I have had NCS since I was 3 but not diagonsed until I was 21. They tried me on beta blockers with not luck so I quit them. My triggers are nausea, vomiting and heat. I have just finished my 1st trimester of pregnancy and have had 3 episodes of fainting and convulsing. I'm deathly afraid of continuing my pregnancy and dread what delivery will bring. My episodes in pregnancy seem random to me. I was very encouraged by the fact that there are others of you with this condition, thought I was alone. I would love to hear any other ideas as to try to prepare myself for what is ahead and maybe get to enjoy this a little.
My name is Heather and I am 35 years old. I have a wonderful 38 month old daughter. I have been diagnosised with NCS, after the birth of my daughter and I have a ton of other medical issues from a 10 year old car accident. I was on 300mg of inderal (bata blocker) but have since stopped since that is a high dose for a person of a 100 pounds and my kidney and liver functions started to suffer. Plus these drugs are not pregnancy approved. I went to the OB to see if I could have a second child and I was stunned by the response....."adopt." The OB's reasoning was that I would be on bed rest and I was high risk the first time and deliveres 6 weeks early. Plus, I sent additional 9 days in the hospital post labor. Due to spinal swelling I am not allowed any labor drugs or epidurals. I lost alot of blood and close to passing out a few times during my labor, which luckly was only 3 hours long from strat to finish. I know there is dangers to the mother has anymone heard of the fetus getting lack of oxygen during these attacks, and has anyone had a child that has suffered injury due to the condition? My doctor said it was a much higher risk then a non NCS pregnanc and that the fetus could receive brain damage from lack of oxygen.
I am 31 years old and started experiencing symptoms at age 13 and had a blackout event every few years and I was almost always standing. I thought I had low blood sugar until it happened a few hours after lunch years back. My family docs. ran all the tests and never diagnosed anything. Then when I was 29 I blacked out sitting at a table in a Panera Bread and I was kinda freeked out and wordied about driving risks. My new family doc referred me to the cardiologist and I tested positive on a tilt table test after 3 minutes. They prescribed low dose betta blockers, but I never took them because my events were not very frequent. However, I am 20 weeks pregnant and I had an event during work this week and now I am wondering if I should be cocerened. I was well hydrated and ate something 30 minutes earlier. My first trimester I spent many mornings laying down b/c I was too dizzy to get up and I had trouble getting enough food and fluids due to morning sickness. Any suggestions??? My OB didn't seemed concerned when I told her that I had low blood pressure issues during our first visit. If I am able to manage okay through pregnancy, should I be concerned about delviery????
THANK GOD there are others like me, im 18 years old and on xmas day 2008 i found i was pregnant, and since then i have had alot of fainting spells[ i used to get them four-five times a week ] but now i get it CONSTANTLY , i was diagnosed with NCS about a week ago and they said that the way things are now, it will only get worse, they really want me to be on permanent bed rest and told me that i should not risk getting pregnant again after this child, will i try to get pregnant? no..but if it happens, ill face every challenge again... im due september 1st of 09 and i cant wait for the day to come when i can meet my beautiful child
I am 30 years old and I was diagnosed with NCS around the age of 24. I was symptomatic at about ten years old but everyone blew me off until I got older and really started to complain. I have two children nine years apart and I am expecting another in January of 2010. My first time around my pregnancy and delivery were pretty uneventful even with an epidural that did not work. I was not so lucky with my son who is now almost two. I was told to NEVER get pregnant again but oops...During my last pregnancy I experienced preterm labor at 31 weeks and was put on bedrest I had my son three weeks early. The delivery was a nightmare I tried another epidural and it did not work again so the doctor moved it. As soon as it was moved my blood pressure, heart rate and oxygen bottomed out. I kept passing out and they would bring me back long enough to push and I would get one push out and out I would go again. I am very afraid this time, I have been taken off all of my meds and I am symptomatic but it is not real bad yet although my first few weeks off meds were bad. I am so scared and nervous about this pregnancy but more so about my delivery. I have seen three doctors to this point because I was labeled high risk then told I was not high risk but rather high maintenance. My NCS is considered a "complex problem" so no doctor wants to take me on. If anyone has any advice that would be great.
Hello All. I am 33 weeks pregnant and have just been diagnosed. (Although we are still waiting on the tilt table test which can't be done while pregnant). During my first pregnancy I experienced symptoms which I thought were bad...but have realized in this second pregnancy that I was lucky then. I see a high risk OB, a pulmonologist, and a cardiologist. I pass out several times a day. Experience blood pressure as low as 60/40, a heart rate as high as 161, and my pulse ox hovers around 85% causing me to be on oxygen. Our baby has stopped growing due to the lack of oxygen I experienced for 30weeks before we could get a doctor to take us seriously. (We go in a gain Oct. 5th to have him measured). We will NOT be having anymore children. My husband actually gets his vasectomy this Friday. This has been a terrifiing conditoin for me. I am scheduled to deliver via C Section (which was bumpy with my daughter). I have extreme anxiety about dying.