Single coronary

[bubbaben]

I every one  nice to find this forum...I am a 60 year old  male who has been very atheletic  my whole life...From track and cross country  to heavy weight lifting  for  30 years.....At the age of  50 I started  really  getting tired all the time and had very little energy..so quit everything  .....Have been talking to my doctors for 10 years telling everyone who would listen that it wasnt right to feel that way.......Any how  about  three months ago I had a reaction to nyquil   that sent me to the hospital...All the symptoms were the same as a heart attack   but all the test showed  no heart attack no stroke and no nothing.....They put a great cardiologist on my  case  and it has been a wirl wind of doctors since  .....Tons of test   3 trips to Mayo  Clinic   to meet the best  ACHD  doctor anywhere( in my opinion)   They have found that I have a right coronary artery only....  My  left coronary is missing  and both my  LAD  and  CX    are both attached to opposite sides of the right coronary  Have a few more test to go at Mayo in about a week  to have a TEE  they want to check the back of my heart...They  have told me that  as of now  they dont feel they need to do any kind of surgery....I guess if I were to have a question it would be will I some day in the near future need surgery  or can people live into there  80s and  90s   with this  if treated with meds ....

[cupcake5]

hi boss I gave birth to a baby girl in sep and 12 hours later found out she had transposition of the great artery and a single right coronary artery. we were at Stanford hospital for three and a half months. We just recently got out and had a choice of going home or putting her on a heart transplant list.we decided to go home, she was so stressed out at the hospital .She has a eco on mon and depending how her heart function is doing we either stay home or go back to stanford. She is on 8 meds now. We are christian and have full faith in the Lord but sometimes I ask the whys and how did something like this happen to us. we have a healthy two year old boy so its so frustrating having a baby with a heart defect. I been wanting to meet anyone with this rare defect.

[bubbaben]

Mayo put me on 325 mg  aspirin tricor and niaspan  to keep everthing  clean of plague   also on  bystolic    indur  and  lisinopril   to keep the heart rate and blood pressure low.....Take zanax for panic attacks only  fro when i first found out......Taking it all better now    Have been told  if you made it past the age of 40  it probably  wont  kill you as long  as you keep chlo  tris  and plague  from building up...Have never had tach but know many people who have had it  and have it under control  with no other defects......Are you checked on a regular basis  like every 6 months by the doc you r seeing and do they run test   every so often just to stay on top of it.......I feel great  other than tired from the medicine  ....I  made it to 60  so cant see why i cant see 90 someday..... Stay in touch   Rich

[boss100]

Glad your wrote back, I have seen 6 cardiologist,  5 never cathed me, the last two did, only one cath in my life, found the rare congentitial heart birth defect of the single coronary artery, the tach, some days better than other, heat and cold make it worse, I take aspirin 81 mls when I remember to, but when having tach, chew up 4 to stop the tach and it works, The doctor who found my rare birth defect, could not believe it, he stated heart doctors live to see someone like me, wanted a journal , the second heart doctor, turn pale as a sheet when he watched my heart C D and and the third, was HEAD OF THE FORT GORDON HEART CENTER and he now has a grouping of heart doctors, I could have gone to MAYO in JACKSONVILLE OR DUKE IN NORTH CAROLINA, but he is the best, so why go any further, nothing can be done to change it, so I learned to live with it, had a terrible tach on Sat. taking an anitbiotic which kicked my tach in pretty bad, but got over it, I do have to some days pace myself and some days I go like the Energizer Bunny, Winter is my best time, I have less tach, winter here is mild, so never gets extremely cold, so I love winter. I would like to ask you, what are they giving you for the blood pressure, for I was put on NORVASC and had severe reaction, cardizem, had reaction, so now I take a just the 0.5 zanax  to lower pressure,  and walk, stay away from salt, I am person who believes food is your medicine, if all possible, I believe food heals, and food can kill you, so make the best selections and take food to heal all. I don't take the zanax unless absolutely can't get out of the tach, I believe food will heal any disease, and I have never taken the flu shot, have not had a cold in years and years, and years, the flu about 15 years ago, I think, believe in prayer and God, FOOD is medicine, if used right, love is another medicine, and meditation, harmony of the soul, with GOD and self heals more than you ever could get from a doctor, do you feel speical, I do, just being alive with what we have is a miracle, angry though sometimes, when in tach, but my thorn in the flesh keeps me closer to GOD, as Paul's thorn did, definitely a reason for both of us to be here, with such a rare heart. You are the first person in all the years I have searched the web to find someone like me, so you see, it is very rare. Tiredness can be depression, or not eating the right foods, B12  FOODS, eat plenty of them, and get wheat germ and eat it on everything, I do. I try organic foods mostly,  field peas, Southern style with olive oil, live on olive oil, lots of okra, you have to do something to get something, I always say, if you are overweight, you do without something, and underweight, you get something you need, the heart, oh it will always be the way it is, but just to know it functions like a normal heart for blood and oxygen, is so great, I do have the lungs of a man, where my heart lacked, my lungs developed larger as a woman, so  the body does compensate, how marvelous, the hot flashes are horrible, which I have learned what triggers them, so stay away from certain foods, just have to get in harmony with all your body tells, you, stress is killing the world, and making a buck is killing  the world, but here in the South we go slow, like turtles, one thing about here, you can drive for miles and never see a human being, deer, sure, humans no. But enough babbling, Had a C T SCAN two years ago, the doctor is still so amazed, still, what a heart, what a wonderful heart, he still states how rare I am. So we are two of kind, got me on a bad day, when I wrote first time, happiness and clown, must of the time, but some days, pray I make it through the tach spells, but hey. we have to sunshine with the rain, the tach days, makes me closer to the Lord. which ain't bad at all.
Keep me posted, on your rare heart and I will keep you posted on mine, God bless.

[bubbaben]

Read your post ..I trully did not know it was that rare....The doctors I have  seen at Mayo  said  rare but I thought all coronary anomolies were rare....  Sorry to hear   what you r going thru....I do not have any v-tach  that has ever been documented  and just have mild  angina  occasionally.They have me on pills to lower the heart rate and more to lower the blood pressure which all seem to be working  plus 325 of aspirin and tricor for my tris which r high...I dont know where you see a doctor at  but I would hope it is at a good  adult congenital heart disease hospital....I have been getting tired for 20 years now and they tell me it has nothing to do with my heart....Please feel free to write back....Rich

[boss100]

I have the same as bubbaben, single coronary artery, no LEFT, rare congentitial heart birth defect, did not know until 8 years ago when had funny feelings in chest and went to emergency room, was cathed and found, I had though heart palpitations, rapid hearbeat spells, and I was told it was so rare they wanted to do a journal on me, I would not allow it, I have reactions to beta blockers so I only take aspirin, I am a female 58 years old, I wake up in tach every day, live with spasms of the heart, and take nothing, bue a xanax.0.05 for the spasms, I have been told it is very rare, I have not found anyone like me until I found this website with bubbaben, I was told you can live long with what I have, but some days I would disagree with that, for the spells I have are not easy to get through the rapid heartbeat of tach, is very scary. I am glad to know I am not alone, now, I cannot take high heat, or extreme cold weather, I must rest when I am tired I was told not to push myself above a certain level of work, I have not listened to my heart doctor, I do what I want,but pay later, I never had a problem as a child or teenager or in my 30 or 40's began in my 50, change of life is making my heart palpitations horrible, NO HORMONES, they will not give them to me because they can cause heart attacks, so have to suffer through these hellish hot flashes. I wanted to have a right coronary put in, there is NO SUCH SURGERY AVAILABLE, I have been told, and that I am getting sufficient blood and oxygen flow, I beg to differ some days with that also. but I work legal and have much stress, so may be the cause, I hate having this, I am angry I have this, I have never heard of anyone with this until I read bubbaben's comments, I know I have horrible tach spells, I would wish on no one, and I know that just knowing I had this makes me know do I only half the life span of others, even the doctors don't really know,AT LEAST I THINK SO, what to do with me, they play it by ear, they say DON'T GET OVERTIRED, because anomalies have been associated with SUDDEN DEATH SYNDROME, I live from day to day, that all any of can do, I am a CHRISTIAN, still angry though that I have this, always asking WHY ME?  a pity trip I guess.  Boss100

[bubbaben]

in Mayos defense  the info that I posted yesterday was done about 3 weeks ago  but I got a copy  recently when I saw my local cadio guy...Head for Mayo on Thurs.. for the TEE  so shoould have all the info I need...  I think most of my problems were with fear   Knowing I had something wrong but not being educated enough to know what it was .....I thank youfor all the info  and if anything changes in the future I will post...Rich