thank you for telling me about SOD. I will definitely do some research on this dysfunction.
thank you so much for your comment. I dont feel so alone. You are right, it is so hard to get doctors to believe you when everything keeps coming up normal. But, the pain is very real and I deal with it nearly everyday. Thank you so much for telling me about Dr. Sutherland.
It sounds like SOD-Sphincter of Oddi Dysfunction. That is what I was told I have. I have the same pain you refer to, but during a 'pain attack' I was able to get labs drawn and my liver functions were extremely high. It's frustrating..I take a muscle relaxer daily for my organs. The only way my pancreas doctor says he can fix my problem is to have an ERCP with the manmonetry (measures the pressure of your bile duct) and possibly place a stent in the duct if need be. But, chances are high of getting pancreatitis from the procedure. Do a search on SOD and compare your symptoms.
You can have pancreatitis from ercps. My fiance had it and she had no positive tests for it. She also had her gb removed and that caused the problem. Her tests never showed elevated enzymes and ct scans were always normal. She eventually had her pancreas removed because of the daily pain. I am dealing with the same thing. And as of right now its hard to get the doctors to help me. Pancreatitis is a real pain in the butt to get help for. I would recommend calling Dr. Sutherland at university of Minn.
You would need your doctor to refer you but he is the best with gi problems. He was the only one who helped my fiance. He told her docs about how the pancreas can appear normal but still hurt.