Welcome to the gastroenterology community! Have any of your doctors mentioned cyclic vomiting syndrome? I would recommend seeing a gastroenterologist and talk about this. What have the doctors tried to stop this?
My son has had on-again-off-again problems with nausea (no vomiting, though) for a few years. His episodes came every 6 - 8 weeks and lasted 7 - 10 days. He was diagnosed with abdominal migraine and put on propranolol (taken daily to prevent migraine), and it worked very well. We weaned him off the propranolol after a year or so, and a year after that the nausea came back. Now he's been nauseous for 8 weeks straight and has missed a month of school. Propranolol is not supposed to stop a migraine in progress, just prevent them; we tried putting him back on during this episode but his pulse dropped too low. He was on cyproheptadine, then we switched him to amitriptyline. We see the neurologist again on Friday and plan to push for a lower dose of propranolol.
Good luck! It's awful to have your kid so sick and not know what is going on.
Thank you so much for your help - we have just read up on CVS and it does hit alot of the markers. We have finally got a course of action we might be able to look at. Your our hero.
Thank you for your thoughts. I read the comments above you and I feel like we may have a little light on the subject with CVS.
May your child find comfort - it's a hard road as a parent.