As a child (in the 70's), my mother was told that I had MVP. Up until 6-8 months ago, now at age 35, I am told that I in fact, do not have MVP, but that I do have Mild to Moderate Aortic Stenosis (unicuspid valve) accompanied by a Thoracic Aortic Aneurysm, measuring 4.5. I am being seen by a cardiologist at the Mayo Clinic, Jax, FL and have also had a consult with a Cardiothoracic Surgeon, for my own peace of mind. I have been told by both doctors that now is not the time for surgery, as "the risks of surgery outweigh the risks of waiting" for now. I feel like they are watching me closely - I have had an Echo and 2 MRIs (6 months apart) to establish some history and to determine if there has been any growth. The 2nd MRI showed no increase. I have low BP, but slightly elevated cholesterol (which I am working on). I am scheduled to go back in another 6 months for another MRI, and at that time, it will be determined if I need to be seen again in 6 mo, or annually.
My question is, am I at the right hospital? Seeing the right doctor? The right surgeon? Who is the best? How do I know? How do I research the surgeon - and his particular success rate in performing this surgery?
I don't know anyone personally who has gone through this. I don't know who to ask. Please help guide me. ANy suggestion on who to see and where would be wonderful.
Thank you for reading,
TRMM