I was dx with Fibro/CFS in 1997 and I also have had terrible buzzing/thrumming/tingling/etc in my feet and up legs, hands and up forearms plus lots of other odd sensations. I have been tested for Lyme and it came back negative, btw. I started taking Neurontin years ago for it and, while it doesn't take it away completely, it does reduce it to tolerable levels most of the time and also helps with occipital migraines. Take lots of notes and don't hold back when you talk to your doc - tell him/her like it is and what you go through.
There is a Southern tick-borne infection called "Masters' disease" or "STARI," for Southern Tick-Associated Rash Illness. It has a lot in common with Lyme disease.
Below is a ink from the Columbia Lyme and Tick-Borne Diseases Research Center:
http://www.columbia-lyme.org/patients/tbd_stari.html
Also, many studies are coming out acknowledging that Lyme is spreading across the US, including recent reports from Yale about the role of migrating birds transporting infected ticks. So the old notion that geography can exclude Lyme is really out the window.
Not to sound like a broken record (I just posted about this in another posts on this forum), but many late-stage patients test negative for Lyme, self included. It's a very messy subject!
Yes, there is a lot of controversy with the testing.
Fibro is terrible, my sister in law too was treated for fibro and arthritis for a year, later to find out she contracted Typhis Fever (most likely from a flea bite) Her infectious Disease dr, which is mine as well ( i refered her) couldnt believe that her test came back positive for it. Its quite rare!!! I just kind of found it funny that they told her she has fibro and arthr, all to find out that her problem was treatable.
Thats why i believe its an infectious disease/virus/spirochete WHATEVER, that is causing fibro and arthritis. Its too bad they wont just treat fibro patients with antibiotics for a trial run to see how it goes.
Hope you are going ok (mentally) i know how stressful and draining these diseases/illnesses are! =) KEEP SMILING!
i am presently being treated for fibromyalgia...i do have all your symptoms except infections, but i take collodial silver and vitamin d ...i also have exactly all of papa86 weird symptoms.....i have chronic pain every day. i noticed it right afer a trip to philadelphia to visit my sister. i even remember a red round rash shortly after. i live in texas so i knew absolutely nothing about lyme. but, i went on line becaus of all my weird symptoms. and it all went to lyme. i had early lyme symptoms, but the lyme test were negative. i had three lyme test within 2 yrs, all with local labs. later i found out these labs cannot find lyme. so i had it sent to calif at igenx. well i didn' have all the bands, so here i am. sick every day and all the fibromyalgia tricks to get me better don't help
Hi,
I had similar symtpoms for YEARS. It took years to be treated by a doctor, but i was tested and treated for Lyme Disease. I too had electrical shock feelings and tingling sensations. Here are my other symptoms, incase you remember experience this.
Lyme is becoming a huge epidemic. Not everyone gets the typical lyme rash (only 30%) do some educating and reading... good website: canlyme.com
Fatigue (EXTREME)
Muscle Twitching
Dizziness/Vertigo
Headaches/Migranes
Brain Fog/Confusion/Difficulty concentrating
Visual Problems (visual snow, vitreous floaters, red eyes, flashes, etc)
Depression
Continuos Infections (sinus,chest, ect.)
Hello and welcome,
Your symptoms could be coming from a number of things, so it's hard to say specifically. When you visited the doctor during the initial episode, what did the doctor think the cause of your tingling and pain was from in your extremities? I would encourage you to visit your doctor as soon as you are able and return to us with his or her diagnosis or recommendations. We can definitely talk about your past diagnosis in the meantime if you'd like.
-Dusty