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SAMe

I would like to know if anyone has had any luck with the supplement SAMe for Fibro. and/or Chronic Fatgue syndrome.

I have CFS for sure and have all the symptoms for Fibro. no Dx at this point fpr Fibro.
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The doctor did put me on Wellbutrin a couple days ago. Thanks for all the info. I'll be around.
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Yes, I have heard of Strattera helping.  Not on the pain, but on cognitive function, yes.  I think you are on the right track, in concept, looking for a stimulant.  The Wellbutrin definitly helped my ability to focus and it is a highly stimulating anti-depressant.  I have about a years supply Lexipro built up in my drawer my Doctor thinks I take and I don't because I know from long, hard experience in my case that SSRI's don't help me.  I also take Klonopin to offset the stimulatory stuff I do take and so I can have some control over being able to sleep when I know I have to.

Here is my basic opinion regarding CFS/Fibro.  It is either what Marshall says and we have a bunch of bacteria that is keeping our immune system overwhelmed and our pain, fatigue, brain and CNS problems are manifestations of being chronicaly overwhelmed, or I tend to take the Chinese Medicine perspective that it is a combination of stagnation, toxicity buildup and deficiency and this is keeping me overwhelmed.

If the problem is the Traditional Chinese Medicine viewpoint then the answer is simple and complex at the same time.  I have to clear out the stagnation, which in doing that will clear out much of the toxicity, and I have to feed the right things into the deficiency which will give my body more energy and life and that will also prompt it to clear more stagnation and toxicity.

About a dozen years ago, when I was looking for some kind of answer, I worked in a vitamin and herb store part time for about two years.  I tried every single thing on the shelfs, trying to find something that helped.  In that whole store full vitamin and herbal supplements, I found one thing that had a dramatic impact on my energy levels, my cognitive function and gave me the will to get my body moving, which resulted in less pain and helped reverse the cycle.  It is a product called Greens Plus.  It is one of the original, if not the original green super food supplements.  I took that product, took up swimming and got regular massage therapy.  Between those 3 things it got rid of all of the cognitive problems, about 80 percent of the pain and 70 percent of the fatigue.  I could never fix the problem completely, except for brain function.  I am still not sure why I could not fix it completely, unless there is a bunch of bugs running around in my cells, or unless I never got rid of the root blockage.
But those 3 things went a long way and they preaty much validated what the Chinese Medicine people are saying because stagnation, deficiency and toxicity was exactly what I was treating by doing them.  I was getting my body and mind moving again and feeding it.
And another thing I noticed while working in that store was that I had allot of people with CFS problems coming in looking for answers and the only thing I could sell them that I believed in was the Greens Plus.  And in every circumstance I got the same result from the customer.  They would return and buy more and tell me how much better it made them feel.
So I believe the answer, at least partial answer to your problem is stimulation.  You just have to find the stimulation that is going to work for you and your individual circumstances.

  
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Avatar universal
I have a big problem with CNS meds also. I have eliminated a bunch of meds. I am now taking Klonopin.....I feel horrible if I don't take it and feel horrible if I do. I was Taking Provigil with it and I was doing better but, it hits me hard too and it seems to affect decisions I make. I feel out of control when I take it. So, I quit taking it. Now, I am in severe pain. 50 percent of the day I am in tears from pain. The Provigil oddly took away the pain. It wasn't prescribed for that though.

I know Straterra is for ADHD but, it is a non-controlled substance that is a stimulant. Provigil is a stimulant. Ever heard of this medicine helping? Strattera I mean.

How do you get a Dx for Fibro? I am in serious need of help.

Thank you. I will look into Dopamine.
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Avatar universal
Tried it several times.  Drives me up the wall, just like useing SSRI anti-depressents in doses actualy designed to treat depression.

But, to quantify my experience with it, it does seem to work and you shouldn't let the fact I can't handle it effect your decisions.  I might suggest though that you carefully watch your dosing whether you try SAMe, 5htp, precsription anti-depressents or whatever.  It seems in Fibro and CFS that many peoples Central Nervous Systems get hyper sensitive, whether your talking about a upper or a downer.  So I highly suggest you start off slow with lose dosing and see how it goes.  I might also suggest you look into Dopamine enzyme inhibitors to keep more of that in your system.  Dopamine is the pleasure, I feel good nuerotransmitter that allows for better focus and cognitive function, not serotonin.  The only drug I know on the market that works heavily with Dopamine is Wellbutrin, also marketed as Zyban to help quit smoking.  I have had allot of luck with this anti-depressent.  It definitly increases energy levels and cognitive function with me.  The major downside of Wellbutrin is it is major, big time aggresive.  The first month it will jack you up and that is about how long it will take before your sense of well being increases enough that the gain is greater then the side effects of restlessness and agitation.

But I got the same thing out of SAMe and 5Htp.  Both of them made it almost impossible for me to sleep at the recommended dosing.
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