I also had neuropathy, I started B12 and that really helped. People with liver problems and elderly people often have low B12.
I don't have the study. I am just trying to help
I also started taking Andrew Lessman's vitamins for ciculation, veing support, leg pain. This got rid of the heaviness that I was experiencing.
I am only mentioning this brand because I tried other things like Horse Chestnut and that did not work for me but Dr Lessman has some really good products.
Hi sweetie, I am so sorry for what you and your husband are experiencing. Please don't lose the faith due to a stupid doctor.
I had brain fog and started taking NADH, several others on here tried it and it helped.
I no longer have to take it. It has been 20 months since I finished tx and I am doing better.
Boceprivergal had a similar experience with her hips popping out of place. It did finally go away.
I know it is hard but maybe he could start walking, I read that even 10 minutes a day can help.
Also when I finished tx I had pain, I started taking daily vitamins with out iron calcium, magnesium potassium and zinc.
Calcium is good for the muscle cramps thought magnesium relaxes the muscles, he could try before bed.
I am just sharing what I did, I am not a medical specialst I just play one on TV ha ha. Actually I do a lot of searches on internet and I have a book, you can look up your problem and find what vitamins are needed. It is called "Prescription for Nutritional Healing" I think Amazon may have it, I have the 4th edition, there may be a newer one
Oh, DWBH mentioned Vitamin D, that is excellent advice, when my Vit D was low I was depressed. Now that I have gotten it higher I am much happier.
If he can't walk yet, I couldn't, he could do gentle stretches. I do think the tx dries out our ligaminets, tendons muscles etc. I know it dehydrates us
I recently read that Coconut water can help hydrate our body.
Another member on here recently sent me a message that the cal, mag, really helped he with cramps at night..
If I think of anything else I will come back.
Take care, don't give up hope
Dee
Thanx so much you guys i will look into those supplements and will tell hubby about vit D test. He also had weird things going on with the sun and his skin, but i must admit they are abating now thank god! I also agree about the advice but like you stated the docs wont help so if it wasnt for people like your good selves where on earth would we get the advice from? So thank-you we really do appreciate it all the best Jules xx
Your husband's problems sound like a familiar list of post-tx symptoms, though no two ever seem exactly alike. My peripheral neuropathy was due to a combination of the onset of insulin resistance and low B vitamins. Tx'd by getting my blood sugar under control and by off-label use of a fancy B vit. supplement, CerefolinNAC. Probably going to be hard to get the National Health to approve that one for you, as it's very pricey and would be an 'off-label use' over there as well. You might try supplementing with OTC NAC and OTC sublingual B12.
I really hate posting anything that sounds like 'advice', but if the doctors won't look out for us, we'll have to look out for each other. Just sharing what helped for me.
Good luck.
Hang in there Jules.