Aa
So fustrated! Have no real help or relief!
I'm so fustrated! I could just cry! I have been suffering with pain for almost two yrs now. They think it could be fibro. I think as well since all my labs come back good except i have B12 def. and get shots monthly. I was on Lyrica and it didn't work, so they bumped up the dose and it still didn't work and on top of it I had chest pains and lump in throat feeling. Well I got Tramadol instead and it has helped for the flu like aches, but as for the deep muscle pains it doesn't even touch the pain! I called and told the nurse this and she said she will talk to the Dr but he probably won't give anything stronger. I am so fustrated and upset by this! Am I supposed to always be this deep into pain? I know I may never be completely pain free but I would love some relief to just take the edge off so I can function and be happy in life! So I'm waiting for the nurse to call back and it probably won't be good. I don't know. By the way, I am seeing a neurologist, that's who I called. My Primary Care Dr. referred me to him and she doesn't prescribe meds for chronic pain either. I just don't know what else to do!
I've had my thyroid checked twice. I've had a lot of blood work. the only thing I have is B12 deficiency from all the blood work. I get monthly shots now.
I also had frustration in being in the constant horrifying pain and medicines not working for it. It has taken a long time to find the right doctor and the right combination of medications. I have seen 5 dr's and am on my 6th one who is new to my community and just so happens to have a 15 year clinical study of fibromyalgia under her belt. When you are in so much pain and they can't "prove" it by x-ray, MRI. etc. they are hesitant to prescribe strong medications. I think they have a hard time distinguishing between pain med seekers and legitimate pain case. Sometimes I know I sounded so desperate while searching for an answer. I was in unbearable pain while trying to make it through my very physical job, as I was the sole provider for my family.
One doctor said there was nothing wrong with me as I sat there with cramping, shooting pains through my neck and back and my right side was numb and tingling at that very moment when he told me maybe I should seek another opinion. He basically gave up on me. Maybe he didn't want to take on my case. Maybe he thought I was faking.
You need someone who can not only diagnose you but have the sympathy for a person who can barely function day to day if they don't find something that works for you.
I have been in pain for over a year and was just diagnosed officially about two months ago. Finally, some people are on my side.
When you look for a new doctor or rheumatologist, you might ask the appointment taker if they have very many patients in your condition. You might also talk about the lump feeling in your throat. It could be a thyroid thing.
One doctor said there was nothing wrong with me as I sat there with cramping, shooting pains through my neck and back and my right side was numb and tingling at that very moment when he told me maybe I should seek another opinion. He basically gave up on me. Maybe he didn't want to take on my case. Maybe he thought I was faking.
You need someone who can not only diagnose you but have the sympathy for a person who can barely function day to day if they don't find something that works for you.
I have been in pain for over a year and was just diagnosed officially about two months ago. Finally, some people are on my side.
When you look for a new doctor or rheumatologist, you might ask the appointment taker if they have very many patients in your condition. You might also talk about the lump feeling in your throat. It could be a thyroid thing.
So sorry for ur pain hun *hugs* check out my topic "fibromyalgia: the diet connection". U may find it useful, greatest blessings to u
Thank you! I'm scared I will suffer forever! Another concern I have is that all my primary care Dr.'s I can see are all in one office. My husband is military and so we have Tricare and have to be seen here on the Army post. I'm scared if I jump around to too many Dr.'s they will not be too happy with me. That's just primary care though, so hopefully I get a referral to a RA and it works out, otherwise I have to go back to the PC and get another referral. It's nuts I can't just go see the Dr I want to see.
Keep trying - there ARE sympathetic, caring doctors out there that understand the pain that we deal with on a daily basis. Sometimes it's hard to find them, but it's important to not give up the search - even if you have to try several doctors before you find one that you are comfortable with and who will listen to you.
Quite often doctors who deal with chronic pain patients will want to try an array of different non-narcotic medications before prescribing narcotics. If you can provide a copy of your medical records showing what medications have already been tried and what the reactions/problems were that you had with those medications, it may help to avoid a new doctor wanting to try something that has already been tried and has failed. Like you, I'm unable to take the "typical first-line" of medications they like to try first - the SSRI's, Lyrica, Tramadol, etc. Again, finding the right doctor who is willing to work with you to find the right medication or combination ofmedications is very important.
Best of luck with the rheumatologist and let us know how you make out.
Quite often doctors who deal with chronic pain patients will want to try an array of different non-narcotic medications before prescribing narcotics. If you can provide a copy of your medical records showing what medications have already been tried and what the reactions/problems were that you had with those medications, it may help to avoid a new doctor wanting to try something that has already been tried and has failed. Like you, I'm unable to take the "typical first-line" of medications they like to try first - the SSRI's, Lyrica, Tramadol, etc. Again, finding the right doctor who is willing to work with you to find the right medication or combination ofmedications is very important.
Best of luck with the rheumatologist and let us know how you make out.
I know cause now I feel like crap! I just can't believe how unsympathetic they are! I made an appt with my regualr Dr for a referral to a RA Dr. I almost feel like giving up, but what do I do about the pain then? Just very fustrated right now! The Dr was weird anyway. The first time and last time i saw him he never even looked at me when I was talking to him. He never asked any questions. He never made suggestions. He also just walked out of the room and didn't say anything about the medicine he was going to put me on. The nurse would just come back with the medicine (cause they had the Lyrica there). I mean there was no communication on his part at all! I just hope my new direction with this leads me to a more caring, sympathetic, communicative Dr!!
I agree with Geminigirl, you should see a rheumatologist. They deal more with FM than neurologists. It is very important to find a doctor you can trust and who you are comfortable with.
Getting frustrated, upset and angry isn't good, it will just trigger a flare-up.
Getting frustrated, upset and angry isn't good, it will just trigger a flare-up.
Yeah so the nurse called me back. She said he wrote me a script for Savella. Anyway, that is just like Lyrica. I can't take Lyrica because of the bad side effects and Savella has the same. I just looked it up. Then she hangs up on me, like I was a burden to deal with anyway! I am so fustrated, upset and angry on top of being in pain! They made me feel like I am a bad person. Like I'm a burden! I guess I will have to be in pain all my life because those fibro meds aren't good for me and everyone refuses to write a narcotic pain reliever. I hate my life right now! I'm so sad!
I would suggest getting an appointment with a rheumatologist - they tend to deal more with fibro patients on a regular basis than other types of doctors. Depending on your insurance, you may need a referral from your primary doc in order to be able to go to one.
Best of luck - I can definitely relate to your pain - i've suffered from fibro and other chronic pain issues since about 1997. It's no fun.
Best of luck - I can definitely relate to your pain - i've suffered from fibro and other chronic pain issues since about 1997. It's no fun.
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