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Anyone here have an infant with reflux?
I was hoping there was still a pediatric GERD forum... I have scanned posts and most seem to be adults. Anyone out there with a baby suffering?
Your posts make me sooo sad for the babies who suffer with this. I can't even imagine what it must be like to go through that and not know what's wrong, why you hurt, etc...
My daughter is 5 months old and has silent reflux. She has been on Zantac since 4 weeks old, but it just wasn't doing enough. She went onto prevacid at 4 months old, and I was so excited to notice a huge difference within 24 hours. However, we have been unable to wean her off of the zantac. If we miss even 1 dose, the poor thing starts shrieking, arching, turning red, etc... I tried to get her down to twice a day because she had been doing well. Only 3 hours past when her dose would have been due, she was inconsolable and in obvious pain. Is this normal? Isn't there a build up of some meds in the system? DH is a pharmacist and says she's pretty much at the max dose that he'd allow, but I can't help but wonder if her dose should be higher. The ped made it sound like her dose is very reasonable. I wonder because after the horrible episode yesterday, we gave her her meds when she got bad. The next dose was on schedule, so the 2 doses were closer together than normal. She slept better than she ever has before (SIGNIFICANTLY better- she normally stirs and wakes all night long, sometimes every 30 to 60 minutes). tells me maybe she could use a higher dose? I'va always suspected it's the reflux that's waking her because she's not hungry during the night. During the day, she has improved being on both meds, but there are still challenging feeds. It used to be an absolute nightmare to feed her- now it's managable, but we still have to make modficiations often (upright feeding, swaddled and white noise for soothing, etc...) Ped said we can try to wean her off meds at 6 months. I definitely don't see that happening.
If anyone has any insight, or similar experiences, please share! I just want my poor baby to feel better. Like I said, it breaks my heart to think that she suffered so much in the beginning. She was also colicky, and the reflux really aggrevated that as well.
Your posts make me sooo sad for the babies who suffer with this. I can't even imagine what it must be like to go through that and not know what's wrong, why you hurt, etc...
My daughter is 5 months old and has silent reflux. She has been on Zantac since 4 weeks old, but it just wasn't doing enough. She went onto prevacid at 4 months old, and I was so excited to notice a huge difference within 24 hours. However, we have been unable to wean her off of the zantac. If we miss even 1 dose, the poor thing starts shrieking, arching, turning red, etc... I tried to get her down to twice a day because she had been doing well. Only 3 hours past when her dose would have been due, she was inconsolable and in obvious pain. Is this normal? Isn't there a build up of some meds in the system? DH is a pharmacist and says she's pretty much at the max dose that he'd allow, but I can't help but wonder if her dose should be higher. The ped made it sound like her dose is very reasonable. I wonder because after the horrible episode yesterday, we gave her her meds when she got bad. The next dose was on schedule, so the 2 doses were closer together than normal. She slept better than she ever has before (SIGNIFICANTLY better- she normally stirs and wakes all night long, sometimes every 30 to 60 minutes). tells me maybe she could use a higher dose? I'va always suspected it's the reflux that's waking her because she's not hungry during the night. During the day, she has improved being on both meds, but there are still challenging feeds. It used to be an absolute nightmare to feed her- now it's managable, but we still have to make modficiations often (upright feeding, swaddled and white noise for soothing, etc...) Ped said we can try to wean her off meds at 6 months. I definitely don't see that happening.
If anyone has any insight, or similar experiences, please share! I just want my poor baby to feel better. Like I said, it breaks my heart to think that she suffered so much in the beginning. She was also colicky, and the reflux really aggrevated that as well.
I think any reflux is bad, not worse or better. It's nice your husband is aware of the meds & is cautious. I know there were a few times our pharmacists thought the doses were high, we went with the Dr. on it, but I always had the RPH check it out & made sure they were okay before we did the meds.
We did limited tummy time, Cam would throw up, projectile usually if he was flat so it scared me to put him down anyway. Our ped said it was more important to keep the reflux in check & keep him elvated than it was for tummy time so to do small amounts when he was doing well. We had bad gagging & choking spells too. I would give him short amounts throughout the day once he got better. He had to sleep in his bouncy seat or car seat all the time. Our ped told us to stick with the car seat as it kept him upright enough & he was happy. When he got bigger it was a struggle since they don't stay put. I slept many nights in a chair holding Cam otherwise he would be up puking or screaming, no fun.
He was a great eater though, ate solids on time, a little slower to eat the thicker ones than my first one, but Cam was never really in a hurry for anything & Carson can never slow down- so I think it was just a difference in kids.
I don't know about the ears though, he was fine till he got his first tooth @ 7 months, slow little guy. He seemed to get them back to back while he got his teeth. Carson had bad ears too, so I was lost on the reflux. Our ped didn't want to tube ears though since the reflux was bad enough, I was told it can cause the tubes to move & then we didn't do any good with tubes. Both of my boys had respiratory issues & my sis in law has really bad asthma. Her kids are both okay, but oddly mine both had issues. Cam is getting better, but again, they blamed it on reflux. I really don't know how it all ties together, I think Cam getting RSV just shy of 10 weeks old was harder on his lungs than the reflux, but who knows. I hope your little one gets better soon. It's so sad to see them in pain. Good luck.
We did limited tummy time, Cam would throw up, projectile usually if he was flat so it scared me to put him down anyway. Our ped said it was more important to keep the reflux in check & keep him elvated than it was for tummy time so to do small amounts when he was doing well. We had bad gagging & choking spells too. I would give him short amounts throughout the day once he got better. He had to sleep in his bouncy seat or car seat all the time. Our ped told us to stick with the car seat as it kept him upright enough & he was happy. When he got bigger it was a struggle since they don't stay put. I slept many nights in a chair holding Cam otherwise he would be up puking or screaming, no fun.
He was a great eater though, ate solids on time, a little slower to eat the thicker ones than my first one, but Cam was never really in a hurry for anything & Carson can never slow down- so I think it was just a difference in kids.
I don't know about the ears though, he was fine till he got his first tooth @ 7 months, slow little guy. He seemed to get them back to back while he got his teeth. Carson had bad ears too, so I was lost on the reflux. Our ped didn't want to tube ears though since the reflux was bad enough, I was told it can cause the tubes to move & then we didn't do any good with tubes. Both of my boys had respiratory issues & my sis in law has really bad asthma. Her kids are both okay, but oddly mine both had issues. Cam is getting better, but again, they blamed it on reflux. I really don't know how it all ties together, I think Cam getting RSV just shy of 10 weeks old was harder on his lungs than the reflux, but who knows. I hope your little one gets better soon. It's so sad to see them in pain. Good luck.
Thanks for chiming in :)
Honestly, it sounds like she's nowhere near as bad as Cam is/was. I just hate to see the symptoms creeping back and knowing that she's in pain sometimes. I know how bad it CAN get, so I get very scared when I see her symptoms flare up. We've been managing it pretty well since she went on the prevacid- just can't wean her off of the zantac and definitely can't miss any doses! I think her doses needs to be upped. DH so far is unwilling to put her on more meds- I will talk to the ped about at my other DD's appointment (well visit) on Tuesday.
we haven't had any respiratory problems or ear infections. I wonder if it's because it's silent reflux. This kid almost never spits up. If I see a tsp a day, it's a lot. I know that in itself isn't normal. She swallows everything back down.
She is still on breastmilk. I am terrified of weaning because of the formula challenges you describe. I know she'll be the kid that has to go through every formula on the market. I am pumping since we lost the ability to nurse due to the reflux and colic- picture trying to put that screaming, thrashing kid on your boob- not exactly the lovely mental image one gets when they think of nursing their child.
So some more questions for you...
Were you able to do tummy time? this kid never laid flat- tummy or back- so we never did much. I feel bad. She's extremely strong and has been sitting since 3 1/2 months (I attribute this to her being held upright from the first moments of her life), but i feel she'll be walking before rolling over. And of course since she IS sitting on her own, it doesn't occur to me to do tummy time.
how'd you have him sleep upright? i find they slide right off the inclines so i have her in the bouncy. How do you eventually get them out of the bouncy. So far no issues since she doesn't roll (in fact she still sleeps swaddled) but i was wondering.
did you notice any changes at all oce you introduced solids?
Honestly, it sounds like she's nowhere near as bad as Cam is/was. I just hate to see the symptoms creeping back and knowing that she's in pain sometimes. I know how bad it CAN get, so I get very scared when I see her symptoms flare up. We've been managing it pretty well since she went on the prevacid- just can't wean her off of the zantac and definitely can't miss any doses! I think her doses needs to be upped. DH so far is unwilling to put her on more meds- I will talk to the ped about at my other DD's appointment (well visit) on Tuesday.
we haven't had any respiratory problems or ear infections. I wonder if it's because it's silent reflux. This kid almost never spits up. If I see a tsp a day, it's a lot. I know that in itself isn't normal. She swallows everything back down.
She is still on breastmilk. I am terrified of weaning because of the formula challenges you describe. I know she'll be the kid that has to go through every formula on the market. I am pumping since we lost the ability to nurse due to the reflux and colic- picture trying to put that screaming, thrashing kid on your boob- not exactly the lovely mental image one gets when they think of nursing their child.
So some more questions for you...
Were you able to do tummy time? this kid never laid flat- tummy or back- so we never did much. I feel bad. She's extremely strong and has been sitting since 3 1/2 months (I attribute this to her being held upright from the first moments of her life), but i feel she'll be walking before rolling over. And of course since she IS sitting on her own, it doesn't occur to me to do tummy time.
how'd you have him sleep upright? i find they slide right off the inclines so i have her in the bouncy. How do you eventually get them out of the bouncy. So far no issues since she doesn't roll (in fact she still sleeps swaddled) but i was wondering.
did you notice any changes at all oce you introduced solids?
I hopped on here & just saw this. I am so sorry she's still struggling. My little Cam is still having issues & he will be 3 in a couple of months. He went on Prevacid at 4 weeks, then they added Reglan around 10 weeks, which was nice since everything was blamed on colic. It helped, but we still had issues. I kept track of how he was doing & would call the nurse often. They kept adjusting the meds & ended up added Zantac shortly after. When he has bad times, they will have us double up on Prevacid- meaning one 15 mg tab twice daily, then do the Reglan & the Zantac twice daily as usual. I noticed when he gained a little weight it would cause issues & they would have to increase his meds. I worked in the pharmacy during this time & the pharmacists agreed that Cam was a bad case & he was pretty much maxed out on meds too, but if we didn't keep it under control it was really bad. Anytime the Dr. would change the dose, they would usually speak with him about the dosing & Cam's weight- it was nice to have extra people looking out for him. Poor kid had so many breathing problems & ear infections from his reflux we had to really stay on top of it. I hope she gets better soon. Are you doing a milk based formula? We went from milk to soy to Nutramigen & the last one helped. Cam didn't get start regular milk at 1 yr old either. He went to soy milk for almost a year & then we worked our way to whole miil. Milk can be tough on hte little ones too. We also had to sleep upright, anything to help the little ones!
Hi both forums were blended into this one....not too many with infants on this page, but do try the search this community feature and I am sure u will find others.
I would advise u to take ur DD to a Ped GI specialist and talk to them about stepping her off the meds. I do know Adults can have a rebound effect if they stop the meds to abruptly. U may need to substitute something in btwn her doses to help fight the rebound .
Basically what happens is the meds stop the proton pumps from producing acid...u stop the meds and the pumps start up again flooding the stomach with too much.
I wish I had something more to share...good luck to u and I pray ur little one gets better soon,
"selma"
I would advise u to take ur DD to a Ped GI specialist and talk to them about stepping her off the meds. I do know Adults can have a rebound effect if they stop the meds to abruptly. U may need to substitute something in btwn her doses to help fight the rebound .
Basically what happens is the meds stop the proton pumps from producing acid...u stop the meds and the pumps start up again flooding the stomach with too much.
I wish I had something more to share...good luck to u and I pray ur little one gets better soon,
"selma"
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