Aa
neurally mediated syncope :(
I've lived with neurally mediated syncope for many years now. I'm nearly 20 and it started when I was 12. I'm really needing an opinion on what to do. I AM about to go back to my heart doctor to look at different treatments because the use of a beta blocker w/ an antidepressant combo treatment didn't make any difference a few years ago. I want to know what kind of sure treatments there are as I really can't live like this. My symptoms include, lightheaded all the time, headaches, hot flashes, sweats, chills, severe migraines, ringing in the ears, hard beating heart, fogginess of mind, panic, anxiety... PLEASE HELP!!
are you serious or kidding? How easy would it be to get a doctor to get you one and how much do you pay? does insurance cover any of it.
Also i had another question. How does alcohol affect this syncope stuff because I drink often. Also, it seems like if i lay down and read, i get the lightheadedness more and when I'm moving about, I get the hot flashes... Any ideas? And does anybody know if this condition is life threatening or does damage to the heart over time and decrease life expectancy? Thanks.
Also i had another question. How does alcohol affect this syncope stuff because I drink often. Also, it seems like if i lay down and read, i get the lightheadedness more and when I'm moving about, I get the hot flashes... Any ideas? And does anybody know if this condition is life threatening or does damage to the heart over time and decrease life expectancy? Thanks.
The pacemaker response was an attempt at a "joke."
My dad has had a pacemaker for years and I do know that it was placed because of a slow heartbeat. I don't think you could "convince" your doctor to give you one. A responsible doctor will insert one IF you need one.
Typically, health insurance will consider payment on pacemakers.
As for whether alcohol plays a role, it would be pretty easy to find out....Try going without and see if you notice a differnce. Have you seen a cardiologist? What have they ruled out?
My dad has had a pacemaker for years and I do know that it was placed because of a slow heartbeat. I don't think you could "convince" your doctor to give you one. A responsible doctor will insert one IF you need one.
Typically, health insurance will consider payment on pacemakers.
As for whether alcohol plays a role, it would be pretty easy to find out....Try going without and see if you notice a differnce. Have you seen a cardiologist? What have they ruled out?
is there any real doctors on here to answers questions fully for you?? You guys haven't answered any of my questions. I just want other opinions, so I don't have to drive around to 80 different doctors, getting opinions...
well, well! Humph! You can post post on the area above this site, and ask a real doctor.....sorry to let you down.............maybe 80 doctors will not be enough!
This is obviously a patient to patient forum. You typed about 12 lines with very little real information and get huffy for not being diagnosed and cured in six simple responses. I gave you MY opinion, get off your duff and go to a doctor. Until you know where your problem actually lies it is useless to try to solve it.
Given the information you provided, I only felt comfortable giving you a few suggestions. For example:
Q1) How easy would it be to get a doctor to get you one?
A1) I know pacemakers are not something you can ask for, you have to need one for medical reasons. I don't think you could "convince" your doctor to give you one. A responsible doctor will insert one IF you need one.
Q2) Also i had another question. How does alcohol affect this syncope stuff because I drink often. Also, it seems like if i lay down and read, i get the lightheadedness more and when I'm moving about, I get the hot flashes... Any ideas?
A2) As for whether alcohol plays a role, it would be pretty easy to find out....Try going without and see if you notice a differnce.
Q3) ...and how much do you pay? does insurance cover any of it.
A3) Typically, health insurance will consider payment on pacemakers. You could consult your insurance carrier to verify coverage for a "medically necessary pacemaker."
Q4) And does anybody know if this condition is life threatening or does damage to the heart over time and decrease life expectancy?
A4) I didn't respond to this question as I do not feel in any way qualified to respond. This is best answered by your doctor.
In addition, you said, "I want to know what kind of sure treatments there are as I really can't live like this. My symptoms include, lightheaded all the time, headaches, hot flashes, sweats, chills, severe migraines, ringing in the ears, hard beating heart, fogginess of mind, panic, anxiety... "
From what I have read, the symptoms you describe when associated with neurally mediated syncope are generally treated with behavior modification, medication and/or a pacemaker in some cases. Have you had a tilt table test? Has your doctor discussed other treatment options with you in the event the first line treatment does/didn't work?
One word of advice (once a "mom"......always a "mom") - We are here to talk to, share information with, befriend, ask questions, laugh and vent with. We are not doctors, just a group of folks that share common situations, symptoms, diagnoses, fears, etc. We do our best to help, but don't have anywhere near all of life's answers. Before you lash out at people trying to help, consider why we're all here....We all have our reasons, some are looking for answers, some are seeking support, some want to share what they've learned, and others may be just stopping by to make a few new friends.
Hope it's a great day! Hope your doctor is able to provide the answers you are looking for....feel better soon.
Have you seen a cardiologist? What have they ruled out?
Q1) How easy would it be to get a doctor to get you one?
A1) I know pacemakers are not something you can ask for, you have to need one for medical reasons. I don't think you could "convince" your doctor to give you one. A responsible doctor will insert one IF you need one.
Q2) Also i had another question. How does alcohol affect this syncope stuff because I drink often. Also, it seems like if i lay down and read, i get the lightheadedness more and when I'm moving about, I get the hot flashes... Any ideas?
A2) As for whether alcohol plays a role, it would be pretty easy to find out....Try going without and see if you notice a differnce.
Q3) ...and how much do you pay? does insurance cover any of it.
A3) Typically, health insurance will consider payment on pacemakers. You could consult your insurance carrier to verify coverage for a "medically necessary pacemaker."
Q4) And does anybody know if this condition is life threatening or does damage to the heart over time and decrease life expectancy?
A4) I didn't respond to this question as I do not feel in any way qualified to respond. This is best answered by your doctor.
In addition, you said, "I want to know what kind of sure treatments there are as I really can't live like this. My symptoms include, lightheaded all the time, headaches, hot flashes, sweats, chills, severe migraines, ringing in the ears, hard beating heart, fogginess of mind, panic, anxiety... "
From what I have read, the symptoms you describe when associated with neurally mediated syncope are generally treated with behavior modification, medication and/or a pacemaker in some cases. Have you had a tilt table test? Has your doctor discussed other treatment options with you in the event the first line treatment does/didn't work?
One word of advice (once a "mom"......always a "mom") - We are here to talk to, share information with, befriend, ask questions, laugh and vent with. We are not doctors, just a group of folks that share common situations, symptoms, diagnoses, fears, etc. We do our best to help, but don't have anywhere near all of life's answers. Before you lash out at people trying to help, consider why we're all here....We all have our reasons, some are looking for answers, some are seeking support, some want to share what they've learned, and others may be just stopping by to make a few new friends.
Hope it's a great day! Hope your doctor is able to provide the answers you are looking for....feel better soon.
Have you seen a cardiologist? What have they ruled out?
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