UNCONTROLLABLE BILE REFLUX!! PLEASE HELP!!

[JayFaith]

Hello.  I have recently been diagnosed with bile reflux.  I have SEVERE, CONSTANT burning in my stomach, abdomen, and chest area.  The bile is refluxing not only into my stomach but my esophagus.  It is so out of control that is has caused my esophagus to not open properly from the burning not being controlled.  And most of all it has caused tachycardia with my heart to the point that when the burning is at it's worst I get heartrates in the 180's.  It has been narrowed down that the bile reflux is causing my problems.  I have a constant fire raging in my stomach/chest/abdomen.  I was prescribed Questran and Welchol, both of which gave me severe heartburn and gas, which did not help because it just went from one type of burning to another.  The only thing that seems to even help a little is Carafate, but not that much.  The docs have told me that they don't know what other meds to try.  Can anyone who has had experience dealing with bile reflux please offer some suggestions as to how I can control this.  It has not been determined what the cause of the bile reflux is.  I have had many tests done (hida scan, mri with mrcp, blood work, egd) the only thing I haven't had done is a small bowel follow-thru, gastric emptying study, and a colonoscopy.  I am not sure what happened to my body.  Prior to having bile reflux I had acid reflux for over 20 years and after seeing a post that said "activia" yogurt cured my acid reflux I decided to try it and after the 14th day my body exploded with excess gas, rapid heartrate(198), and uncontrollable belching(up to 20 min at a time), and severe burning that has not let up for the past 2 1/2 months.  I don't want to leave this out because also during the 14 days that I ate activia I also went on a yeast/candida free diet and and sugar free diet and got 2 IV iron infusions for iron deficienty anemia.  Not sure if these things had anything to do with it but I was pretty much healthy before I embarked on this 14 day diet change.  Based on the testing apparently "activia" did cure my acid reflux because I no longer have acid reflux I now have alkaline/bile reflux.  I am currently typing this from the hospital.  During the last 2 1/2 months I have been hospitalized 8 times.  All docs are puzzled and can't seem to help me.  When I take any type of PPI, H2 blocker, or acid med even something as simple as tums or rolaids, the burning gets worse.  When I tell the docs that they don't believe me but I have found many articles and posts that say that when you have bile reflux these meds make it WORSE....how come the docs haven't read this info?  If anyone has any suggestions on how I can control this bile reflux thing please let me know.  I am very desperate and in misery.

Also, not sure why the bile reflux developed.  I did have abdominal surgery but that was to remove fibroids and they used the same scar as a previous c-section about 3 months prior to this happening.  I do have adhesions from the surgery but bowels flowing normally.  When I ate the "activia" yogurt I am lactose intolerant, I think, and could I have possibly caused an ulcer in my colon.  I read that ulcers there could cause bile reflux, but haven't had a colonoscopy yet.  

Right now I just really need a suggestion of what I can take to get out of this constant burning and pain and then I will continue my search for the cause.  

Please help if you can.

[zhir]

the sick boy is not here . it means he is cured . voila

[impaler1]

Did you find a cure?

[impaler1]

The catalyst is delayed gastric emptying, causing backflow of acids into the esophagus
The cause of delayed gastric emptying is acid blockers, low stomach levels.

Um, but the problem was there to begin with...people sought medical help because it was an issue and THEN were prescribed the PPIs. Not before.

[VevaJean]

I too had my gallbladder removed 40 years ago....my bile reflux has never gone away.......small meals, low fat diets, bland diets, no caffeine, no acids of any kind......read ingredients if you see the word "acid" do not use...no fruits...no chocolate, milk also has milk acids....so eat little dairy, no vinegar or lemons, oranges, grapefruits.....this is hard to do but after 40 years I have learned.    Your brain is connected to your gut, ask your doctor for anti-anxiety pills (Lorazepam 0.5 mg) they really help, use only until you feel relief, do not get addicted to them.  I take Omeprozole (prescription Prilosec) 20 mg every morning and 1 Lorazepam 2 hrs before bedtime.....but you still need to watch your diet!  I also was diagnosed with Celiac Disease.....no wheat, barley, remember Soy Sauce is not Soy it is wheat ....do not eat any ingredient that say "modified", corn, garlic, onions.  I know this sounds impossible but it works and if you do not do this the next problem you will have is Barretts disease which can cause Cancer, bile reflux can cause serious damage to the whole GI System!

[Wenfleck]

OOPPS! Lots of errors in there. Labs not labels, and fogginess not goggles, and protonix not protein. I am new to this community board thing. Thank you for any help you can offer!

[Wenfleck]

I was diagnosed with bile gastritis in November. I have lost 15 pounds and been sick since September. I have had endoscopy, CT scans, ultrasound, MRI of abdomen and head (now I am suffering from dizziness and weird foggy brain feeling after I eat), labels, and X-rays. Thousands of dollars in medical bills and loss of wages. I am at the end of my emotional rope. I believe this CAN and SHOULD be corrected with diet. I do not have gallbladder and want to be as healthy as possible. First of all, did you ever get a weird feeling, goggles, anxiety, or dizziness from this? I have NEVER had these issues in my life until September and it sent me to the ER! Im on carafate and protein (PPI). I am trying to taper off of PPI by taking it every other day. I get very sick from acid rebound when I just stop since my stomach is so raw. Any suggestions? I need help ASAP.