Glad this is helping people.
It gets better. I had the rapid HIV test (it's been 4 months since 'possible' exposure and, what do you know.... it's NEGATIVE.
It's like a mastercard advert people.
Searching the Internet for symptoms..... 100 hours
Sleepless nights 130 nights
Rapid Clinic test - 30 mins.
Result and Relief ...... PRICELESS.
I HATE wrongdiagnosis! It is allllll wrong and way off. Us who fear HIV all think the same way with the colds and random itches on the skin. I went through that and I was SO HORRIBLE. It starts to get ridiculous. You have to start saying, "ok get a grip!!" to youtself!
This is a great thread. Yes anxiety can be very powerful. I was in a low risk situation (precum in mouth...and a bit in throat). The most irritating thing is...i had dry skin on my calf and it was itchy. So I went to wrongdiagnosis.com and saw one cause for calf rash was HIV. From that point I started monitoring everything that went on in my body. Every little red spot, every tiny ache...everything was a sign of HIV in my mind.
Now I have a mildly running nose, sneeze 2-3 times a days, and have a bit of a dry cough. Do I tell myself I have a cold? No, I tell myself I have HIV. Before I even knew about the symptoms of ARS, I never paid attention to details. Now I do, and I think we all do it cause we're THAT afraid to be infected.
I can only imagine how many people have unprotected sex, have ars like symptoms 2 weeks later, and don't worry about it. And then I ask myself: Why do I need to worry? Why can't I be like that? And the only answer is: fear, I'm so afraid of having HIV that I just cannot block out the "what if's". And when I read for example...catching hiv through oral sex is 1 in 2500, it sounds to me that it's an almost 100% chance. Though I know the odds, you always wonder if you might be the exception. It's not the way to live your life.
Yeah anxiety can be a real life destroyer, looking at symptoms on the net is crazy, especially considering there are viruses out there like stomach bugs and things that mirror colds that are really unknown, symptom searching seems to always result in something major and quiet often the less likely options.
Thanks a million for sharing your thoughts, research, and personal observations. Your essay speaks volumes for all us worried souls who to seek to find answers for our strange "ailments".
You are absolute right with all that was articulated. Your post should be used as a disclaimer for those to read prior to seeking advice and/ or direction for HIV related concerns. Great job!
Stay thirst my friends.
I love that this forum is posted. I see HPV and I freak out. I find myself somehow bringing it up to see what others say about it, just to get reassurance. Numbers and letters make my stomach drop too. I have gotten better, but at one point I couldnt move from my bed. I was SO convinced I had it and I never even had an exposure. It is unbelievable what we can do to ourselves. I always say to myself "just trust yourself, you are healthy and have no health issues, u would know by now" I find it hard trusting myself, and I cannot understand why. I do seek therapy for this. She thinks that I have this obsession because I am afraid in the back of my mind I am going to somehow "destroy" myself or I am afraid I already have? That statement can say alot. I was in a horrible relationship when I got this anxiety and he was so mean and verbally abusive and I was always so afraid of what he wuld say next. So when I got an infection, that turned out to be BV, I assumed the worse, maybe because thats how I use to think when he would get mad at me.
Its crazy...But we are all here for eachother, we should start our own forum and get out of the HIV one and into the anxiety one!
Read the following - posted on the anxiety forum:
I’d like to share my story with you. I’m not really sure whether I’m expecting help or maybe I’m just hoping this writing experience to be cathartic. There are many people in similar situations to me, but as always with this kind of thing, I’m convinced my case is “unique” or different.
Firstly, let me give you a bit of background. I have always been afraid of death (an intense fear). I’ve always been a hypochondriac. I have often experienced depersonalisation and derealisation, often in relation to the “death” issue. I am not religious, and so cannot find any solace in prayer.
I have a very low opinion of myself, I have no self-confidence and am struggling with my job / finances at the moment.
I have had one or two unsafe sexual exposures in my life. I have tested for HIV out to 22 months. All negative – but with very real ongoing symptoms since the exposure. Some can be attributed to stress / anxiety. Others cannot. Too much of a coincidence, I often think.
I struggle to accept my negative results. I look for every reason as to why I shouldn’t believe them. In the process I have convinced myself that I must have CVID (lack of antibodies) causing the frequent colds, oral thrush; I have then convinced myself that I am one of the serosilent who never develop antibodies. This leads to further depersonalisation. Fear. Anxiety.
My fears with this started with me being afraid of herpes. Then syphilis. Then HIV.
If you play the numbers game, I should be statistically in the clear – but what if I’m “the one” who is unlucky that the tests missed. I don’t trust my body.
And as with anything when one is incredibly worried, everywhere I look all I see are things related to HIV – articles, numbers, letters. A shudder instantly goes through my spine. It seems too much of a coincidence – almost like destiny.
I spend hours a day looking at all the HIV forums on the internet – looking for someone in a similar situation. Looking to convince myself one way or the other. Occasionally, I go through a few months of normality before the fear sets in again. The consequences are too dangerous to just “let it go”. I can't let it go for fear of it coming back to bite me.
Of course, I was unfaithful. I told my girlfriend. But when I look in to her eyes I can’t forgive myself. I don’t want to hurt her. I hate uncertainty.
I long to go back to my childhood (or even just a few years ago). When things were simple. When life was good. I don’t want to be here. Thinking about HIV, odds, statistics and symptoms. I want to move on. I am stuck in a nightmare of my own making.
As soon as I get some clarity of thought, I can relax somewhat, but I've read so much about testing and this disease that I know too much for my mind to rest fully. If it's not the fear of what it actually could be, it's the fear of what could have been. I seem to jump between the two.
I think my problems come from a number of things, such as fear of infecting a partner, my fear of death, hypochondria and other self esteem / anxiety issues. The combination of all of these has just blown me sideways.
I think this has moved beyond simple "guilt". It has been wth me so long now that it has almost made the disease a "reality".
My gf says that the key is forgiving myself. But I can't. I need assurances that people (and science?) don't seem to be able to give me. And when they do, I take them on board for around a week before I convince myself that just because they have said something, it doesn't change my situation or how I perceive it. Bizarrely, I keep thinking that getting alternative tests (not based on antibodies) will help, yet no doubt that if they returned negative (not that I can get them where I am anyway) then I still wouldn't believe them.
Today, I've been calculating odds like crazy – working out what the chances of different scenarios, the chances that I may not have this, the chances that she doesn't have it, the chances that the tests are correct etc. I like to try and look at the numbers to help me put things into perspective. I even try to visualise them (for example, imagining a packed football stadium full of people), but again, logic does not help.
Yes,it sounds very familiar.
Searching the internet for symptoms related to HIV is futile. All it does is fuel one's anxiety. Symptoms are never a reliable indicator when it comes to HIV testing. Most people on the forum have not had a risk in contracting HIV. Those with a risk cannot judge based on symptoms. Only doctors can diagnose swollen lymph nodes and other ailments. As Teak says taking the proper test(antibody test Elisa or approved FDA rapid test) at the proper time (13 weeks after exposure) is the only way to confirm one's HIV status.
Yes, it is like your mind is connecting everything with HIV. My GF told me in the car the other day that a colleague at work has been taken to the hospital with pneumonia.
My first thought was: Oh my god, he has PCP! He must be infected too.
Probably another related side effect from this obsession: starting to plan your own suicide, googling for "what is the least painfull way to commit suicide" and the list keeps on growing.
That's some weird sick thinking isn't it? I am starting to get over it, but it is not easy.
I never thought this would happen to me, really. Well educated, always careful and now this???
Anyway, the more I read now, the more I calm down. However I still need to get rid of my obsession and I have a feeling it is moving into the right direction. Nevertheless it will take some time to heal.
I needed to tell this to someone. Thank you for listening (reading).
Thank you for this! I really need something like this. I'm worse! I see a plate number that starts with P and I say "Oh, it's a sign! I'm positive" LOL! I go back to the net and start looking for a symptom again. Thanks again for this. Helps a lot.
100% AGREE on going alone!! Thanks NurseGirl - great follow up.
Hope everyone is looking at the poll results also - kind of says it all.
Excellent post, I truly hope it helps a lot of people...as this forum is overwhelmed daily with people that have become obsessed with HIV, and convinced they have it, despite either a NO risk factor or multiple neg test results, or frequently, BOTH and it is frustrating. We recommend that people #1......LISTEN to what we have to say (have an open mind and be reasonable), #2 see their doctor for any "symptoms" they may have...and to get reassurance that they, indeed did not have a risk, or are conclusively negative, and #3...STOP searching the internet...it is the very worst thing you could do. It would be like a person with a deadly fear of snakes sitting in a snake pit all day long. Not really a great idea, right?
There is NEVER a substitution for "in-person" medical care. You can read online alll day for whatever ails you (generally speaking...not speaking of just HIV)...but until you have been seen by a health care professional, you are only guessing. And, that can lead to more trouble...as some people start "self-treating" based on info they read online.....how many posts have we read here...people poking and prodding at what they think are swollen lymph nodes....others scraping their tongue...when the new "mysterious" coating/film was there all along, they simply never had a reason to look before. Just gets into dangerous territory, and of course makes the obssession worse.
I sincerely hope that people read this thread and take it to heart. When it comes to HIV....it is NOT an easy virus to transmit.....actually it is QUITE difficult and requires basically a set of near perfect circumstances to allow for infection. There is never EVER a reason to not protect yourself when it comes to sex outside of a mutually monogamous relationship where both parties KNOW each other's status. HOWEVER, when a circumstance arises and a person feels they have had a risk...then getting a risk assessment on a site like this is a good idea.....but when you read the replies...believe them...and don't go into "panic" mode, as it will only lead to serious emotional/mental distress. Do the right thing...see your doc, get tested at the recommended times....and when you receive your conclusive result...BELIEVE IT...BANK IT, and move on.
"concerned" (OP)...I just wanted to also mention something to you about your specific situation.....anything that happens at the doctor is CONFIDENTIAL, and that relates to your GF as well. If you CHOOSE to share the info with her...or you choose to have her be a participant in your appt, then fine. As long as you are having protected sex with her until you get your STD tests back (not HIV), then you are protecting her from any risk. Personally, I would go to your GP appt alone.....it will keep you less stressed, more focused on the questions/concerns you want to share with him/her, without you worrying about what she may "hear"...or having to come up with some ridiculous excuse to salvage the moment b/c you haven't thought through how you are going to handle the situation. The time to do all of that certainly isn't at your physician's appt, in my opinion.
I'm very happy for you that you managed to find some level of peace as you go through this process...and that you realize that indeed.....99.99999% of your "worries" were based on full panic mode, and the cycle of anxiety that was only worsened by being glued to your computer 24/7.
Best of luck.
man I couldn't have said it better. I had sex with a female 6 months ago unprotected and I'm still rattled. My GF now gets a zit and I freak out, its crazy
I like this post. This was me 110%- I was SO OBSESSED with thinking I had HIV. It is just stained in my head now, I know I really don't, but I cant get it out of my head still. My therapist said to me last week "lets face it, we would know by now if u had it" LOL I have cut off my sex life and have not been active in almost 8 months! Anxiety is a killer!
General Practioner. Doctor. Sorry - hangover terminology from Australia