gastroparesis

[mona132]

I have a 9 year old daughter who has gastroparesis. its been over a year in a half that she has had it. She has been on almost every medication to help treat it had botox injection and still nothing works. She vomits any where from 10 to 15 times a day. She also has an NJ tube in nose for feeding nuitrents. But lately her vomiting has gotten worse plus it is so projectile when it happens. She sees a GI special list twice a month and all the tell us is to keep doing what were doing. Can anything else be done for her? I feel like my child is dying before my eyes. She can't keep any food or liquids down at all any more.

[S. Kaul, MD]

Hi there!

Well, without knowing the relevant clinical details or a detailed clinical evaluation it would be difficult to comment specifically on the situation. While in most cases where conservative/ medical/ interventional options have failed, surgical options are usually considered; these may not be preferable options in children below 12-13 years of age but may still be considered if the symptoms are a constant source of morbidity. I would suggest discussing the situation and the suggested management options in detail with her treating gastroenterologist.
Hope this is helpful.

Take care!

[mona132]

Are insurance won't pay for the procedure

[Shawe123]

I have gastroparesis also but i was fourtunate enough to only experience nausea. Im so sorry for the situation you are going through. I dont know but would the you be willing to maybe chat with her doctor about a gastric neursimulator? This has made my life amazing. Im not sure if they do it on kids her age but im sure they would if its this severe:) thanks good luck!