Aa
Finally on treatment:-)
I've finally begun treating my chronic hbv with entecavir. I know this drug will not cure me, but, at least, I'm hoping it would help me get rid of my other possibly hepB related health issues like chronic kidney problem, neoropathy, debilitating muscle and joint aches, as well as constant fatigue. If the drug could help me with these issues, i would be very thankful. In the meantime we wait for a total cure for this curse of hbv disease.
I do not know where or how I got infected, most likely at birth.
6 Comments
I see that means your parents have hepatitis B as well? That is the most common cause for chronic I believe
well, that is a myth, the first time i got my test result hep b positive, the dr requested to have all members in family tested, my dad test negative, needed to take the 3 shot vaccine, my mom test said she has came in contact with the virus at some point, but at the time of test, no longer a carrier, no treatment needed.
I see. That is very weird maybe you had a unprotected sexual encounter at your teen years?
I do not think it's a myth though. Perhaps just not in your case majority of the chronic cases are through mother to child
Neither of my parents had hep b I got it most probably from dentists at age 24
That's unfortunate so unlucky if that's the case. Are you chronic?
Is it true some people don't need drugs for HBV in their life time? and of yes, who are the category of these people.Some consultant doctors and lab scientist told me this
4 Comments
Watch the video I linked above. He indicates the 2 measures for determining who needs treatment or not. (1) viral load (2) liver function
here is my experience on my hepatitis b, i came to know about my infection through a routine hep b screen around teenager, i noticed this is the american way of diagnose and treatment, which often different than the rest of the world, where other are also looking at quantitative surface antigen, this video echoed how my experience went, monitored every 6 months for a decade, then at age 30, my viral sudden spike exponentially, that was around 2004 to 2005, the dr started panic, and started treating me, and gave me option of needle injection or oral pill lavivudine, i chose the easier method and took the pill, i got the drug induced mutation on hep b, luckily the HIV approved drug viread and truvada were available, and i started tooking viread, my dr always look for viral load and alt, ast, and liver function, i don't have the earliest lab report history, only went as far as year 2007 when i first began to pay attention in 2015.
it was exacty how the youtube video described it, i was young at the time, at one point, i almost thought about quit visiting. took too much of my time visiting dr every 6months. and i didn't have bad symptoms, living normal life. did liver biopsy twice, every 5 years, because my alt was always elevated, and ultrasound every 2 years, and both liver biopsy and ultrasound test came back normal. i was prepared to take the viread pill for life, then around 2009 my hepb e antigen became negative, my dr was smiling at me saying i have 2% chance to loose my surface antigen, i kept taking the pill daily and move on in my life without paying much attention, here was a little drama, in january 2015, i went to bloodwork, normally nurse draw 5 or 6 tubes of blood from my arm, but the nurse only did about 3 or 4, when i voiced my concern on the number of tubes was less because i've drawing the same number of tubes for decades. the nurse confronted me back saying i was trying to tell her how to do her job, so i just kept my mouth shut. then two weeks later, the lab called me back telling me i did not have enough blood sample to test hepb viral, went back for 2 more tubes, another drama happened, the butterfly type needle fell out and the blood was shooting out, talking about murphy's law, two weeks later, my dr called me and told me all the sudden my undetected viral has became detectable at 1800 iu/ml. sent me another prescription for bloodwork in 2 months. in may 2015 vrial undetected again, in july 2015, i have seroconverted, lost my surface antigen and hep surface anti-body became reactive aswell, but dr. told me keep taking the pill for another 12 months, then test again 6 months stopped treatment make sure my surface antibody still reactive.
personally, now i feel my quality of life is much better than before, much stronger immune system, more energetic, don't feel tire, don't get headache, cough or any seasonal sickness.
it has been almost 3 years now and my surface antigen is still non reactive , surface anti body more than 10ui/ml, reactive.
to summaries my experience, my dr treated me once my viral went to million per copy, keeping an eye on my alt, and kidney, took 5 years to lose e-antigen, another 5 year to lose surface antigen and developed surface anti-body, end of treatment.
there is always hope for cure.
it was exacty how the youtube video described it, i was young at the time, at one point, i almost thought about quit visiting. took too much of my time visiting dr every 6months. and i didn't have bad symptoms, living normal life. did liver biopsy twice, every 5 years, because my alt was always elevated, and ultrasound every 2 years, and both liver biopsy and ultrasound test came back normal. i was prepared to take the viread pill for life, then around 2009 my hepb e antigen became negative, my dr was smiling at me saying i have 2% chance to loose my surface antigen, i kept taking the pill daily and move on in my life without paying much attention, here was a little drama, in january 2015, i went to bloodwork, normally nurse draw 5 or 6 tubes of blood from my arm, but the nurse only did about 3 or 4, when i voiced my concern on the number of tubes was less because i've drawing the same number of tubes for decades. the nurse confronted me back saying i was trying to tell her how to do her job, so i just kept my mouth shut. then two weeks later, the lab called me back telling me i did not have enough blood sample to test hepb viral, went back for 2 more tubes, another drama happened, the butterfly type needle fell out and the blood was shooting out, talking about murphy's law, two weeks later, my dr called me and told me all the sudden my undetected viral has became detectable at 1800 iu/ml. sent me another prescription for bloodwork in 2 months. in may 2015 vrial undetected again, in july 2015, i have seroconverted, lost my surface antigen and hep surface anti-body became reactive aswell, but dr. told me keep taking the pill for another 12 months, then test again 6 months stopped treatment make sure my surface antibody still reactive.
personally, now i feel my quality of life is much better than before, much stronger immune system, more energetic, don't feel tire, don't get headache, cough or any seasonal sickness.
it has been almost 3 years now and my surface antigen is still non reactive , surface anti body more than 10ui/ml, reactive.
to summaries my experience, my dr treated me once my viral went to million per copy, keeping an eye on my alt, and kidney, took 5 years to lose e-antigen, another 5 year to lose surface antigen and developed surface anti-body, end of treatment.
there is always hope for cure.
i remembered my dr told me i had the wild type, mutated by lavivudine.
Nice to hear about your story. It must have felt great to get rid of the virus once and for all. Can I ask though where did you get your Hep B?
Watch this very good video about hepatitis B. https://www.youtube.com/watch?v=3cP2kvPq7iQ hope it helps you all
good luck :) hope you'll feel better
1 Comments
Thanks a lot bro for the best wishes:) I also hope you are doing well with your treatment:)
Thanks guys for all the best wishes:) I hope those of us who are on treatment won't be married with these drugs for the rest of our lives; I hope all the ongoing hbv researches would finally find a cure for all of us.
Yes taking antivirals would render u a bit lesser susceptible to autoimmune diseases but that is not to a big extent coz antivirals don't supress other viral antigens and only supress hbvdna.
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