall asleep (without other pills) fast enough (10-15min) for the aching pain not to have time to increase too much. And, hurray, the nightmares are virtually gone! I may have mild ones 2 out of 10 nights. And after about 9 hours I wake up more rested than i can remember since before I got sick 8 years ago. It's beautiful.
I feel like the aching "muscle weakness" and pain itself hasn't gotten any better, but the fact that I have so much better and more restorative sleep gives me much more energy to handle the constant pain. The result is that I do more, and handle more. And I'm happy to see and feel that change. It makes me think that the sleep I had before hardly included any restorative sleep at all. No wonder my specific "pain signals" went in neuro-loops of many days, and always overlapped each other. Now the bouts are shorter, even after efforts (like cleaning) that involve really frustrating levels of pain, but that I insist on doing anyways because otherwise I would go mad.
life is now so much more bearable :)
So much for sleepiness as a negative sideeffect for me... sleep is important, people! :)
I was on Lyrica and Ultram. I had tried Ultram yrs ago with out any real improvement. My doctor suggested Lyrica and Ultram. They worked well...I walked around feeling erie because the pain was soooooo much better. But, I also felt a bid spacy . I thought this would go away as my body got used to it. It was just too much for me to deal with while working full time as a nurse. I think I should have cut the dose back but instead I quit. It was great for the pain though!!
Feel Good,
Whitefeather
Feel Good,
Whitefeather
I have been on Lyrica 50mg x3 daily and swell up like a toad. My legs and ankles are so swollen right now I'll bet I can't get my jeans off tonight. My fingers look like little sausages and hurt like the devil. I have a feeling that my rheumy will take me off and leave me on the Tramadol. Problem is, which one is making me swell? The pain has really subsided in my back and chest but it depends on the day for the knees and the elbows. Everyone is different, but this has been my experience on the Lyrica.
I was on 75 mg 2 x a day for fibro and my dosage was increased to 150 mg 2 x a day. The 75 mg did nothing (except I seem to be gaining weight). Today was my first day on the 150, and I felt really, really weird--like I was drunk. But it did seem to help the pain.
I guess we aer all different in the way meds affect usbecause the Lyrica makes me so sleepy, but then I want to fight the sleep .It is totally weird. I think she has me on too much, started out on 150mgs per day.I'm going to the dr. on the 9th and see if he will reduce it also it makes my body swell up, feet,legs,face, might as well say all over and I do find that I have more of an appetite.And all this in just oneweek
I am really glad that Lyrica worked for you. Keep us all posted on how it keeps working. Good Luck!
Had dr appt yesterday. He gave me samples of Lyrica to try. I have taken 4 now, and I am afraid to say I feel better! I actually woke up this am feeling good!Maybe it's psychological, but if it works I don't care! I have hurt so bad last week, and so tired I felt like I was wading thru mud, anthing that helps is a God send. This fibro is so awful, I feel like giving up. This forum is such a blessing, it makes me realize I', not alone in the world.
I have been on lyrica for over a year.. it's never made me sleepy... only helped. I have to watch the doseage because it tends to raise my blood sugar. Lyrica really helped me, too. Good Luck!
Did you have a lot of problems with it making you sleepy? I drive 8 hours a day for a living, and have been reluctant to try it. But the last NCS I had done had 16 of the 18 pressure points flared, so need something!
Hi I have been on this drug since April 2005. I have had fibromyalgia since 1998 and tried every drug going - this is the only one that has helped me.
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