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ANYBODY WITHOUT A MENU, READ ON. IF YOU FEEL GOOD, DO NOT READ!!
Well, I'd give a MENU of what I ate when I was on tx, but going for two and three days without eating from nauseau makes for a short list, this all happening after tx for 12 weeks. And now, it is happening again with cirohissis. Oh, I forgot, this is not the place for me to share my own experiences, lest I scare someone with my perspective, truthful as it is.
My anger is going to show, but I'm not caring too much right now, the undeniable, sad freakin fact is thtsome of us today will be non-responders in a year. I'm so damn sorry about that, but truth is truth, and I damn sure you hope all treat them better than this weeks chastisment about sharing the frustration and trught of treatment or sharing pollyanna lectures bout how any of us SHOULD be posting.
My Own, your daily menu was great, especially for anyone having a great time with side effects. But what the hell are you doing for sympathy for those folks who do NOT have as easy time as you? You give as good as you get, girl. I am frustrated badly right now, not for your good luck, but those folks, sick, looking for help and encouragement. Do you offer that in your menu? I couldn't find it. Find a dictionary , lood up sympathy and EMPATHY, girl. And then praise god that you are having the luck you are. But never forget one minute that you are lucky and there are soo many folks out there suffering. If somebody figures out the correct pc balance in posting, please let me know. Because it ain't happenning now.
Bent Willow
My anger is going to show, but I'm not caring too much right now, the undeniable, sad freakin fact is thtsome of us today will be non-responders in a year. I'm so damn sorry about that, but truth is truth, and I damn sure you hope all treat them better than this weeks chastisment about sharing the frustration and trught of treatment or sharing pollyanna lectures bout how any of us SHOULD be posting.
My Own, your daily menu was great, especially for anyone having a great time with side effects. But what the hell are you doing for sympathy for those folks who do NOT have as easy time as you? You give as good as you get, girl. I am frustrated badly right now, not for your good luck, but those folks, sick, looking for help and encouragement. Do you offer that in your menu? I couldn't find it. Find a dictionary , lood up sympathy and EMPATHY, girl. And then praise god that you are having the luck you are. But never forget one minute that you are lucky and there are soo many folks out there suffering. If somebody figures out the correct pc balance in posting, please let me know. Because it ain't happenning now.
Bent Willow
I am so grateful when people post how tx effects them. I think it is important to hear it all. I know I have been blessed not to suffer much through tx, and I count my blessings everyday cause I know at any moment it can change. And if it does I know I can come here and many will understand it. I dont think people should feel like the should not post the negative, thats what this place is about. This is a support forum good & bad.
I also realized though I may not suffer much, hubby starting soon and he may suffer (cr.p shoot) and I will come here for advise for him as well.
I am sorry for all of you have suffered and feel free to vent at anytime, at the very least say what you feel!
I also realized though I may not suffer much, hubby starting soon and he may suffer (cr.p shoot) and I will come here for advise for him as well.
I am sorry for all of you have suffered and feel free to vent at anytime, at the very least say what you feel!
I am really glad you brought this up. It does seem these days that the testimonies of the ones having a rough time (like I did) are to be ignored and discarded...like, "well because thats not what happened to me it just doesn't happen" But the sad truth of the matter is, it does...more often than not or the sx (and percentages) wouldn't be listed in the RX and nobody would need this forum. Thats all there is to it. TX can really bite poo.
Hi Willows,,,I felt bad after reading your post today because I know how scared you must be. You are right,,,many will be non-responders to the tx but those that are,,,,are also aware monitoring their blood work,,,liver etc and staying on top of things. Those that treat,,,I feel that it has still helped the liver and maybe set back a stage so its not all a lost cause.
Those that have no sides,,,yes,,,you would love to be in their shoes or ring their necks lol especially if you are having a hard time. Honestly,,I can't think of very many that have breezed through tx with no sides the whole time. My husband also started same time I did and first few weeks,,,he said he could hardly tell he was on meds and I was having not terrible sides but could feel it,,,the fatigue,,nausea and general not up to par but then it reversed,,,,All the sudden he was hit with fatigue and got an ear infection that took forever to clear. So alot of times,,,those that start out with nothing,,,get it later stages and vice versus.
I love your posts here and you seem like a very strong lady so that bent willow,,,I'm sure soon will be standing tall again and ready to go! This disease does that to all of us and can be very frustrating at times! Hang in there,,,Your time will be coming up!! Hope you are feeling better soon!
Those that have no sides,,,yes,,,you would love to be in their shoes or ring their necks lol especially if you are having a hard time. Honestly,,I can't think of very many that have breezed through tx with no sides the whole time. My husband also started same time I did and first few weeks,,,he said he could hardly tell he was on meds and I was having not terrible sides but could feel it,,,the fatigue,,nausea and general not up to par but then it reversed,,,,All the sudden he was hit with fatigue and got an ear infection that took forever to clear. So alot of times,,,those that start out with nothing,,,get it later stages and vice versus.
I love your posts here and you seem like a very strong lady so that bent willow,,,I'm sure soon will be standing tall again and ready to go! This disease does that to all of us and can be very frustrating at times! Hang in there,,,Your time will be coming up!! Hope you are feeling better soon!
Jim, just so you know, as far as following any posts between willow and myself, there hasn't been any except what you read in the sx post of 1/7. When I sensed willows infered that I wanted people to 'sugar coat' (his word not mine),and I commented on it to him, several commented saying that what he said had 'nothing to do with my post. sx 1/7/07.
I think NOW it is very clear that it had 'everything' to do with my post and it bothers him to read my posts for what ever reason. I feel sad for him, I do. My intent for my posts were/are to help the 'ones in waiting'. Several on site have mentioned that my posts HAVE DONE JUST THAT. Aquarius is one.So even if she was the only one, it was worth posting, because it helped her. When I said I wouldn't post anymore, (as if I should be made to feel ashamed that I feel ok 'thus far'), several people said, 'no please keep posting.' Again, the 'audience' I am try ing to target 'I AM' reaching, (those in waiting to tx.)I can only speak from experience and this has been my experience thus far. I am supposed to lend support in what ever way I can. If it was that I had experience with nausea and someone asked what to do, i would lend a helping hand.
I only wish that others besides Rocker posted that they were doing well before I started. I know that there are others out there, Big bloc just completed 48 weeks, basically sailed through and I just found out. It would help us who are shakin' in our boots before tx, if ALL those who are doing okay to let us know 'during their ride'. I cancelled all my church gigs(musician) for the next 6 months because I thought I was going to be sick as a dog,,,which CAN and DOES happen.I am not saying people are lying or stretching the truth. But I really thought that EVERYONE goes through hell, no exception, but Rocker because thats all I saw.
Susan has had tx 7 times and at one time mentioned she didn't want to discourage anyone and was going to leave the forum for a while.I posted to her and told her what an encouragement she is(and I've done that more than once)to the forum because of her inner strength that she exhibits.She has had a very difficult time and her posts I do NOT find negative, but truthful, as to her own experience, but not only truthful, they are an encouragement to me as I see Susan as one who perserveres and had shown a wonderful attitude in such trying times that she has gone through.
As far as Willows, he was the one who started this 'sugar coat,' phrase and trying to give the impression that I don't want to hear any negatives. Thats beyond ridiculous.
I do sense he (or she, sorry don't know)is bitter which can happen to anyone, but the ones on board that have experience in dealing with someone who has hurt and pain (and I can fully understand and do sincerly sympathize )should not enable someone to stay in this mind set. Without hope, life is difficult and a person suffering from anger and bitterness left alone is at risk of causing their health to decline even if disease free. Stress increases cortisol and cortisol is an immunosuppressant(sp).
I know what I said and anyone who wants to re-read the post sx 1/7/7, do so and now you will be seeing this in the same light that I saw his post, though I was told I was wrong.
Willows, I hope you feel better soon, I really do, and I am sorry that you don't like reading my threads about feeling okay thus far. Anything can change for me anyday, i am not ignorant, but as I said, the newbies in waiting need encouragement too. If I was having sx at this moment, I wouldn't hide them as to sugar coat, i would ask the forum for help.
Wishing you the best. hope you feel better and I truly will pray for a miracle for you. don't ever give up hope. God is still on the throne and can do all things.
I think NOW it is very clear that it had 'everything' to do with my post and it bothers him to read my posts for what ever reason. I feel sad for him, I do. My intent for my posts were/are to help the 'ones in waiting'. Several on site have mentioned that my posts HAVE DONE JUST THAT. Aquarius is one.So even if she was the only one, it was worth posting, because it helped her. When I said I wouldn't post anymore, (as if I should be made to feel ashamed that I feel ok 'thus far'), several people said, 'no please keep posting.' Again, the 'audience' I am try ing to target 'I AM' reaching, (those in waiting to tx.)I can only speak from experience and this has been my experience thus far. I am supposed to lend support in what ever way I can. If it was that I had experience with nausea and someone asked what to do, i would lend a helping hand.
I only wish that others besides Rocker posted that they were doing well before I started. I know that there are others out there, Big bloc just completed 48 weeks, basically sailed through and I just found out. It would help us who are shakin' in our boots before tx, if ALL those who are doing okay to let us know 'during their ride'. I cancelled all my church gigs(musician) for the next 6 months because I thought I was going to be sick as a dog,,,which CAN and DOES happen.I am not saying people are lying or stretching the truth. But I really thought that EVERYONE goes through hell, no exception, but Rocker because thats all I saw.
Susan has had tx 7 times and at one time mentioned she didn't want to discourage anyone and was going to leave the forum for a while.I posted to her and told her what an encouragement she is(and I've done that more than once)to the forum because of her inner strength that she exhibits.She has had a very difficult time and her posts I do NOT find negative, but truthful, as to her own experience, but not only truthful, they are an encouragement to me as I see Susan as one who perserveres and had shown a wonderful attitude in such trying times that she has gone through.
As far as Willows, he was the one who started this 'sugar coat,' phrase and trying to give the impression that I don't want to hear any negatives. Thats beyond ridiculous.
I do sense he (or she, sorry don't know)is bitter which can happen to anyone, but the ones on board that have experience in dealing with someone who has hurt and pain (and I can fully understand and do sincerly sympathize )should not enable someone to stay in this mind set. Without hope, life is difficult and a person suffering from anger and bitterness left alone is at risk of causing their health to decline even if disease free. Stress increases cortisol and cortisol is an immunosuppressant(sp).
I know what I said and anyone who wants to re-read the post sx 1/7/7, do so and now you will be seeing this in the same light that I saw his post, though I was told I was wrong.
Willows, I hope you feel better soon, I really do, and I am sorry that you don't like reading my threads about feeling okay thus far. Anything can change for me anyday, i am not ignorant, but as I said, the newbies in waiting need encouragement too. If I was having sx at this moment, I wouldn't hide them as to sugar coat, i would ask the forum for help.
Wishing you the best. hope you feel better and I truly will pray for a miracle for you. don't ever give up hope. God is still on the throne and can do all things.
Megace and Marinol (medical marijuana) are different drugs. Megance can put on pounds but generally it puts on fat as opposed to muscle. Still it's part of an arnsenal you might use. Marinol is legal (I think) most everywhere, but of course ask your doctor.
MyOwn,
Don't really want to insert myself in this because I respect both of you. Similar to myself, Willows had a very difficult time on treatment and unlike myself did not SVR which must make it many times more difficult. I do understand you were coming from a good place and just trying to convey that treatment isn't always bad. On the other hand, you have to understand that people like Willows (and myself) who treated for far longer than two weeks probably are looking for some kind of acknowledgement how bad longer term treatment can be just to put it all in perspective. Personally, what I think happened is that you got caught up in a euphoria resulting from treatment not being the nightmare you thought it might be and maybe some of your posts therefore got misinterpreted. Willows is a good person. You're a good person. I'm even a good person, some of the time.
All the best,
-- Jim
MyOwn,
Don't really want to insert myself in this because I respect both of you. Similar to myself, Willows had a very difficult time on treatment and unlike myself did not SVR which must make it many times more difficult. I do understand you were coming from a good place and just trying to convey that treatment isn't always bad. On the other hand, you have to understand that people like Willows (and myself) who treated for far longer than two weeks probably are looking for some kind of acknowledgement how bad longer term treatment can be just to put it all in perspective. Personally, what I think happened is that you got caught up in a euphoria resulting from treatment not being the nightmare you thought it might be and maybe some of your posts therefore got misinterpreted. Willows is a good person. You're a good person. I'm even a good person, some of the time.
All the best,
-- Jim
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