I learned I have A-Fib the beginning of January, had a successful cardio-vert (after a TEE to determine the lack of blood clots)and was started on Sotalol and Coumadin . I had a routine visit with Heart failure specialist on Feb.3, EKG showed I was in A-Fib. they said I was fine and to go ahead with trip to Mexico for a week's vacation. We returned Wed., the 25th; did well on trip and walking through airports. Thurs. i was out of breath walking 200 feet. Thurs. night had severe "cllunking" for well over an hour. Fri. saw the E.P. who interrogated my Resynchronization Device (like a pacemaker) and the readout showed I had been in& out of A-Fib since Feb.3. He reported that my ejection fraction was going down. Discontinued Sotalol. Scheduled another cardio-vert for this Wed Mar 4, and will start on Tikosyn and be monitored in hospital for 2-3 days. Also said I would need to be on Digoxin and would fax that Rx in.... he "forgot".....I called the service Sat.& Dr. in surgery his PA said he would call back in 2 hours.... but I didn't hear from him. Today I learned he called it in, but didn't notify me, the pharmacy did.
The P.A. said A-Fib was a "nuisance" not dangerous.....with heart failure it is dangerous, is it not? So I am concerned with them letting me go while in A-Fib throughout Feb., and then 5 more days this week....is this typical? Am I just being paranoid about this? There is a Heart Rhythm clinic in Portland that I am considering calling for a 2nd opiinion. I have had PSVT for over 10 years, left bundle block, PVC's, leaky mitral valve, and then developed Heart Failure. i had 2 ablations in the nineties which were ineffective, and they said my heart wall was too thin to do another. This new EP suggested another ablation, but I am very leery of that. I know technology has changed in the past 15 years and have read about the MiniMaze procedure. I am concerned aobut being on tikosyn with such scary side effect (cardiac arrest), but do have an implanted defibrillator to protect me.....all this to say...HELP!!!! Is this what is typical treatment?.....should I be concerned about the "nuisance" comment and "forgetting" to call in a Rx ?
I've read that Digoxin isn't used so much anymore and takes 2 weeks to be effective & can cause permanent A-fib.....is anyone on Digoxin with good results? should I be concerned about being sent home while in A-Fib througout Feb and then for these past 5 days? (the latter is my biggest worry that they are not taking this seriously enough.)
Sorry this is so long.....I'll be able to shorten things up in the future!!