Hepatologist recomendation in Southen California

[veteranB]

Hi folks,

I need some recommendations of people  in Orange County or LA that are able to handle patients that want  to do Pegasys.

I have been on Baraclude for 6 years. Last year stopped it VL back to 100,000 copies in one month. So I am back on baraclude. I am e- antigen negative with two mutations in the core.

HBV Genotype A
Basal Core Promoter Nucleotide - T1762/A1764 Mutant
PreCore Codon 28 - Wild type

I am looking for an experienced doctor, who is up to date with HepB treatment information. Not an entecavir or tenofovir salesman.

Any recommendations would be very helpful

[stef2011]

And I am told it won't work for me because VL is low or undetectable.

that s a lie and you may sure them, it is the opposite those with hbvdna und have the highest chances because there is already some immune response active on keeping vl down.if i am not wrong a 2009 easl study

as you tell it it is a fraud to patients made up by isurance/doctors/drug makers agreement

[veteranB]

I wrote to Replicor about REP 9AC  to try it..

Here is what they replied with.

"We are not currenlty approved to treat patients within the USA with our drug. Our drug is still being tested in Asia where we are optimizing the treatment regimen. Once it has been optimized, we hope to be able get approval within the USA.

You can rest assure that we are doing our best to make sure we make our drug available to patients as soon as possible."

We can't even try this medication here because of big pharma monopolies.

[veteranB]

They are not afraid of lawsuits. I called an attorney  after i was dumped by Hep clinic. He was very blunt with me. And told me "what do you expect  you have a government insurance, nobody takes it these days"

That is why people like us are stuck with this. One medication obviously is not enough. Combo therapy is needed. But now even if I did all the steps and have a decent health insurance that pays. It is almost impossible to find a hepatologist to treat you. It is either baraclude or tenofovir. PCR VL is undetectable, don't worry about it. That is all they tell me. Never mind that I have developed fatty liver, that five years ago was not there on MRI scan. This means what? Baraclude is not working? Nobody tells me anything again. I requested pegasys. And I am told it won't work for me because VL is low or undetectable. When I had 246 million in 2007, I was told your viral load it to high for interferon your liver may fail.

All this is going in the world class metropolis like LA. UCLA and UCSD these are considered very good clinics. But apparently all they are interested in is doing liver transplants, rather then treating people not to get there.

frustrating...

[lila58]

I lived in your country for almost 7 years but we had to come to US.This is my first place in US and for me was a big change.Here medical field moves slow,too afraid of lawsuits.You are exactly right in all you're saying.

[lila58]

You didn't see the worst yet,I live in NM where doctors have no clue of hepb,it is verry uncommon here.I go to Europe every year to see my family and I have the tests I can't have here,pretty sad.I am my own doctor and maybe i am taking the risk not to be on treatment yet.The food is not great either but I am doing the best I can.

[stef2011]

if you move to italy and take residece you can have all medical treatments for paying just health taxes which are for sure cheaper than health insurance....of course moving here from US is too far

actually here you can even walk into a hospital and have no passport or pass to stay in italy and have medical care....i know this can drive italy into bankrupcy but i am proud that african immigrants can have medical assistance no matter they are not european or have money

as a very good example a young girl from romania needed a liver transplant and she had it in the best hospital for liver transplant in europe in tourin entering first in the list before italians, just to compare i read the news of people left to dye in arizona or close state just because they could not pay for it, that s just disgusting and crazy