What all can Fibro do? I know ask so many ?'s

[sportygirlsmom]

I feel like I have soooooooo many questions but I am highly unhappy with my neuro. I have called a few times but never get a call back from him or his nurse................Let me start by saying I am not sure if I have Fibro or MS my doc hasn't done much besides blood work I have asked for a brain scan and other test but he hasn't done this yet. My symptoms are lose of balance, falling all the time. Confusion, pain XXXX 1000 in about every part of my body. I can't walk with stumbling about like a bouncing ball. Numbness in my extremities, burning pain in my feet and legs, arms, hands. I had mri's of my back showed ruptured disc 3 or 4.. Sent to neuro b/c my spine specialist thought it was more that just a disc prob.

Okay

Now I have developed ringing in my ears at night...
Almost total lose of my right hand strength, I can't right a whole letter without pain and having to stop b/c I can't hold a pen correct, nor can I hold anything in that hand
Eye twitching at night now in both eyes at diff times.
Sometimes I short term memory lose or I have to think when was that?
My voice is hoarse and I have trouble forming my words at times....
My face is so swollen and swore.....around my orbit...
Lose of bladder control not totally but to some degree.
I am only on a pain management plan not really working....
Can't walk in a straight line.
Wow I will stop but just want some help b/c everyone hear seems so sweet and willing to lend me their knowledge and support and I hope that I can help someone someday the way each of you have helped me so far.. THANK YOU

[kitonthemoon]

Hi, hope your are feeling less pain today.

Dusty is right.......when we have a chronic health problem, it is a lifetime commitment to monitor our health.  

I tend to think that your might have ME/CFS as just fibro, although there're many symptoms overlap with each other.  I have both, but ME/CFS is much more prominent.

The first doctor I saw after I collapsed and couldn't get up.  He couldn't find anything from traditional one-test-covers-all bloodtest...nothing abnormal and insisted I needed a head shrink.

I got so furious, my husband and I started reading (at that time, we had no pc) every book we could find that described what I might have in the title.  Within 2 months, we found ME/cFS which described my symptoms to a tee and I found a doctor who had knowledge about ME/CFS and dx me 16yrs ago.  

Long story short....I echo Dusty's suggestion....do lots research, ask quesion which you are doing.  I would list all my unusual symtpoms and check daily for a while, (like a journal, just for yourself to know where you stand with those symptoms).  With word finding, information processing problems, I found it easier to list my symptoms when I go to a doctor.  theres' good doctor listing on many informative sites.  

Hang in there.....Have a great Thanksgiving.

Kit

[concerned621]

i, I have fibromyalgia. I was diagnosed in I was diagnosed in 1992 and have a very bad case of it. I don't have any of what you are describing.  Don't rush to any conclusion and don't stay with a doc who doesn't answer questions.  See another doctor.   My doctors nurse has MS. She does have some of the symptoms you have but she is on medication and does very well.  Please try to see another doctor if possible.  I wish you the very best.

[dustybrown]

Hello,
Thanks for hanging in there for yourself! It's really rough when you don't really have a practitioner that you can really trust and you're not really sure what's really wrong with you. I know- I've been there and I am sure most of us can relate to you to some degree. I myself have seen so many doctors.

You probably should share your new symptoms with your neurologist as soon as possible. Perhaps you should consider scheduling an earlier appointment that you had originally arranged? Maybe ask if the Rheumatologist referral is necessary like I mentioned in my previous post to you- someone well versed in Fibro.

You have to think of health care and the prospect of having Fibromyalgia and/or CFS as a lifetime commitment to monitor your health and keep up to date on the latest treatments, research and news on the topics. Until doctors understand the diseases enough to keep us functioning at a level where we can feel good, we need to be aware. It's hard to be an advocate for yourself.  I think asking questions and participating on this website is a step in the right direction. You have to pat yourself on the back for that. Kudos to you!