Aa
Wish me luck and /or say a prayer
I have gone off my Lyrica to see if I can control my pain with diet/exercise/massage/IMS and Osteopath. I have gained so much wt and I know it can't be helping with my pain. I can't say for sure if the weight gain is from the Lyrica or one of the other meds I'm on but I have to try something. So this is day 1 with no Lyrica. I didn't sleep last night..was up until 3 am,*****. I was able to run for about 20 min today-could have done more but I also have a cold and a fever so did not want to overdue it but I would like to be able to sleep tonight.
Let me know if anyone else has been down this road and how it worked out for them.
Let me know if anyone else has been down this road and how it worked out for them.
I get that virus crap everytime I log in this site now! I do have a comp at home...but don't touch it....kinda like the phone same thing. I'm a secretary. I hate these things when I go home!!!! LOL!!!
I can Kinda relate to your sleep problems. I have no problem falling asleep...I just cannot stay asleep! And I feel so tired all the time...I'm just soo exhausted for no reason.BTW I had some crazy dreams over the weekend...no jumping out of bed tho! Just weird stuff...I guess my brain cooties causes that!
Are you OK? your message was short!
I can Kinda relate to your sleep problems. I have no problem falling asleep...I just cannot stay asleep! And I feel so tired all the time...I'm just soo exhausted for no reason.BTW I had some crazy dreams over the weekend...no jumping out of bed tho! Just weird stuff...I guess my brain cooties causes that!
Are you OK? your message was short!
Hi Sarah! I was already on the Tope when I read this also, so I think maybe it has helped me kick the Savella. But I must say I do take Wellbutrin,Voltaren,Flexerill and a few vitamins as well as the Topamax. I no longer take any sleep meds..if I can help it!
I've never had the pop up virus notifications. Do you have a home computer?
I only fall asleep if I sit still too long during the day. At night I have trouble sleeping. It's very complicated.
I only fall asleep if I sit still too long during the day. At night I have trouble sleeping. It's very complicated.
No, I couldn't change. I did clean it up some. Looked more like I dropped food on my shirt lol.
I have not had any testing in the GI or Digestive area yet. My Doctors can't seem to handle everything I tell them when I go in to see them. It's a slow process getting anywhere with a Doctor in this area. I'm about to have to search for a new Doctor soon. My latest Doc was shut down because of Insurance fraud.
Anyway, it seems we have a few things in common. I think I border on the bipolar thing myself....afraid to mention any more craziness to the doc. I don't want anymore meds.The Tope may help with that. The main reason I went off savella was that I was just about manic.....I really thought I was going crazy! I could not shut my mind off...I was acting out my dreams...jumping out of bed. One night I jumped 5 feet out of the bed backwards..hit my head on the dresser. I was scared. My mind feels much better now....I am more calm. I am able to sleep up to 3.5 -4 hrs, waking only once during the night most nights.
Narcolepsy......like you just fall asleep anywhere anytime?
I too swell alot, But I take anti-inflammitory Voltaren...it has helped alot. I have had more sweeling since i stopped the savella....my ankles seem to disappear on me lol.
I enjoy talking to you too. I may have to stop coming to this site though. I keep getting these pop up virus notifications. My boss told me to stay off the site I was on (this one). Has it happened to you?
Have a good weekend!!
I have not had any testing in the GI or Digestive area yet. My Doctors can't seem to handle everything I tell them when I go in to see them. It's a slow process getting anywhere with a Doctor in this area. I'm about to have to search for a new Doctor soon. My latest Doc was shut down because of Insurance fraud.
Anyway, it seems we have a few things in common. I think I border on the bipolar thing myself....afraid to mention any more craziness to the doc. I don't want anymore meds.The Tope may help with that. The main reason I went off savella was that I was just about manic.....I really thought I was going crazy! I could not shut my mind off...I was acting out my dreams...jumping out of bed. One night I jumped 5 feet out of the bed backwards..hit my head on the dresser. I was scared. My mind feels much better now....I am more calm. I am able to sleep up to 3.5 -4 hrs, waking only once during the night most nights.
Narcolepsy......like you just fall asleep anywhere anytime?
I too swell alot, But I take anti-inflammitory Voltaren...it has helped alot. I have had more sweeling since i stopped the savella....my ankles seem to disappear on me lol.
I enjoy talking to you too. I may have to stop coming to this site though. I keep getting these pop up virus notifications. My boss told me to stay off the site I was on (this one). Has it happened to you?
Have a good weekend!!
hi all..been reading this conversation for 20min now, mostly cause i just stubbled on this website and have had fibromyalgia for 10+ yrs now.. I am 39yr old, wife & mom and my pain & fibrofog is bad. Also pharmacy tech for 20+yrs & never heard of Topamax for this use. Will have to give it a shot. I am taking Daypro, cymbalta, flexeril, ambien, & lortab for all the pain. I went back to school a couple of yrs ago to finish my biology/chemistry degrees & fibrofogged a 500lvl ecology test & got so frustrated that i quit. Went to a neurologist b/c I thought I must have a brain tumor, but he said, after all the tests, it was just my fibrofog! Who ever said "what doesn't kill ya, makes ya stronger" was a *******! lol
Hey k9helper.
There's a way out of this. You gotta have faith. You need to focus on your recovery and your healing more than anything else. Gather as much support as you can for this!
Do not fall into the trap of staying too close to your condition and symptoms.
I know it is easier said than done. But I've been there personally, and I know there's a way.
Probably somewhere in the past your intestinal walls got compromised.
Leaky gut syndrome is suspect! It does not matter what medical doctors are able to diagnose or not.
it is just a bunch of medical labels- or lack of- and corresponding prescription drugs.
It's a tough situation to be in .
The fact is that your nutrients from your food intake are not getting absorbed or assimilated
properly. Your body needs all the nutritional elements it can get, to function properly.
And your immune system is weakened greatly in the process. And the leaked substances are doing gradual damage, affecting many bodily systems.
My daughter has been through all this. And with our support -my wife and I- the help of a young and ambitious Naturopathic doctor, and my daughter's research know-how along with our combined intuitive abilities, has managed to claim her life back.
The amazing thing is that from the beginning she refused to follow her doctor's, her specialist's and the surgeons medical advice. There were too many unanswered questions
and it seemed too obvious that the were all kinda "fishing". Now, we all understand how complex our g.i and digestive systems are. So I don't blame them. They do what they know and what they are trained to do. She took no medications despite the fact her symptoms were numerous, severe and constant! And the psychological and mental implications on top of the physical symptoms were almost unbearable.
Please send me a message directly or post at the alternative therapies
if you want to know more details.
Stay strong !
Blessings
Nikodicreta
I'll be away this weekend at a convention,
however, I'll get back to you next week, should you decide to respond.
There's a way out of this. You gotta have faith. You need to focus on your recovery and your healing more than anything else. Gather as much support as you can for this!
Do not fall into the trap of staying too close to your condition and symptoms.
I know it is easier said than done. But I've been there personally, and I know there's a way.
Probably somewhere in the past your intestinal walls got compromised.
Leaky gut syndrome is suspect! It does not matter what medical doctors are able to diagnose or not.
it is just a bunch of medical labels- or lack of- and corresponding prescription drugs.
It's a tough situation to be in .
The fact is that your nutrients from your food intake are not getting absorbed or assimilated
properly. Your body needs all the nutritional elements it can get, to function properly.
And your immune system is weakened greatly in the process. And the leaked substances are doing gradual damage, affecting many bodily systems.
My daughter has been through all this. And with our support -my wife and I- the help of a young and ambitious Naturopathic doctor, and my daughter's research know-how along with our combined intuitive abilities, has managed to claim her life back.
The amazing thing is that from the beginning she refused to follow her doctor's, her specialist's and the surgeons medical advice. There were too many unanswered questions
and it seemed too obvious that the were all kinda "fishing". Now, we all understand how complex our g.i and digestive systems are. So I don't blame them. They do what they know and what they are trained to do. She took no medications despite the fact her symptoms were numerous, severe and constant! And the psychological and mental implications on top of the physical symptoms were almost unbearable.
Please send me a message directly or post at the alternative therapies
if you want to know more details.
Stay strong !
Blessings
Nikodicreta
I'll be away this weekend at a convention,
however, I'll get back to you next week, should you decide to respond.
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