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Avatar universal

Gallbladder pain but no one will help or believes me

HELP!!! I am seriously ready to just give up. I have seen lots of posts on this but really no answers, just people saying they have the same thing. I have all the classic signs for the last 2 years of gallbladder pain, all my tests are normal, 2 hida scans, 4 ultrasounds, 1 abdominal CT, I keep having attacks, I am diagnosed with chronic unexplained abdominal pain and am on a 100mcg fentanyl patch and 16 mg of dilauded every 4 hours, both of which do jack while my attacks are on. I go to ER every single attack only to have them say YES its your gallbladder, we just need an abnormal test to remove it… EVERYTHING is always ALWAYS normal, I am ready to jump off a bridge, my abdominal pain is so bad. 4 years ago I had kidney stones but passed them, then was diagnosed with H Pylori but eradicated it after 2 treatments, then the pain changed to this gallblader pain. I did have one radiologist suggest highly that I should have an ERCP but NO one will touch me, surgeon says something such as scans, bloodwork etc must be abnormal. My GI doctor just says take more meds. My GP says I can't help you, live with it… thats the problem, I cannot live with it, I am a nurse and cannot work, cannot play with my kids, my abdominal pain is so bad. Any advice?
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Avatar universal
Just curious, what was the numbers to your HIDA scan?  I have been having severe cramping in my upper abdomen, right rib, back and even into left rib now.  This has been going on for the last year and a half.  The attacks last anywhere from 5 hours till yesterday where it was off and on for 15. Seems to be random but notice higher fat things increase the change of it happening!   My HIDA scan supposedly was "normal", I had NO reaction to the CCK but my EF was 99% !  Having trouble with Dr.'s taking it seriously as a gallbladder issue.  Was wondering what your EF rating was?  I believe there is such a thing as an overactive gallbladder.  I just need to convince my docs of that!
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Avatar universal
I see the GI doc tomorrow, will find out the numbers
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Avatar universal
That's interesting Cuz I always walk or sit with my hand pressing the area, I never thought to do that. Perhaps it will help. Thanks very much!!! Will try that to see if it relieves some pain.
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Avatar universal
I have the same problem all normal, what helps alittle is a back belt, the type workers use or weight liftners use. I also take tylonal with codine, don't know if that heips. guess I'll break Medi Care before its over. Don"t give up.
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