lyme disease mimics fibromyalgia and CFS, MS, and other diseases.

[runner473]

Anyone that has been diagnosed with fibromyalgia/CFS, MS, and many other diseases and conditions should be tested for Lyme disease, no mattter where you live in the country. There are tons of myths on this disease, first you don't have to have a bull's eye rash and second, the test your doctor will most likely give you is very unreliable. Please do some research on lyme disease and co-infections. youtube (under our skin) has some informative information as well as other sites. Please if you have one of these diseases or others, that in your research you will be made aware of, get tested for lyme disease. you may need to also do some research on proper testing. there are a few very reliable labs, however, a private one is igenix. lyme disease is a condition that can be treated and many completely recover. many doctors will not share this information with you. I have no affliliation with igenix or the documentary movie 'under our skin.' However they have helped me understand what has been ailing me over the past 5 years. Please, be well

[thester6474]

I am sorry, I am not really sure which testing my doctor administered, but I will look on my Insurance Companies website and let you know.  I was told that at the onset of my symptoms I had had Lyme Disease for a while, considering the fact that my first few symptoms were Neurological.  My doctors say that it caused a chain reaction, and believe that I too have an Autoimmune condition, just not sure which one.  In articles I have read recently, it states that Fibromyalgia can be considered an autoimmune condition.  Which in my case makes a whole lot of sense, my immune system after unsuccesfully fighting off the Lyme infection, started fighting itself.  For the past few years, my immune system has been low, even before my current illness.  Unfortunately to this day, not much is known about Lyme Disease.  It is said, that once it gets to the point where Neurological problems are seen, there is not much that can be done.  I was treated with Antibiotics for a month, and since no treatment has been administered.  I have considered going to see a Lyme Literate Doctor out of Mobile Alabama.  My doctor says that he is really good.  The only downfall of making the trip, is that Insurance companies don't consider these doctors necessary, so in turn the refuse to pay.  I know a person that saw him, and he said his first bill was over $400.  If you would like this doctor's info, phone number and name, feel free to PM me.  Sorry this message may not sound the best, my mind is so cloudy.  I can't keep anything straight today.

[Christina1978]

i have not retested myself but i feel so much better I am actually due to see the neur on the 26th and see what they wanna do

[thester6474]

Sorry all, I haven't had the strength or energy to log in to the site in the past few days.  But here, I am.  They say that the after antibiotic testing you should wait at least four months before retesting.

[Christina1978]

I myself had problems for years you can look at my past posts and was tested by igenex and was cdc positive and also had a coinfection after antibiotics for 3 months I can say my symtoms are 90% gone. So I would tell everyone too get tested if you can. It did wonders for me

[VaBreeze]

http://www.medhelp.org/forums/show/148

I totally understand your concerns.  Yes, here it the link to their forum.  I know they can help you from their first-hand experience.  Take care.

[Ree4tu]

Thank you so much...I will look at the website and Lyme Forum.  I think I had every test for Lyme except for the Igenix, but want to be sure.  My other concern is I was taking antibiotics on and off for a while and this could be interfering with the tests.  I wasn't on antibiotics for the most recent test for about a month. Maybe I should post this question in the Lyme Forum?

Ree4tu