Aa
can someone clarify
I keep on going off track and so my real questions dont get answered, so I am going to try this again, but without the other issues.
My husband has
Paroxysmal Afib--I know the AFIB is an irregular heartbeat but what does the Paroxysmal mean?
Chest pain, mild diffuse (?) CAD (?) in LAD (?) and CCX (?) cath 8/2005 (cath the heart?)
Chronic granulomatous disease in lungs(1st seen on an xray while in the Navy..not sure about this either, told not to worry about it but just what is it? and does it effect his health? he gets pain from it at times, and wheezing, but again, I was told not to be concerned. Not sure if its because so many other serious things going on this is bottom of the list.
Hypertrophic Cardiomyopathy, predominantly septum an apex..( I know this is a thickened heart, I was told it was genetic..his dad died at 52 (his age) of congestive heart failure BUT, does it mean it is only thick in some areas? can it be reversed or only controled due to the other isssues..I am thinking control is the only thing...they keep his blood pressure low so his heart doesn't work so hard to pump the blood and have him on blood thinners as well.)
Mild MR (Mitral Regurgatation) will this make his Cardiomyopathy worse..should I ask about it being fixed if it even can be fixed? I have read in here where some have this and have surgery to repair it...can this be another reason he is always in A-fib? Also, I have read in here that once in A-Fib for a long time it is very very hard to get out of it.
Heart failure, but no heart attack..takes Lasix 20mg 1 X day to keep under control....I watch his hands, feet, ankles ect for swelling...seems to be working..but with his other condtions will this always be an issue and will it be progressive?
He does not do well in A-fib at all.....sleeping all the time, dizzy, lightheaded ect...went into sinus while at the VA host for a week,,,,he started improving from his masive stroke...everyone was so surprised...then a week later back to A-fib...and sleeping again...
I am very interested in learning more about the proceedure to surgical correct the a-fib...please,,,anyone with a link or anything ..he has a Cardiology appnt next week at the VA and I want to be prepared with all the right questions..He takes 120mg 2 X day of Sotalol, for his heart,,they stopped the Toprol as his blood pressure was just way to low and couldnt keep his eyes open but for 10-15min at a time....Not sure why he is on this drug as it is not helping his A-fib...cardioversions have worked but the drugs to keep it in sinus failed ..so I guess he failed several cardio versions and the last one he had he stroked a few days later..so ...I dont think we will try that again.
Cerebral artery stroke
Chronic back pain
Thanks so much for anything you can share, I really feel I need to be better prepared this visit with his doctor..
My husband has
Paroxysmal Afib--I know the AFIB is an irregular heartbeat but what does the Paroxysmal mean?
Chest pain, mild diffuse (?) CAD (?) in LAD (?) and CCX (?) cath 8/2005 (cath the heart?)
Chronic granulomatous disease in lungs(1st seen on an xray while in the Navy..not sure about this either, told not to worry about it but just what is it? and does it effect his health? he gets pain from it at times, and wheezing, but again, I was told not to be concerned. Not sure if its because so many other serious things going on this is bottom of the list.
Hypertrophic Cardiomyopathy, predominantly septum an apex..( I know this is a thickened heart, I was told it was genetic..his dad died at 52 (his age) of congestive heart failure BUT, does it mean it is only thick in some areas? can it be reversed or only controled due to the other isssues..I am thinking control is the only thing...they keep his blood pressure low so his heart doesn't work so hard to pump the blood and have him on blood thinners as well.)
Mild MR (Mitral Regurgatation) will this make his Cardiomyopathy worse..should I ask about it being fixed if it even can be fixed? I have read in here where some have this and have surgery to repair it...can this be another reason he is always in A-fib? Also, I have read in here that once in A-Fib for a long time it is very very hard to get out of it.
Heart failure, but no heart attack..takes Lasix 20mg 1 X day to keep under control....I watch his hands, feet, ankles ect for swelling...seems to be working..but with his other condtions will this always be an issue and will it be progressive?
He does not do well in A-fib at all.....sleeping all the time, dizzy, lightheaded ect...went into sinus while at the VA host for a week,,,,he started improving from his masive stroke...everyone was so surprised...then a week later back to A-fib...and sleeping again...
I am very interested in learning more about the proceedure to surgical correct the a-fib...please,,,anyone with a link or anything ..he has a Cardiology appnt next week at the VA and I want to be prepared with all the right questions..He takes 120mg 2 X day of Sotalol, for his heart,,they stopped the Toprol as his blood pressure was just way to low and couldnt keep his eyes open but for 10-15min at a time....Not sure why he is on this drug as it is not helping his A-fib...cardioversions have worked but the drugs to keep it in sinus failed ..so I guess he failed several cardio versions and the last one he had he stroked a few days later..so ...I dont think we will try that again.
Cerebral artery stroke
Chronic back pain
Thanks so much for anything you can share, I really feel I need to be better prepared this visit with his doctor..
hi, and thanks I will google it...just got back from the ER..he could not urinate for over 20 hrs..they gave him IV fluids,,then he went..yippie..took all day...he was dehydrated..not sure how...I gave him ice water all day long yest..sigh....I give him all his meds..he can brush his teeth, comb his hair,,,,ummmmm....eat, drink,,,,,help in his transfers most of the time...when he cant ...that 135lbs is more like a ton..lol....the part of his brain that would put this all together is not all together...so although it upsets him to be in this condtion...he can easily be brought to laughter.....I keep him going with both our dogs..make jokes when I am not pooped out...his long term memory is really great..short term is shot....for the most part..he is content..not happy mind you..but content..which means, I feel this more than him...he doesn't realize just how much I miss him every single day.....I watch for glimpes of him..and when I do..I get so dam happy....and he and I laugh at stupid things together....ever while in the ER...nurses and doc couldnt believe it...How I got him laughing....dam..I would be crying to death..but...lucky him...he gets it..but he doesnt get it at the same time....so....I always say...it could be worse....and I believe that and always will.....
thanks for the google tip.
Cheryl
thanks for the google tip.
Cheryl
The Coumadin thing can be really annoying. You do your best and then the INR can still be way off. Some of the things that have wreaked havoc with mine are: antibiotics, which has thrown it waaay off; even one dose of Advil/Ibuprofen; and many foods like licorice that would never occur to me as interacting with Coumadin. You might want to google interactions with Coumadin/Warfarin and see if there are any surprise interactions. Is he taking it himself or are you giving him the proper dose yourself? It is easy to get confused if the dose is always changing, and I think you said he sleeps a lot. Just a thought....
Thank you tony..his afib is fast..the paper I got this list from is prior to his stroke..so I guess he no longer is occasionally in afib ..last 8 months had about 1 week of sinus..I did not realize he had Coronary Artery Desease ..not sure what that means with all else he has and how bad it is..so it will be a good question for the doc..also to see if he is a candidate for rf ablation ...he may not be considering his other issues..but at least I will know what I am talking about..thank you very much for your time.
Cheryl
Cheryl
Paroxysmal = occasional. In other words he slips into and out of afib on his own This is an early stage of afib. A later stage is chronic afib requiring an (electro)cardioveron to return to normal sinus rhythm. If he has PAT, there probably isn't extensive remodeling going on (even so, afib begets more afib).
LAD = Left Anterior Descending Artery
CAD = Coronary Artery Desease
CCX = Circumflex Artery
cath the heart = introduce a catheter at the groin into the femoral artery. The catheter is snaked through the artery to the heart where it releases a dye so that the coronary arteries can better be visualized and imaged by x-rays.
One procedure for dealing with afib is another catheter procedure called an rf ablation (actually also called a pulmonary vein isolation). Again, the cath is snaked to the heart and the tip emits radio frequency energy that burns away rsmall egions of the heart that are the source of the stray electrical signals triggering afib. In the PVI, a circular scar is burned around the entrance to the pulmonary vein as it connects to the atrium (most PACs originate in the pulmonaries). Pacemakers usually don't work well to pace one out of afib (since the afib rate is usually very fast). However, some afib patients have pacemakers to speed up their normal sinus rhythm because their meds controlling afib tend to slow the heart rate dframatically.
LAD = Left Anterior Descending Artery
CAD = Coronary Artery Desease
CCX = Circumflex Artery
cath the heart = introduce a catheter at the groin into the femoral artery. The catheter is snaked through the artery to the heart where it releases a dye so that the coronary arteries can better be visualized and imaged by x-rays.
One procedure for dealing with afib is another catheter procedure called an rf ablation (actually also called a pulmonary vein isolation). Again, the cath is snaked to the heart and the tip emits radio frequency energy that burns away rsmall egions of the heart that are the source of the stray electrical signals triggering afib. In the PVI, a circular scar is burned around the entrance to the pulmonary vein as it connects to the atrium (most PACs originate in the pulmonaries). Pacemakers usually don't work well to pace one out of afib (since the afib rate is usually very fast). However, some afib patients have pacemakers to speed up their normal sinus rhythm because their meds controlling afib tend to slow the heart rate dframatically.
also, not lookin for advice..tryin to figure out exactly what is wrong with him...and options he may or may not have...I dont quite understand his heart issues..they are all in 3 letter caps...I dont get it...I see a lot use that abreviation but I dont know what it means...so I cant go and look it up somewhere
Thanks...he doesnt eat much of anything at all...I make his foods, I buy fresh or frozen...rarely a can is even opened in this house except dog food...which I dont feed to him..hee hee....he does not urinate well..in fact the nurse just left and the VA is coming in to cath him to get his urine..been about 17hrs...he is not swollen anywhere...but does dehydrate quick....no salt on food ...he has become senisitve to it as well..taste buds are off...
very little per week of lettuce..thats it for leafy...
he takes coumadin..was on it when he stroked...lowest in a year was 1.9...they like him to be at 2.5..today he was at 2 after being at 4.8 or so 2 days ago..
I just dont understand all the medical wording...what it means...what to expect.ect...
Thanks
very little per week of lettuce..thats it for leafy...
he takes coumadin..was on it when he stroked...lowest in a year was 1.9...they like him to be at 2.5..today he was at 2 after being at 4.8 or so 2 days ago..
I just dont understand all the medical wording...what it means...what to expect.ect...
Thanks
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