does anyone else get this

[Christina1978]

I get these episodes and they are very scary to me and want to know if it is from my fibro i get a very tight feeling in my head and when it feels extremely tight i feel like my whole body especially my head is shaking but it not so i guess it's just a sensation but it is very frightening to me and want to know if anyone gets this. I also have alot of balance problems and rocking feeling especially when I close my eyes.

[adrielove]

i`ve had the same thing happen to me before. facial numbness and slurred speech or i feel like i can`t speak at all sometimes. i`m not sure if it`s the fibro but it might be linked bc it does happen to me when i`m at my weakest. could also be from the thyroid. i hope you feel better!

[Christina1978]

Does anyone have any ideas for the episodes to get better and not as strong they have gotten better than when I first got them, but it does feel like i would be having a seizure of something my speech gets slurred, and i feel very weak when i am having one and at times had facial numbness. I have had brain scans and a mri done and the only thing it showed was mild cerebral atrophy (not sure if I spelled that right. Another thing I noticed i guess its my aeorta in my stomach it throbbs all the time. Its vey noticable and my heart rate is always for the most part over 100.

[katepne]

I get the same thing happening to me to. That tight feeling, like Im a tube of toothpaste, lol. I actually ended up developing a psychogenic seizure disorder that "they" think may be related to my fibro.

Malski: I am so sorry your going through this. Her primary care physician should have documented and monitored her medication regime. Sadly many docs dont really take the time to look. I try to monitor my own meds but its difficult. I hope your daughter feels better and is home soon.

[malski]

by malski






I just had my 35 yr old daughter commited to a mental ward, she is the mother of 3 children.  she has a very painful condition now for over 4 years. she is  on a laundry list of medications.  over the past two years she has become increasingly agressive.  overyly chastising her children sometimes without provocation.  she drove her husband away he could not take her anymore. since he left it has been down hill for my daughter. so naturally we all blamed her sudden rages and outbursts on the stress of him leaving. I stayed at her house with her for the past 3 weeks.  I witnessed her going into these rages throwing things, breaking things hitting her children they too were fed up and wanted out.  well when she said she was going to kill her self I called 911.  come to find out the causes of these rages and personality changes were due to her prescribed medications.  the psychiatrist could not believe the meds she was taking. (she was not abusing them, she was very med compliant)  they all interacted causing a psychosis.which just got worse over time.  she has been in the hospital 4 days now and already is the sweet caring person we all knew.  how is this possible that a Dr. can overlook the danger signs, and just keep titrating the doses.  the meds weren't taking her pain because they were interacting with each other.  has any of you experienced this or every heard of it happening to someone else.  the psychiatrist said she is lucky to be alive at all, and that she wasn't responsible for any of her medication induced actions.

[Christina1978]

yup me 2 loud music or if im around too many people or noise. ty

[bellaantoinette]

I get the same thing.  I believe it's my nervous systems flaring at a very high rate.  People with FM often have a HIGHLY sensitive nervous system.  If I am at the mall it often happens to me.  All the stimulation, lights  and noise tend to do this to me.  

[Christina1978]

thank god, at least I know im not dying and it s the fibro. They believe the fibro started with a infection mrsa, cause thats when it pretty much started but i remember having backpain lower since i was 15 and started having pain in my knees. I have the same swaying that is pretty much constant but am seeing a ent and balance specialist for. On the 28th i have a appt for the eng test, and he also wants to do another mri. I am currently taking neurotin and baclofen 10 mg a day and many vitamins. I live in the wa area and are starting to see a fibro clinic in june http://www.eskimo.com/~hvi/bayview/coreprogram.html here is there website. I'm trying very hard not to take any pain meds

[in_chronic_pain]

Ditto, I thought I was just clumsy and stressed. Mainly it is my lower body and face that tremble, but when I don't stress as much it goes away. Also light excercise helps. About the clumsiness I am in the same boat so I have no clue what to do about that except try to pay attention more often.

[adrielove]

ohhhhhhh boyyyyyyyy!!!!!!! yeah, u`re not the only one hun. i get the very same thing from my fibro. i feel like someone is squeezing the sh--- out of my brain sometimes and my brain is going to explode. i also feel the shakiness and same prob with balance sometimes. i tend to sway to the left when i walk. looks like i`m drunk half the time when i`m walking. are you seeing any specialists for your fibro???? do you know the cause of your fibromiligia???? hope you feel better. oh, are you taking any pain killers????? just wondering.
take care,
adriana