nonresponder

[swcslm]

I HAVE HAD THE SERIES OF 3 VACC FOR HEPB 1994 IN 1997 TEST AND TITER WAS NEG HAD A BOOSTER. IN 2002 BLOOD TEST WAS NEG AGAIN.
IS THIS COMMON IN PEOPLE TO BE NONRESPONDERS AND WHAT CAN BE DONE TO GET THE ANTIBODIES AGAINST HEP B?

[DownThisRoad]

I am so very sorry to hear about your loss, Mint. I am praying that you find strength for yourself and your family during this extremely difficult time. My thoughts are with you.

[mikesimon]

I can't express how badly I feel about the loss of your husband. I am so sad for you. I think you are wise to forget about the genotype disparity and just get on with your journey. I wish you strength and hope at this very difficult time. And good health as well. Good luck. Mike

[new-sojourn]

I was just wondering these last few days how your husband was doing.  I'm so sorry for you.  I'm ESLD, having gone into complete liver failure 26mo ago.  I tx thru a s/p study for ESLD'ers and cl by 18 days.  Lacking insurance or $$$$ for a transplant, I can only live each day on a prayer.  You and your husband are included in my prayers often.

[layla]

Sorry to hear your tragic news. I hope you have many good memories to carry with you. LL

[Minttwist]

Hello everyone.  Sorry to barge in on this post. I didn't read it, nor have I read any post within the last 30 or so days, but I just have to let everyone know.

My husband passed away on November 7, 2003, 2:30 p.m.  He was to receive his liver if they got him stable, but they could never stabalize him.  He lost so much blood, heart stopped (they got him going again), but because he had lost so much oxygen to his brain (kidney, and etc) he would have never survived without a life support system.

I don't mean to give you guys bad news (but stay on the interferon guys).  

But Mike, I looked over hubbys records and he was a 1b where I am a 1a.  I still wonder if that was a mistake or not, but that's all I have to go on, so I am going to go on with my life and accept this as truth.  Just thought you would want to know.

Happiness and success to all.  MAJ Neni, thanks for your support.

[swcslm]

THANK YOU FOR YOUR COMMENTS THEY WERE HELPFULL WITH FAMILY HISTORY OF HEMOCROMOTOIS ALL SIDE TO THIS IS SOMETIMES OVERWHELMING

[jamit_a]

Hi, I'm so sorry to hear about your husband. Although I've never had any communication with you or him I feel that there's a bond between all of us struggling with this dragon!

Please accept my condolences,

May GOD bless you and keep you,

Jamit_a,
Marcello

[lackalustre]

yes i think the vaccine they are talking about is the BILN.   i think ive heard it referred to as a vaccine be4.

[britgirl]

I am so sorry for you. The death of a partner must be very hard to bear. I just hope he didn't suffer too much at the end and that you are well.

[GettingWell]

What new vaccines are you referring to? Was that the BILN-??? stuff?

[lackalustre]

yes there are benefits to having done the tx.   it lessened his chance  greatly of getting  liver cancer.   that had to be overwhelming news to get.  it seems especially hard news when the treatment is still doing a number to your emotions, mind, and body.  someone here may have the statistics on retreatment.  that seems to be important information to know before u decide to retreat.     im seeing blurbs in magazines now about the new "vaccine"  coming for hepatitis c.

[AK - Hepper]

BILN isn't a vaccine, but a protease inhibitor like they use for HIV. I read on the Johns Hopkins site the other day that BILN has pretty much been sidelined because of problems with toxicity in animal tests, and my doc confirmed that Wednesday. There are other PI's being tested, though; Vertex I think one is called.

[AK - Hepper]

So sorry to hear about your husband, my thoughts are with you.

[swcslm]

VERY SORRY TO HEAR ABOUT YOUR LOST.IAM SURE YOU WILL CARRY HIS MEMORY WITH YOU ALWAYS.BE STRONG

[oldhippiechick67]

So very sorry to hear your husband lost his battle with liver disease.  Are you ok? We have missed hearing from you, take care and may all that is good and holy help you through this time of grief. OHC

[MajNeni]

Hi, Minttwist,
What a blow.  How long were you two married?  I know it was a long standing union.  Do you have some close family to share this with you?  
I know how much you worried about your husband throughout your tx, and how frustrated you were.  Were you able to keep up your tx all this time?  Then you are close to the finish line, and we have lots of hope there.
I hope we here can offer you some company and lighten your burden.  Time and good memories will eventually help you feel whole again.  Let me know if I can do anything.  (I'm at yahoo)
Holding you in the Light,
MajNeni

[giddyup]

Sorry about the loss of tour husband.I wish you streangth at this difficult time

[LvdByGod]

i am so sorry about your husband. i pray for you and your family that you will be able to make it through all this.  Mintwist, we are your friends please come back here and let us know how you are doing. you will be in our thoughts and prayers. sandi

Psalm 23 is a great comfort and so are the other psalms in the Bible. God is there for you and loves you so much he will keep you safe and sound.The Bible says,"God is a great comfort in our time of need."

[willing]

thank you for writing. I hope you find some fellowship and support in this group at this painful time - dealing with this disease forges a bond of caring among us. I will hold you in the Light, Alastair

[txpartner]

no new threads.  similar topic.  hubby is a non-responder to the combo treatment.  was in a s/p trial with double PegIntron for first 11 weeks, then normal dose til now.  at 24 weeks his viral load was almost twice what it was before starting...3M iu/ml befire to 5.5M iu/ml. now  scaring moderate, no cirr. on biopsy.  elevated alt/ast.  he goes for "exit interview" with his pa next week and to make a "plan".  what are his choices?  wait til next generation protocol?  any experience you could share.  he needs encouragement at this point.  pretty down with the lingering sides (last sat was his last shot) and bad news.  he hadn't cleared at 12 weeks but was down to .5M which was no 2 log drop but a whopping decrease from over 3M so he kept going.  has there been any benefit at all for having gone through this hell?

[oldhippiechick67]

Hey, good question.  I too had the vaccine and tested neg. I also had hepititis of some kind twice back in the 70's.  I was told it "had to be the blood borne kind".  Dont know why I test neg for A and B still, but sure tested positive for C.