What is happening to my body???

[FRUSTRATEDASHELL]

I have been suffering from severe back pain for about 4 years now. Other symptoms include very tight and tender muscles throughout my body. I have had MRI'S, CT'S, bone scans and a battery of blood work that all says I am fine!!!!! I AM NOT FINE!!!! Some days it is such a chore just to get out of bed in the morning. I am a father of 3 and happily married. My wife is in the understanding that it is stress and depression!!!! I wish that's all it was. I can tell you that this pain is more than stress and depression. The pain is causing the stress and depression. I have tried all different medications from anti depressants to muscle relaxers to heavy duty pain meds and also had a nerve blocker done. NO RELIEF!!!! Is this FIBRO? What is my best next course of action???? Thank you, FRUSTRATED as hell. Mike

[FRUSTRATEDASHELL]

thanks, has your lyme treatments made any difference? I have heard many people say that their unexplainded ailments that always came back negative for lyme and are now supposedly lyme. WHY???? It is all very confusing. I am looking into an LLMD in my area, but am skeptical. Why not just go on a 3-4 week course of antibiotics and see if there is any change???? Mike

[FRUSTRATEDASHELL]

Having a difficult time finding an LLMD doctor in my area. Does anyone know of one in New York, anywhere? I am willing to travel. Thanks, Mike

[FRUSTRATEDASHELL]

Thank you for the information. I will look into an LLMD doctor in my area. I also live in a lime area, woodstock, ny. I can't tell you how crappy I feel all the time, tired, in pain, depressed, iritable. All of which takes its toll on my well being, not to mention the effect it has on my family. I am to the point that I need to get as much information as I can to help myself feel better. Thanks again, Mike

[Phtartist]

I had a plethora of Lymes tests done year after year and it was always negative. The sites Nikodicreta mentioned are important, plus  the Lymes Disease Assoc.
LLMD means Lyme Literate Medical Dr.
If you do not see a LLMD, you will be incorrectly tested. I live in a Lyme area...NJ, so I got tested every September for 9 years by my GP and it was always negative.
I was suffering under what was suppose to be Fibromyalgia for 15 years but I never found relief. Everything was tried to ease my ill feeling. PT to meds. I have not worked since 2002 I've been so ill.
I finally found a ILADS dr. And he tested me properly last March to find I have Lymes and three coinfections.

Listening to us can change your life. I listened

Thanks Buffy..Hugs

[FRUSTRATEDASHELL]

Thanks for responding. I have had multiple lyme tests on a plethra of bloodwork. All comes back fine. One time it came back with elevated muscle enzymes, but the next time was fine. I guess that a rheumatologist is really my next best option. Seeing a neurologist now who recommends PT to try and strengthen the muscles and loosen my body up. Maybe!!!! I've tried it before with little or no results. Extremely frustrating.

[Buffy1970]

Hi Mike.  P is a good source of info.  I'd also suggest you see a rheumy but just keep in mind that if you are diagnosed with FM docs tend to assume everything is caused by it and not do a lot of follow up on other symptoms.  I've heard that Lyrica is good for some people but FM isn't really well managed.  Pain meds don't seem to work on FM pain.  

Luck.

[TheLightSeeker]

Hey Mike.
Welcome to the forum.
Your pain is real! Stress and depression can be attributed to your severe pain,
however, the possibility of difficult to diagnose underlying infections needs to be explored ASAP!
As Phtartist commented, Lyme Disease and other Pathogenic Infectious conditions can cross the blood brain barrier and cause
those symptoms.
Find an LLMD-check at ILADS dot org for more info.
Also check immed dot org , Dr. Garth Nicolson, the top expert in Pathogenic Mycoplasma infections.
Most other doctors are not experts in this field or do not want to get involved-for policy and protocols implemented by various medical authorities. It's a vicious game played at the expense of the sufferer!
If you have any questions please post again.
Take care,
Niko

[Phtartist]

Hi and welcome. Have you been properly tested for Lymes Disease and coinfections?
Lyme can cause a myriad of physical symptoms and mental difficulties. It  actually crosses into the brain and can cause symptoms of depression, BiPolar disorder and anxiety.