Aa
when they cannot figure it out,they call it fibro!!!
people,i have done lots of research on this,i even resided over a court case where a woman got hurt in a car accident,then had her insurance pay for over 76,000 dollars in hospital bills,come o find out she said she had fibro,and thats where all her bills came from!
i honestly think that when doctors are not sure and cannot diagnos us,they call it fibro or stress/anxiety....period.
20 years ago you never even heard of fibro and people with "anxiety" delt with it,its called LIFE
please,dont let all your aches and pains that do not go away with proper diat and exercise be written off as a phantom disease that doesnt exist.
THERE IS ALWAYS A REAL/TRUE UNDERLINING REASON for your pain and issues.
if you got leasons on your brain,,,,YOU GOT MS!!!....period,,,dont let the docs tell you you dont,that you got a made up illness like fibro!!
if your lymph nodes are all swelled up,you have night sweats and loosing weight,,,YOU HAVE HIV....NOT FIBRO!!!
i urge you to read up and be your own judge.
just because a test sometimes comes up neg....that doesnt mean you dont have the real disease.
i honestly think that when doctors are not sure and cannot diagnos us,they call it fibro or stress/anxiety....period.
20 years ago you never even heard of fibro and people with "anxiety" delt with it,its called LIFE
please,dont let all your aches and pains that do not go away with proper diat and exercise be written off as a phantom disease that doesnt exist.
THERE IS ALWAYS A REAL/TRUE UNDERLINING REASON for your pain and issues.
if you got leasons on your brain,,,,YOU GOT MS!!!....period,,,dont let the docs tell you you dont,that you got a made up illness like fibro!!
if your lymph nodes are all swelled up,you have night sweats and loosing weight,,,YOU HAVE HIV....NOT FIBRO!!!
i urge you to read up and be your own judge.
just because a test sometimes comes up neg....that doesnt mean you dont have the real disease.
I have fibro and have had it for 7years now. I always say that the doctors have labeled me with fibro because they don't know what it really wrong with me. I guess I feel that way because it is so hard to accept that this much pain can't be verified by a blood test of any kind. I know that it is real pain whether it be from fibro or something else. It is just so frustrating. Even my husband doesnt seem to back me up even though he has seen all I go through. I think it is because their is no paperwork I can hand him saying this test verifies what I am saying.
Something else I have noticed is alot of fibro sufferers are in the same age group. Which makes me wonder if they put something in the food or water or maybe all the anti biotics we were always given as children. I know that sounds crzy, but their has got to be some answers somewhere for us. Well have a good day all.
Something else I have noticed is alot of fibro sufferers are in the same age group. Which makes me wonder if they put something in the food or water or maybe all the anti biotics we were always given as children. I know that sounds crzy, but their has got to be some answers somewhere for us. Well have a good day all.
I think we all know we are sick and that Fibro is a real disease. I don't think Crambone is going to respond to any of us. We are sort of wasting energy here defending ourselves. His message wasn't quite clear and we all seem to be reading different things into it. I would like to see this thread get buried, but that's just my opinion.
-Dusty
-Dusty
If you re-read crambone post he/she stated that we with FM have HIV. I don't think this person is basing anything on knowledge, understanding or research and merely trying to say we have underlying illness by any means. And I hope all of us with FM are continuing to evaluated, investigate and be our own advocate and discuss monthly with our doctors any underlying illnesses we might feel is going on with us. I know I do. I would never sit quietly and take a diagnosis, ANY diagnosis from ANY doctor and go away quietly. This is the only life I have and and I treasure it. I look constantly for the path to healing. I also keep track of any other symptoms or feelings of dis-ease I feel.
The original post here that started this email string is exactly what has harmed FM people for as long as I've had it (1992). I can't explain it for everyone but I can give you a documented summary in detail of my FM, how, when, why and manifestation of symptoms for me, and I know it is very real. I left a career that paid $100,000.00 per year due to this illness. A career that took me over 15 years to build. A lazy person could not have done 1/3 of what I did in my life time so far.
I myself struggled and continue to struggle with disbelief from doctors, family, friends and I will never sit quietly especially when I experienced the legal system, dishonest lawyers who had nothing better to do than lie and send me to what they call "independent medical exams" only to pay their doctors of choice to actually lie about my condition. I am too aware of people like crambone and how they operate.
I ask you to re-read this persons post and don't let them off the hook this easily. They said that you and I have HIV. If that doesn't offend you I'm not sure what does. I have sympathy for anyone living with HIV or AIDS but I can assure I do not have HIV or AIDS and my blood work and all other tests are checked quarterly and it all is perfect so there are no underlying conditions as this genius is inferring we all have.
This person went in to court unprepared and lost and decided to vent in a post to all of us. Which is great, free speech and all. I respect that but let's not back down. I'm not saying the person who won definitely had FM, there are many misdiagnosed people out there and I personally know 2 people who fake FM. I can assure I do not. I don't mean to be harsh in any way but I take offense to such accusations by someone who as idiotic as this commenting on something I suffer with and something I have researched for over 12 years. I also humbly respect your opinion so please don't think I am coming down on you. That is not my intention but I would love to get us all in a room with this misguided lawyer to discuss further. I would like to find out where his/her information is coming from. I can assure you it's based on a pure rant nothing more.
The original post here that started this email string is exactly what has harmed FM people for as long as I've had it (1992). I can't explain it for everyone but I can give you a documented summary in detail of my FM, how, when, why and manifestation of symptoms for me, and I know it is very real. I left a career that paid $100,000.00 per year due to this illness. A career that took me over 15 years to build. A lazy person could not have done 1/3 of what I did in my life time so far.
I myself struggled and continue to struggle with disbelief from doctors, family, friends and I will never sit quietly especially when I experienced the legal system, dishonest lawyers who had nothing better to do than lie and send me to what they call "independent medical exams" only to pay their doctors of choice to actually lie about my condition. I am too aware of people like crambone and how they operate.
I ask you to re-read this persons post and don't let them off the hook this easily. They said that you and I have HIV. If that doesn't offend you I'm not sure what does. I have sympathy for anyone living with HIV or AIDS but I can assure I do not have HIV or AIDS and my blood work and all other tests are checked quarterly and it all is perfect so there are no underlying conditions as this genius is inferring we all have.
This person went in to court unprepared and lost and decided to vent in a post to all of us. Which is great, free speech and all. I respect that but let's not back down. I'm not saying the person who won definitely had FM, there are many misdiagnosed people out there and I personally know 2 people who fake FM. I can assure I do not. I don't mean to be harsh in any way but I take offense to such accusations by someone who as idiotic as this commenting on something I suffer with and something I have researched for over 12 years. I also humbly respect your opinion so please don't think I am coming down on you. That is not my intention but I would love to get us all in a room with this misguided lawyer to discuss further. I would like to find out where his/her information is coming from. I can assure you it's based on a pure rant nothing more.
What is your point by leaving such stupid comments on this board?. Do you have a medical degree? You cause lots of mental anguish with your nonesense. Please people dont listen to her/him. What I did notice is you were not writing from your own experience. Please go away and leave us in peace.
Your post reminded me that it has been a few years since I had another revisit regarding my issues. I guess I will do this in the new year.
I think patsy10 is right. A Fibromyalgia diagnosis, in my experience, has allowed some of my doctors to give up looking for other underlying reasons why I may be experiencing my symptoms, which is frustrating. This could be what Crambone is trying to express.
In some cases, for some people, an incorrect Fibromyalgia diagnosis that is not revisited once every couple of years can be dangerous (like patsy10 with her lyme). Also, many of us have a strong background of autoimmune illnesses in our families. I have Rheumatoid Arthritis on one side of my family and autoimmune thyroid disease (Hashimoto's and Grave's) on the other side.
Since I am so young with symptoms and a Fibromyalgia diagnosis, it is up to me to be my own best advocate and make sure my doctors continue to test me for these genetic diseases that I am predisposed to develop. Ensuring that doctors are making the correct diagnosis and continue to monitor us is key. This is just my perspective on the topic.
-Dusty
In some cases, for some people, an incorrect Fibromyalgia diagnosis that is not revisited once every couple of years can be dangerous (like patsy10 with her lyme). Also, many of us have a strong background of autoimmune illnesses in our families. I have Rheumatoid Arthritis on one side of my family and autoimmune thyroid disease (Hashimoto's and Grave's) on the other side.
Since I am so young with symptoms and a Fibromyalgia diagnosis, it is up to me to be my own best advocate and make sure my doctors continue to test me for these genetic diseases that I am predisposed to develop. Ensuring that doctors are making the correct diagnosis and continue to monitor us is key. This is just my perspective on the topic.
-Dusty
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Herpes sores blister, then burst, scab and heal.
Herpes spreads by oral, vaginal and anal sex.
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Condoms are the most effective way to prevent HIV and STDs.
PrEP is used by people with high risk to prevent HIV infection.
