I'm sorry I don't have much to add re: your husband's condition, but for both of you, most hospitals have social workers on staff who can help you in a variety of ways, from patient education to home care. When I was growing up with rheumatoid arthritis, a hospital social worker even helped me find college money through state programs. Just ask - having someone to at least talk to will be a huge help. Maybe he or she can find you a support group. Gook luck! [[hugs]]
I can't answer your question but you shouldn't have to come here for your answers, and this is one of many things that aggravates me with the medical profession. They should have fully informed you of everything. Call or make an appt. with whomever you need to speak with regarding your husband's health, his cardiologist would be a good place to start. Hospitals normally have a department strictly for handling transplants, go to them and get answers. Go to the hospital administrator and let him/her know your concerns. You and your husband deserve to know what you're facing, and what to expect, don't let the medical profession ignore you. They are working for you, demand answers and keep going until somebody answers them. I always start at the top for fast results. Good luck to you and your husband, I know how difficult this is. Take care.....