LDN

[cheflady]

hi there keep seeing LDN crop up but i have no idea what it is could some kind person let me know what it is then i can look it up for what it is called in England. Love& thanks Jules xx

[Willy50]

There have been a few.
Use the board search engine and type in LDN, HCV
I get several results doing this.

This fellow had several threads;
http://www.medhelp.org/posts/Hepatitis-C/mhudnall-LDN-12-month-labs/show/1050098

...which you can also access by visiting his profile and scanning posts.
Quite often the threads also contain links that are of use.

I can tell you that Utube also has decent videos on LDN

~W

[Dee1956]

Hi Frank really great to see you on here.  I don't know why I thought that you had gotten on the LDN so there must be another discussion on here.
I have seen it a few times
I don't understand why the doctor is so hesitant to prescribe.  I could see if it was an opiate.  
I hope you can at least try it.
D

Jules I am sorry that the doctor is not addressing the problems hubby is having.  I am really sorry.  It is so frustrating. Take Care

[cheflady]

thanks for the replies i prob did ask about it before head a shed!! hubby tried so much stuff to no avail. Just got back for docs this morning they have put him back on mertazipene(for mood) but given him 7x 7.5mg of zopolene to take every other day to catch up on sleep but it still is'nt addressing pain. Feel lost, angry, upset, MAD and thats just me!!. Thank-you guys for helping much love& regards Jules xxx

[Frank J. Perrotta]

Thanks for finding that Dee.

That would be the most recent thread where it seems to have been discussed.

I thought cheflady/Jules was involved in that discussion but maybe she missed the answers...

I have been involved with my pcp and pain doc (who, for some reason is the doc who has to prescribe Naltrexone) FOR MONTHS just to contact one another so they can start on a program for me to try LDN!

Just today I had a 1pm appt with my pcp who earlier in the a.m. reached my pain doc who nearly agreed but is still hesitant about the script!!! UGH!!!

My pcp has studied at Mayo, contacted his friends at Mayo who are using LDN on PIS patients with success... my doc has also read all the research papers on LDN & PIS and we are going to start very low with 2mg.

There is another forum which talks about other docs which will script LDN to your doc BUT WHY IS IT SOOOOOO CRAZY DIFFICULT??? A med that has very little side effects, could possibly be very effective in reducing inflammation - which seems to be one of my main complaints?!?!?! AND IS FAIRLY CHEAP!!!

Sorry, I just had to RANT!

Peace and Love to ALL, frank

[Dee1956]

Hi I did a search on here and found this thread, I hope it can help

http://www.medhelp.org/posts/Hepatitis-C-Post-Treatment-Issues/Any-Help-for-Post-Treatment-Syndrome/show/2129408

[Dee1956]

Hello, I see that you got an answer. I wanted to add that I have seen others on here taking this to help them.  I will try to find more information
Take care, my thoughts and prayers are with both of you.
Dee

[desrt]

http://en.wikipedia.org/wiki/Naltrexone

"Naltrexone is an opioid receptor antagonist used primarily in the management of alcohol dependence and opioid dependence....."



http://en.wikipedia.org/wiki/Low-dose_naltrexone

"Low-dose naltrexone (LDN) describes the "off-label" use of the medication naltrexone at low doses and for other diseases such as multiple sclerosis......"