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Any Help for Post Treatment Syndrome
Hello,
Has anyone done anything that actually helps the post treatment symptoms, fatigue, lethargy, depression, etc? There are thousands of posts regarding this situation, but I haven't seen anyone talking about things that they have tried that worked.
I am also curious if there is any research out there about what actually happened to our bodies that caused these continuing conditions? Someone must have done some research, but I have never been able to find anything published. If nothing else, I'd just like to know what was damaged so I can understand the process.
My history: Treatment in 2001, 6 months, cleared the virus, been sick and disabled for the last 13 years. Sometimes better, sometimes worse. Stress wipes me out.
Has anyone done anything that actually helps the post treatment symptoms, fatigue, lethargy, depression, etc? There are thousands of posts regarding this situation, but I haven't seen anyone talking about things that they have tried that worked.
I am also curious if there is any research out there about what actually happened to our bodies that caused these continuing conditions? Someone must have done some research, but I have never been able to find anything published. If nothing else, I'd just like to know what was damaged so I can understand the process.
My history: Treatment in 2001, 6 months, cleared the virus, been sick and disabled for the last 13 years. Sometimes better, sometimes worse. Stress wipes me out.
Best Answer
it was my liver consultant that treated me who finally gave me the diagnosis after 5 years of back and forth.
re LDN,if you are taking opiate painkillers this drug is not a good idea as the opiates won't work!
I think we're a larger percentage than they let on too. It took me years to get it together to come on this forum and as I find computers so tiring I only duck in and out. We need to make sure our doctors have informed the pharmas of our predicament and write to the pharma company involved ourselves to report post tx issues but as most of us can't even get dressed...
I am not sure what exactly we are suppose to email the Mayo doctors about?
The way I see it Mayo is a private research hospital that is helping HepC patients out! I don't know if they are the group that defined PIS but I know at least 2 members here that got a diagnosis here of PIS a number of years ago which started a movement within the HepC community.
If you want to make some noise with the folk who really know something and are NOT doing anything about it start with the pharmaceuticals! Ask them to send you their complete long term studies of treatment - COMPLETE! It is a dirty little secret that all research is edited. Can you imagine what was edited out of the HepC treatment!?!? Reading thru the lit was a horror and to think it was even worse!!!
I can go on and on but will leave with this. Many say that those with PIS is a very small %. We are just a very vocal group! Well I say BULL! I live in a small rural town. I have PIS. My mothers best friend, three houses from me has PIS! What are the odds? Treatment nearly killed her. She doesn't get online! She doesn't have a voice!
The way I see it Mayo is a private research hospital that is helping HepC patients out! I don't know if they are the group that defined PIS but I know at least 2 members here that got a diagnosis here of PIS a number of years ago which started a movement within the HepC community.
If you want to make some noise with the folk who really know something and are NOT doing anything about it start with the pharmaceuticals! Ask them to send you their complete long term studies of treatment - COMPLETE! It is a dirty little secret that all research is edited. Can you imagine what was edited out of the HepC treatment!?!? Reading thru the lit was a horror and to think it was even worse!!!
I can go on and on but will leave with this. Many say that those with PIS is a very small %. We are just a very vocal group! Well I say BULL! I live in a small rural town. I have PIS. My mothers best friend, three houses from me has PIS! What are the odds? Treatment nearly killed her. She doesn't get online! She doesn't have a voice!
I'm impressed :). It always amazes me how little doctors want to talk about the effects of Hepatitis C.......let alone treatment effects.
Best to you
Best to you
I emailed 49 doctors at Mayo in the Hepatology Department. I am also calling in, but you have to go through a main intake office so I don't know how far I can go.
I would encourage everyone else to also contact the doctors via email. Let's make some noise!
I would encourage everyone else to also contact the doctors via email. Let's make some noise!
... great definition and I would add, from what I have read, also seems to reduce inflammation.
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