Was diagnosed with this a year & a half ago after a year of abdominal pain they thought was IBD. Been on coumadin, but while it gave some relief during the first year, now I have pain all the time & the only relief I get is when I stop eating. I've seen a gastroenterologist, had an unbelievable # of scans & tests, and they say all they can do for me now is give me heavy painkillers. I just don't
understand why they don't take the clot out, or do a bypass, or something! I'm frustrated. I've asked them about surgery & am just told it's not an option with no further explanation. I did my own research & found a procedure called percutaneous transhepatic thrombectomy, and asked for it but was told it was "too controversial a procedure" even tho' I found many medical journal articles showing how successful its been. Taking narcotics isn't a solution. I feel like they've given a death sentence to me. Am I expecting too much? Should I just accept what they told me & get prepared for the worst?